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Public Health Genomics and Precision Health Knowledge Base (v9.0)
PHGKB
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Public Health Genomics Branch
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Precision Health Database|Search|Public Health Genomics and Precision Health Knowledge Base (PHGKB)
Last data update: Apr 25, 2024
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Records 1 - 29 (of 29 Records)
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Surveillance[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
Monitoring Mental Health: Legal and Ethical Considerations of Using Artificial Intelligence in Psychiatric Wards.
Barry Solaiman et al. Am J Law Med 2024 49(2-3) 250-266
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Inadvertent human genomic bycatch and intentional capture raise beneficial applications and ethical concerns with environmental DNA.
Liam Whitmore et al. Nat Ecol Evol 2023
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CRISPR in Public Health: The Health Equity Implications and Role of Community in Gene-Editing Research and Applications.
Andrew M Subica et al. Am J Public Health 2023 e1-e9
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Addressing bias in artificial intelligence for public health surveillance.
Lidia Flores et al. J Med Ethics 2023
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More than algorithms: an analysis of safety events involving ML-enabled medical devices reported to the FDA.
David Lyell et al. J Am Med Inform Assoc
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Liquid Health. Medicine in the age of surveillance capitalism.
Giovanni Rubeis et al. Social science & medicine (1982) 2023 322115810
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Technical, Ethical, Legal, and Societal Challenges With Digital Twin Systems for the Management of Chronic Diseases in Children and Young People.
Drummond David et al. Journal of medical Internet research 2022 24(10) e39698
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Bridging the European Data Sharing Divide in Genomic Science.
Molnár-Gábor Fruzsina et al. Journal of medical Internet research 2022 24(10) e37236
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Population genomic screening: Ethical considerations to guide age at implementation.
Spencer Scott J et al. Frontiers in genetics 2022 13899648
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Ethical Challenges Associated with Pathogen and Host Genetics in Infectious Disease.
Milne Richard et al. The New bioethics : a multidisciplinary journal of biotechnology and the body 2022 1-13
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Risks and benefits of dermatological machine learning healthcare applications - an overview and ethical analysis.
Willem Theresa et al. Journal of the European Academy of Dermatology and Venereology : JEADV 2022
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Will the EU Medical Device Regulation help to improve the safety and performance of medical AI devices?
Niemiec Emilia et al. Digital health 2022 820552076221089079
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Legal and Ethical Consideration in Artificial Intelligence in Healthcare: Who Takes Responsibility?
Naik Nithesh et al. Frontiers in surgery 2022 9862322
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Big Data, Surveillance Capitalism, and Precision Medicine: Challenges for Privacy.
Rothstein Mark A et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2022 49(4) 666-676
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Highway to (Digital) Surveillance: When Are Clients Coerced to Share Their Data with Insurers?
Loi Michele et al. Journal of business ethics : JBE 2021 175(1) 7-19
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Real-World Surveillance of FDA-Cleared Artificial Intelligence Models: Rationale and Logistics.
Dreyer Keith J et al. Journal of the American College of Radiology : JACR 2021
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A Novel Imputation Approach for Sharing Protected Public Health Data.
Erdman Elizabeth A et al. American journal of public health 2021 e1-e9
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ESR white paper: blockchain and medical imaging.
et al. Insights into imaging 2021 12(1) 82
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To test or not to test: genetic cancer predisposition testing in paediatric patients with cancer.
Mehta Sapna et al. Journal of medical ethics 2020 Dec
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Legal reflections on the case of genome-edited babies.
Liu Shuang et al. Global health research and policy 2020 524
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Is preparation a good reason for prenatal genetic testing? Ethical and critical questions.
Michie Marsha et al. Birth defects research 2020 Mar 112(4) 332-338
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Genetic discrimination by Australian insurance companies: a survey of consumer experiences.
Tiller Jane et al. European journal of human genetics : EJHG 2019 Jul
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What You Should Know About Insurance Before You Have Genetic Testing
E Matloff, Forbes, June 25, 2019
Big Data Analytics, Infectious Diseases and Associated Ethical Impacts.
Garattini Chiara et al. Philosophy & technology 2019 32(1) 69-85
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Precision medicine and sharing medical data in real time: opportunities and barriers.
Yang Y Tony et al. The American journal of managed care 2018 Aug 24(8) 356-358
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Science Wants Your Data
MK Baker, Five Thirty Eight, June 25, 2018
Recent updates and challenges on the regulation of precision medicine: The United States in perspective.
Chang Lin-Chau et al. Regulatory toxicology and pharmacology : RTP 2018 Apr
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Ethics of Genomic Data Sharing: An Interview with Bartha Maria Knoppers
Global Alliance for Genomics and Health, Apr 2018
Patient rights, risk, and responsibilities in the genetic era - a right to know, a right not to know, or a duty to know?
Domaradzki Jan et al. Ann Agric Environ Med 2015 Feb 24. 22(1) 156-162
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Page last reviewed:
Feb 1, 2024
Page last updated:
Apr 25, 2024
Content source:
Public Health Genomics Branch in the Division of Blood Disorders and Public Health Genomics
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National Center on Birth Defects and Developmental Disabilities
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