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Public Health Genomics and Precision Health Knowledge Base (v9.0)
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Precision Health Database|Search|Public Health Genomics and Precision Health Knowledge Base (PHGKB)
Last data update: Apr 25, 2024
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Genetic testing[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
"Uninsurable because of a genetic test": a qualitative study of consumer views about the use of genetic test results in Australian life insurance.
Cassandra Muller et al. Eur J Hum Genet 2024
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Medicolegal and insurance issues regarding BRCA1 and BRCA2 gene tests in high income countries.
Riccardo Oliva et al. Int J Gynecol Cancer 2024
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Expanding Applications of Clinical Genetic Testing - Ethical Challenges.
Stephanie M Fullerton et al. N Engl J Med 2024 390(15) 1349-1351
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Mapping ethical, legal, and social implications (ELSI) of preimplantation genetic testing (PGT).
Ido Alon et al. J Assist Reprod Genet 2024
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Systematic reanalysis of genomic data by diagnostic laboratories: a scoping review of ethical, economic, legal and (psycho)social implications.
Marije A van der Geest et al. Eur J Hum Genet 2024
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What Legal Frameworks Should Govern Use of Genetic Test Results by Private Health Insurers in New Zealand?
Hanne Janes et al. J Law Med 2024 30(4) 862-883
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The Ethics of Using COVID-19 Host Genomic Information for Clinical and Public Health Decision-making: A Survey of US Health Professionals.
Sheethal Jose et al. HGG Adv 2023 100255
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Modernizing Federal Oversight of Laboratory-Developed Tests - Toward Safety, Validity, and Utility.
Udit Singhal et al. N Engl J Med 2023 389(19) 1735-1737
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Ethical Aspects of Pediatric Genetic Care: Testing and Treatment.
Kelly E Ormond et al. Pediatr Clin North Am 2023 70(5) 1029-1046
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Project Inclusive Genetics: Protecting reproductive autonomy from bias via prenatal patient-centered counseling.
Apolline Jungels et al. HGG Adv 2023 4(4) 100228
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Legal aspects of genetic testing in the evaluation of ventricular tachycardias.
Regina Duryagina et al. Herzschrittmacherther Elektrophysiol 2023
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Ethical considerations when co-analyzing ancient DNA and data from private genetic databases.
Éadaoin Harney et al. Am J Hum Genet 2023
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Genetic discrimination by insurance companies in Aotearoa New Zealand: experiences and views of health professionals.
Harry Fraser et al. N Z Med J 2023 136(1574) 32-52
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Advancing Understanding of Inequities in Rare Disease Genomics.
Jillian G Serrano et al. Clin Ther 2023
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Ethical challenges in autism genomics: Recommendations for researchers.
Heini M Natri et al. Eur J Med Genet 2023 66(9) 104810
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Payer reimbursement practices and incentives for improving interpretation of germline genetic testing.
Patricia Deverka et al. J Law Biosci 2023 10(2) lsad020
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Rights and duties of genetic counsellors in Germany related to relatives at risk: comparative thoughts on the German Genetic Diagnostics Act.
Susanne A Schneider et al. J Med Ethics 2023
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No need for options for choice for unsolicited findings in informed consent for clinical genetic testing
EM Bunnik, EJHGH July 13, 2023
Ethical Issues Associated With Direct-to-Consumer Genetic Testing.
Kirpal S Panacer et al. Cureus 2023 15(6) e39918
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Dermatologists' ethical obligations to patients and their family members regarding genetic testing.
Alana Ferreira et al. J Am Acad Dermatol 2023
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Defining critical educational components of informed consent for genetic testing: views of US-based genetic counselors and medical geneticists.
Miranda L G Hallquist et al. Eur J Hum Genet 2023
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A balancing act: Non-directive communication, risk perceptions, and meeting patient needs in genetic counseling: A South African case study.
Megan Scott et al. J Genet Couns 2023
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Defining critical educational components of informed consent for genetic testing: views of US-based genetic counselors and medical geneticists
MLG Hallquist et al, EJHG, June 12, 2023
Human Genetics Society of Australasia Position Statement: Genetic Testing and Personal Insurance Products in Australia.
Aideen M McInerney-Leo et al. Twin Res Hum Genet 2023 1-4
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Privacy and utility of genetic testing in families with hereditary cancer syndromes living in three countries: the international cascade genetic screening experience.
Sivia Barnoy et al. Front Genet 2023 141109431
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Community concerns about genetic discrimination in life insurance persist in Australia: A survey of consumers offered genetic testing.
Jane Tiller et al. Eur J Hum Genet 2023
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To use or not to use? an ethical analysis of access to data and samples of a deceased patient for genetic diagnostic and research purposes.
Mahshad Noroozi et al. J Med Ethics Hist Med 2023 1513
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Implicit Incentives Among Reddit Users to Prioritize Attention Over Privacy and Reveal Their Faces When Discussing Direct-to-Consumer Genetic Test Results: Topic and Attention Analysis.
Yongtai Liu et al. JMIR Infodemiology 2023 2(2) e35702
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An Ethical Argument for Health Insurance Coverage of Paternal Prenatal Genetic Testing.
Asha N Talati et al. Obstet Gynecol 2023 141(5) 1026-1027
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A Review of the Legislation of Direct-to-Consumer Genetic Testing in China.
Chen Yichao et al. Hum Gene Ther
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Page last reviewed:
Feb 1, 2024
Page last updated:
Apr 25, 2024
Content source:
Public Health Genomics Branch in the Division of Blood Disorders and Public Health Genomics
,
National Center on Birth Defects and Developmental Disabilities
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