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Public Health Genomics and Precision Health Knowledge Base (v9.0)
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Last data update: Apr 25, 2024
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all[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
The ethics of polygenic scores in psychiatry: minefield or opportunity for patient-centered psychiatry?
Roel H P Wouters et al. Psychiatr Genet 2024 34(2) 31-36
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The Potential and Challenges of Genomics Informed Precision Care for Substance Use Disorders.
Rose Mary Xavier et al. J Psychosoc Nurs Ment Health Serv 2024 62(3) 11-14
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Ethical preparedness in genomic medicine: how NHS clinical scientists navigate ethical issues.
Kate Sahan et al. J Med Ethics 2024
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Trust in and Acceptance of Artificial Intelligence Applications in Medicine: Mixed Methods Study.
Daria Shevtsova et al. JMIR Hum Factors 2024 11e47031
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Genetic risk prediction in Hispanics/Latinos: milestones, challenges, and social-ethical considerations.
Betzaida L Maldonado et al. J Community Genet 2023
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Federated Analysis for Privacy-Preserving Data Sharing: A Technical and Legal Primer.
James Casaletto et al. Annu Rev Genomics Hum Genet 2023
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Artificial Intelligence Bias in Health Care: Web-Based Survey.
Carina Nina Vorisek et al. J Med Internet Res 2023 25e41089
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Gene-environment interaction: why genetic enhancement might never be distributed fairly.
Sinead Prince et al. J Med Ethics 2023
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Inadvertent human genomic bycatch and intentional capture raise beneficial applications and ethical concerns with environmental DNA.
Liam Whitmore et al. Nat Ecol Evol 2023
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Implicit Incentives Among Reddit Users to Prioritize Attention Over Privacy and Reveal Their Faces When Discussing Direct-to-Consumer Genetic Test Results: Topic and Attention Analysis.
Yongtai Liu et al. JMIR Infodemiology 2023 2(2) e35702
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Clinical, technical, and environmental biases influencing equitable access to clinical genetics/genomics testing: A points to consider statement of the American College of Medical Genetics and Genomics (ACMG).
Dena R Matalon et al. Genet Med 2023 100812
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Clinical, technical, and environmental biases influencing equitable access to clinical genetics/genomics testing: A points to consider statement of the American College of Medical Genetics and Genomics (ACMG)
DR Matalon et al, Genetics in Medicine, April 14, 2023
No person left behind: Mapping the health policy landscape for genomics research in the Caribbean.
Jyothsna Bolleddula et al. Lancet regional health. Americas 2023 15100367
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Avoiding Liability and Other Legal Land Mines in the Evolving Genomics Landscape.
Clayton Ellen Wright et al. Annual review of genomics and human genetics 2023
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Ethical challenges in genetic research among Philippine Indigenous Peoples: Insights from fieldwork in Zamboanga and the Sulu Archipelago.
Rodriguez Jae Joseph Russell B et al. Frontiers in genetics 2022 13901515
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Technical, Ethical, Legal, and Societal Challenges With Digital Twin Systems for the Management of Chronic Diseases in Children and Young People.
Drummond David et al. Journal of medical Internet research 2022 24(10) e39698
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The Challenges of Regulating Artificial Intelligence in Healthcare Comment on "Clinical Decision Support and New Regulatory Frameworks for Medical Devices: Are We Ready for It? - A Viewpoint Paper".
McKee Martin et al. International journal of health policy and management 2022
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Ethics of digital therapeutics (DTx).
Refolo P et al. European review for medical and pharmacological sciences 2022 26(18) 6418-6423
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Regulatory Aspects of the Use of Artificial Intelligence Medical Software.
Zanca Federica et al. Seminars in radiation oncology 2022 32(4) 432-441
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Benefits and Risks of Sharing Genomic Data for Research: Comparing the Views of Rare Disease Patients, Informal Carers and Healthcare Professionals.
Amorim Mariana et al. International journal of environmental research and public health 2022 19(14)
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Is blockchain the breakthrough we are looking for to facilitate genomic data sharing? The European Union perspective.
Cascini Fidelia et al. Digital health 2022 820552076221114225
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Research on Legal Constraints of Individual Environmental Data Rights and Interests in Big Data Environment.
Xiao Yineng et al. Journal of environmental and public health 2022 20224493267
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Governance of Heritable Human Gene Editing World-Wide and Beyond.
Xue Yang et al. International journal of environmental research and public health 2022 19(11)
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A View on Genomic Medicine Activities in Africa: Implications for Policy.
Jongeneel C Victor et al. Frontiers in genetics 2022 13769919
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Challenging the Utility of Polygenic Scores for Social Science: Environmental Confounding, Downward Causation, and Unknown Biology.
Burt Callie H et al. The Behavioral and brain sciences 2022 1-36
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Genomics and justice: mitigating the potential harms and inequities that arise from the implementation of genomics in medicine.
Clarke A J et al. Human genetics 2022
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Ethical implications of epigenetics in the era of personalized medicine.
Santaló Josep et al. Clinical epigenetics 2022 14(1) 44
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Developing, implementing and governing artificial intelligence in medicine: a step-by-step approach to prevent an artificial intelligence winter.
van de Sande Davy et al. BMJ health & care informatics 2022 29(1)
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Defining AMIA's artificial intelligence principles.
Solomonides Anthony E et al. Journal of the American Medical Informatics Association : JAMIA 2022
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Conceptualising fairness: three pillars for medical algorithms and health equity.
Sikstrom Laura et al. BMJ health & care informatics 2022 29(1)
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Page last reviewed:
Feb 1, 2024
Page last updated:
Apr 25, 2024
Content source:
Public Health Genomics Branch in the Division of Blood Disorders and Public Health Genomics
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National Center on Birth Defects and Developmental Disabilities
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