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Precision Health Database


Genomics & Health Impact Scan Database|Search|PHGKB

Last data update: Sep 29, 2022. (Total: 49737 Documents since 2012)
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Query Trace: all[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
Recommendations on the use and reporting of race, ethnicity, and ancestry in genetic research: Experiences from the NHLBI TOPMed program.
Khan Alyna T et al. Cell genomics 2022 2(8)
Mitigating Membership Inference in Deep Learning Applications with High Dimensional Genomic Data.
Zhang Chonghao et al. IEEE International Conference on Healthcare Informatics. IEEE International Conference on Healthcare Informatics 2022 2022
The AI life cycle: a holistic approach to creating ethical AI for health decisions
MY Ng et al, Nature Medicine, September 26, 2022
Genetic discrimination still casts a large shadow in 2022
Y Joly et al, EJHG, September 26, 2022
Unsettled Liability Issues for "Prediagnostic" Wearables and Health-Related Products.
Simon David A et al. JAMA 2022
Privacy-Preserving Deep Learning NLP Models for Cancer Registries.
Alawad Mohammed et al. IEEE transactions on emerging topics in computing 2022 9(3) 1219-1230
"If relatives inherited the gene, they should inherit the data." Bringing the family into the room where bioethics happens.
Gordon Deborah R et al. New genetics and society 2022 41(1) 23-46
The controversial embryo tests that promise a better baby Some companies offer tests that rank embryos based on their risk of developing complex diseases such as schizophrenia or heart disease. Are they accurate — or ethical?
M Koslov, Nature, September 21, 2022
From Public Eugenics to Private Eugenics: What Does the Future Hold?
Raposo Vera Lúcia et al. JBRA assisted reproduction 2022
A digital mask to safeguard patient privacy
Y Yang et al, Nature Medicine, September 15, 2022
Ethical, Legal, and Social Implications of Genomics in China: A Scoping Review and Implications for Precision Public Health.
Chen Zhuo et al. China CDC weekly 2022 4(32) 706-710
Blanket Consent and Trust in the Biobanking Context.
Nielsen Morten Ebbe Juul et al. Journal of bioethical inquiry 2022
Beyond race: Recruitment of diverse participants in clinical genomics research for rare disease.
Young Jennifer L et al. Frontiers in genetics 2022 13949422
Societal implications of expanded universal carrier screening: a scoping review
LM van der Heuvel el a, EJHG, September 12, 2022
Steps to avoid overuse and misuse of machine learning in clinical research
V Volovici et al, Nature Medicine, September 12, 2022,
A Revised Hippocratic Oath for the Era of Digital Health.
Meskó Bertalan et al. Journal of medical Internet research 2022 24(9) e39177
Enabling Fairness in Healthcare Through Machine Learning.
Grote Thomas et al. Ethics and information technology 2022 24(3) 39
Artificial intelligence in healthcare: Proposals for policy development in South Africa.
Naidoo S et al. South African journal of bioethics and law 2022 15(1) 11-16
Genetic testing for psychiatric illness in children: ethical issues.
Lynch Fiona et al. Current opinion in pediatrics 2022
Ethical Aspects of Prenatal DNA Testing.
Stanic Žana et al. Zeitschrift fur Geburtshilfe und Neonatologie 2022
Ethical considerations for precision psychiatry: A roadmap for research and clinical practice.
Fusar-Poli Paolo et al. European neuropsychopharmacology : the journal of the European College of Neuropsychopharmacology 2022 6317-34
The Directiveness that Dare Not Speak Its Name. Views and Attitudes of Polish Clinical Geneticists toward the Nondirectiveness Principle.
Chanska Weronika et al. Journal of bioethical inquiry 2022
Integrating hereditary breast and ovarian cancer genetic counselling and testing into mainstream clinical practice: Legal and ethical challenges.
Charron Marilou et al. Critical reviews in oncology/hematology 2022 103797
Exome sequencing for structurally normal fetuses—yields and ethical issues
H Daum et al, EJHG, September 7, 2022
Picture a data scientist: a call to action for increasing diversity, equity, and inclusion in the age of AI.
de Hond Anne A H et al. Journal of the American Medical Informatics Association : JAMIA 2022
Uniquely You, Uniquely Yours? Applying the Current Property Law Regime to Human DNA Samples.
Sah Estelle et al. Journal of law and medicine 2022 29(3) 725-739
How Australia's Policymakers Can Ethically Approach Human Germline Genome Editing Technology.
Mangiapane Matthew et al. Journal of law and medicine 2022 29(3) 740-759
Justice for Our Genes: The Case for Genetic Non-discrimination Regulations in the New Zealand Life Insurance Industry.
Buckenham Boyle Emily et al. Journal of law and medicine 2022 29(3) 760-782
Without appropriate metadata, data-sharing mandates are pointless
MA Musen, Nature, September 5, 2022
Ten years of dynamic consent in the CHRIS study: informed consent as a dynamic process
D Mascalzoni et al, EJHG, September 5, 2022
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