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Public Health Genomics and Precision Health Knowledge Base (v8.2)
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all[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
"Doing Good" in U.S. Cancer Genomics? Valuation practices across the boundaries of research and care in rural community oncology.
Darling Katherine Weatherford et al. New genetics and society 2023 41(3) 254-283
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Exploring access to genomic risk information and the contours of the HIPAA public health exception.
Wagner Jennifer K et al. Journal of law and the biosciences 2022 9(2) lsac034
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Yes, We Can, But Should We? Ethical Considerations in Reporting Germline Findings From Paired Tumor-Normal Genomic Testing in Patients With Advanced Cancer.
Hunter Cynthia L et al. Journal of clinical oncology : official journal of the American Society of Clinical Oncology 2022 JCO2200796
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Testing a deliberative democracy method with citizens of African ancestry to weigh pros and cons of targeted screening for hereditary breast and ovarian cancer risk.
Guan Yue et al. Frontiers in public health 2022 10984926
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Population genomic screening: Ethical considerations to guide age at implementation.
Spencer Scott J et al. Frontiers in genetics 2022 13899648
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Mitigating Membership Inference in Deep Learning Applications with High Dimensional Genomic Data.
Zhang Chonghao et al. IEEE International Conference on Healthcare Informatics. IEEE International Conference on Healthcare Informatics 2022 2022
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Privacy-Preserving Deep Learning NLP Models for Cancer Registries.
Alawad Mohammed et al. IEEE transactions on emerging topics in computing 2022 9(3) 1219-1230
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Integrating hereditary breast and ovarian cancer genetic counselling and testing into mainstream clinical practice: Legal and ethical challenges.
Charron Marilou et al. Critical reviews in oncology/hematology 2022 103797
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Artificial Intelligence-Augmented Propensity Score, Cost Effectiveness and Computational Ethical Analysis of Cardiac Arrest and Active Cancer with Novel Mortality Predictive Score.
Monlezun Dominique J et al. Medicina (Kaunas, Lithuania) 2022 58(8)
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Regulation of Laboratory-Developed Tests in Preventive Oncology: Emerging Needs and Opportunities.
Offit Kenneth et al. Journal of clinical oncology : official journal of the American Society of Clinical Oncology 2022 JCO2200995
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State legislative trends related to biomarker testing.
Sadigh Gelareh et al. Cancer 2022
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Impact of the Access to Genetic Counselor Services Act.
Nowlen Carol et al. Delaware journal of public health 2022 7(5) 40-41
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Patient and Provider Perspectives on Enrollment in Precision Oncology Research: Qualitative Ethical Analysis.
Spector-Bagdady Kayte et al. JMIR cancer 2022 8(2) e35033
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Prevalence and prediction of medical distrust in a diverse medical genomic research sample.
Angelo Frank et al. Genetics in medicine : official journal of the American College of Medical Genetics 2022
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Diversity in cancer genomics research is a matter of equity and scientific discovery.
Pal Tuya et al. Genetics in medicine : official journal of the American College of Medical Genetics 2021
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The Role of Shared Decision-Making in Personalised Medicine: Opening the Debate.
Guadalajara Hector et al. Pharmaceuticals (Basel, Switzerland) 2022 15(2)
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Promoting Health Equity in Cancer Care — ‘It’s Time to Declare Disparities Intolerable’
S Miceli, NASEM, January 2022
Advocating for equitable management of hereditary cancer syndromes.
Caffrey Rikki Gaber et al. Journal of genetic counseling 2022
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Harmonization after the GDPR? Divergences in the rules for genetic and health data sharing in four member states and ways to overcome them by EU measures: insights from Germany, Greece, Latvia and Sweden.
Molnar-Gabor Fruzsina et al. Seminars in cancer biology 2021
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A Focus Group Study of Perceptions of Genetic Risk Disclosure in Members of the Public in Sweden: "I'll Phone the Five Closest Ones, but What Happens to the Other Ten?"
Hawranek Carolina et al. Journal of personalized medicine 2021 11(11)
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Stakeholder attitudes towards establishing a national genomics registry of inherited cancer predisposition: a qualitative study.
Meiser Bettina et al. Journal of community genetics 2021
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Legal and ethical considerations of artificial intelligence in skin cancer diagnosis.
Jobson Dale et al. The Australasian journal of dermatology 2021
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Risk-Stratified Approach to Breast Cancer Screening in Canada: Women’s Knowledge of the Legislative Context and Concerns about Discrimination from Genetic and Other Predictive Health Data
S Alarie et al, JPM, July 2021
From everyday life predictions to suicide prevention: Clinical and ethical considerations in suicide predictive analytic tools.
Luk Jeremy W et al. Journal of clinical psychology 2021
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Students' attitudes towards somatic genome editing versus genome editing of the germline using an example of familial leukemia.
Vajen Beate et al. Journal of community genetics 2021
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Mainstreaming informed consent for genomic sequencing: A call for action.
Bunnik Eline M et al. European journal of cancer (Oxford, England : 1990) 2021 148405-410
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Primum Non Nocere: Should Gene Therapy be Used to Prevent Potentially Fatal Disease but Enable Potentially Destructive Behavior?
Crystal Ronald G et al. Human gene therapy 2021
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Adoption of artificial intelligence in breast imaging: evaluation, ethical constraints and limitations.
Hickman Sarah E et al. British journal of cancer 2021
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Sharing genetic variants with the NGS pipeline is essential for effective genomic data sharing and reproducibility in health information exchange.
Lee Jeong Hoon et al. Scientific reports 2021 Jan 11(1) 2268
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Identifying the nature and extent of public and donor concern about the commercialisation of biobanks for genomic research.
Critchley Christine R et al. European journal of human genetics : EJHG 2021 Jan
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Page last reviewed:
Feb 1, 2023
Page last updated:
Feb 07, 2023
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