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Public Health Genomics and Precision Health Knowledge Base (v8.2)
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Last data update: Feb 05, 2023
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all[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
The ethics of gene therapy for hemophilia: a narrative review.
Lieke Baas et al. Journal of thrombosis and haemostasis : JTH 2023
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An Ethical Argument for Health Insurance Coverage of Paternal Prenatal Genetic Testing.
Michelle T Nguyen et al. Obstetrics and gynecology 2023 141(1) 11-14
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Blockchains as a means to promote privacy protecting, access availing, incentive increasing, ELSI lessening DNA databases.
Gal Zarchi et al. Frontiers in digital health 2023 41028249
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Editorial: Implementation of genomic medicine in Africa: One continent, one vision.
Maritha J Kotze et al. Frontiers in genetics 2023 131133118
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Democratizing clinical-genomic data: How federated platforms can promote benefits sharing in genomics.
Maria Alvarellos et al. Frontiers in genetics 2023 131045450
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As it turns 40, the Orphan Drug Act for rare diseases needs a refresh
ED Kakkis, Stat News, January 30, 2023
Association of Smartphone Use and Digital Addiction with Mental Health, Quality of Life, Motivation and Learning of Medical Students: A Two-Year Follow-Up Study.
Marise Machado de Oliveira et al. Psychiatry 2023 1-14
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Genome Editing in Human Gametes and Embryos: The Legal Dimension in Europe.
Vidalis Takis et al. Biotech (Basel (Switzerland)) 2023 12(1)
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Attitudes and beliefs regarding race-targeted genetic testing of Black people: A systematic review.
Iltis Ana S et al. Journal of genetic counseling 2023
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STATEMENT American Society of Human Genetics Board of Directors On The Report of the ASHG Facing Our History – Building an Equitable Future Initiative
ASHG, January 23, 2023
How to regulate evolving AI health algorithms.
David W Bates et al. Nature medicine 2023 29(1) 26
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Tools such as ChatGPT threaten transparent science; here are our ground rules for their use.
et al. Nature 2023 613(7945) 612
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Overcoming and mitigating ethical issues raised by artificial intelligence in health and medicine: The search continues
N Liu et al, BMC Blog, December 2022
Approval and Certification of Ophthalmic AI Devices in the European Union.
Grzybowski Andrzej et al. Ophthalmology and therapy 2023
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Artificial Intelligence in Reproductive Medicine - An Ethical Perspective.
Rolfes Vasilija et al. Geburtshilfe und Frauenheilkunde 2023 83(1) 106-115
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Expanded Non-invasive Prenatal Testing (NIPT) : Can the Child's Right to an Open Future Help Set the Scope?
Claesen Zoë et al. Journal of bioethical inquiry 2023
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Avoiding Liability and Other Legal Land Mines in the Evolving Genomics Landscape.
Clayton Ellen Wright et al. Annual review of genomics and human genetics 2023
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The CRISPR Patent Ruling and Implications for Medicine.
Paradise Jordan et al. JAMA 2023
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The Promise and Peril of Genetics.
Dick Danielle M et al. Current directions in psychological science 2023 31(6) 480-485
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"Doing Good" in U.S. Cancer Genomics? Valuation practices across the boundaries of research and care in rural community oncology.
Darling Katherine Weatherford et al. New genetics and society 2023 41(3) 254-283
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Analysis of the impact of social determinants and primary care morbidity on population health outcomes by combining big data: A research protocol.
Couso-Viana Sabela et al. Frontiers in medicine 2023 91012437
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The designated record set for clinical genetic and genomic testing: A points to consider statement of the American College of Medical Genetics and Genomics (ACMG).
Tayeh Marwan K et al. Genetics in medicine : official journal of the American College of Medical Genetics 2022 100342
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Malpractice litigation surrounding in vitro fertilization in the United States: a legal literature review.
Applebaum Jeremy et al. Fertility and sterility 2022
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Ethical Perspectives of Therapeutic Human Genome Editing From Multiple and Diverse Viewpoints: A Scoping Review.
Joseph Andrew M et al. Cureus 2022 14(11) e31927
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Evidence, ethics and the promise of artificial intelligence in psychiatry.
McCradden Melissa et al. Journal of medical ethics 2022
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"Just" accuracy? Procedural fairness demands explainability in AI-based medical resource allocations.
Rueda Jon et al. AI & society 2022 1-12
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"The elephant in the room": social responsibility in the production of sociogenomics research.
Martschenko Daphne Oluwaseun et al. BioSocieties 2022 17(4) 713-731
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Ethical, legal, and social implications of genetic risk prediction for multifactorial disease: a narrative review identifying concerns about interpretation and use of polygenic scores
CR Chapman, J Comm Genetics, December 19, 2022
The designated record set for clinical genetic and genomic testing: A points to consider statement of the American College of Medical Genetics and Genomics (ACMG)
MK Tayeh et al, Genetics in Medicine, December 21, 2022
Exploring access to genomic risk information and the contours of the HIPAA public health exception.
Wagner Jennifer K et al. Journal of law and the biosciences 2022 9(2) lsac034
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