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Last data update: Oct 01, 2022. (Total: 49787 Documents since 2012)
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Query Trace: all[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
Prevalence and prediction of medical distrust in a diverse medical genomic research sample.
Angelo Frank et al. Genetics in medicine : official journal of the American College of Medical Genetics 2022
Diversity in cancer genomics research is a matter of equity and scientific discovery.
Pal Tuya et al. Genetics in medicine : official journal of the American College of Medical Genetics 2021
The Role of Shared Decision-Making in Personalised Medicine: Opening the Debate.
Guadalajara Hector et al. Pharmaceuticals (Basel, Switzerland) 2022 15(2)
Promoting Health Equity in Cancer Care — ‘It’s Time to Declare Disparities Intolerable’
S Miceli, NASEM, January 2022
Advocating for equitable management of hereditary cancer syndromes.
Caffrey Rikki Gaber et al. Journal of genetic counseling 2022
Harmonization after the GDPR? Divergences in the rules for genetic and health data sharing in four member states and ways to overcome them by EU measures: insights from Germany, Greece, Latvia and Sweden.
Molnar-Gabor Fruzsina et al. Seminars in cancer biology 2021
A Focus Group Study of Perceptions of Genetic Risk Disclosure in Members of the Public in Sweden: "I'll Phone the Five Closest Ones, but What Happens to the Other Ten?"
Hawranek Carolina et al. Journal of personalized medicine 2021 11(11)
Stakeholder attitudes towards establishing a national genomics registry of inherited cancer predisposition: a qualitative study.
Meiser Bettina et al. Journal of community genetics 2021
Legal and ethical considerations of artificial intelligence in skin cancer diagnosis.
Jobson Dale et al. The Australasian journal of dermatology 2021
Risk-Stratified Approach to Breast Cancer Screening in Canada: Women’s Knowledge of the Legislative Context and Concerns about Discrimination from Genetic and Other Predictive Health Data
S Alarie et al, JPM, July 2021
From everyday life predictions to suicide prevention: Clinical and ethical considerations in suicide predictive analytic tools.
Luk Jeremy W et al. Journal of clinical psychology 2021
Students' attitudes towards somatic genome editing versus genome editing of the germline using an example of familial leukemia.
Vajen Beate et al. Journal of community genetics 2021
Mainstreaming informed consent for genomic sequencing: A call for action.
Bunnik Eline M et al. European journal of cancer (Oxford, England : 1990) 2021 148405-410
Primum Non Nocere: Should Gene Therapy be Used to Prevent Potentially Fatal Disease but Enable Potentially Destructive Behavior?
Crystal Ronald G et al. Human gene therapy 2021
Adoption of artificial intelligence in breast imaging: evaluation, ethical constraints and limitations.
Hickman Sarah E et al. British journal of cancer 2021
Sharing genetic variants with the NGS pipeline is essential for effective genomic data sharing and reproducibility in health information exchange.
Lee Jeong Hoon et al. Scientific reports 2021 Jan 11(1) 2268
Identifying the nature and extent of public and donor concern about the commercialisation of biobanks for genomic research.
Critchley Christine R et al. European journal of human genetics : EJHG 2021 Jan
Citizens' conceptions of the genome: Related values and practical implications in a citizen forum on the use of genomic information.
Mayeur Chloé et al. Health expectations : an international journal of public participation in health care and health policy 2021 Jan
Recommendations to researchers for aiding in increasing American Indian representation in genetic research and personalized medicine.
Carroll Dana M et al. Personalized medicine 2020 Dec
To test or not to test: genetic cancer predisposition testing in paediatric patients with cancer.
Mehta Sapna et al. Journal of medical ethics 2020 Dec
Informed consent for genetic testing in hematology.
Marron Jonathan M et al. Hematology. American Society of Hematology. Education Program 2020 2020(1) 213-218
Prevention in the age of personal responsibility: epigenetic risk-predictive screening for female cancers as a case study.
Bolt Ineke et al. Journal of medical ethics 2020 Nov
Researcher Knowledge, Attitudes, and Communication Practices for Genomic Data Sharing.
Nick Heather P et al. Journal of empirical research on human research ethics : JERHRE 2020 Nov 1556264620969301
Ethical Considerations about Genomic Medicine Implementation: Lessons Learned from the eMERGE III Study.
Inamura Kentaro et al. Journal of personalized medicine 2020 Oct 10(4)
Autonomy and social influence in predictive genetic testing decision-making: A qualitative interview study.
Zimmermann Bettina M et al. Bioethics 2020 Oct
Genetic testing for breast cancer risk, from BRCA1/2 to a seven gene panel: an ethical analysis.
Gustavsson Erik et al. BMC medical ethics 2020 Oct 21(1) 102
Ethical challenges of precision cancer medicine.
Winkler Eva Caroline et al. Seminars in cancer biology 2020 Oct
Gap between pediatric and adult approvals of molecular targeted drugs.
Nishiwaki Satoshi et al. Scientific reports 2020 Oct 10(1) 17145
Understanding Medical Mistrust in Black Women at Risk of BRCA 1/2 Mutations.
Sutton Arnethea L et al. Journal of health disparities research and practice 2019 12(3) 35-47
Bioethics and healthcare policies. The benefit of using genetic tests of BRCA 1 and BRCA 2 in elderly patients.
Fonseca Vasco et al. The International journal of health planning and management 2020 Sep
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