• Sickle Cell Disease: Taking Charge of Your Health and Health Care
  
• Sickle Cell Disease
  CDC Videos
• CDC’s Sickle Cell Disease Surveillance History
  
• Fact Sheets
  
• Sickle Cell Disease: What You Should Know
  CDC podcast, 2017
• Living Well with Sickle Cell Disease
  
• Sickle Cell Disease in the Emergency Department: Confronting Barriers to Care
  
• Sickle Cell Disease
  
• Sickle Cell in the Emergency Department
  
• Conditions that increase the risk of stroke include genetic diseases such as Sickle cell disease
  
• Key Findings: CDC’s Sickle Cell Data Collection Program Data Useful in Describing Patterns of Emergency Department Visits by Californians with Sickle Cell Disease (SCD)
  
• Improving the Lives of People with Sickle Cell Disease
  CDC Public Health Grand Rounds, November 15, 1-2 pm
• Public Health Research, Epidemiology, and Surveillance for Hemoglobinopathies (PHRESH)
  
• Sickle Cell Data Collection (SCDC) Program
  
• Sickle Cell Awareness
  
• Key Findings: Sickle Cell Disease in California and Georgia: New Death Rate Estimates
  
• 5 Tips to Help Prevent Infections in Patients with Sickle Cell Disease
  
• Sickle Cell Trait Toolkit and Fact Sheets
  
• New Resources in Sickle Cell Trait Toolkit
  
• CDC tips for supporting students with sickle cell disease [969.44 KB]
  
• Do you know someone with sickle cell disease?
  
• Sickle cell disease
  
• New study findings: Incidence of sickle cell trait in the US
  
• Protective effects of sickle cell trait against malaria-associated mortality and morbidity
  
• CDC Information: Sickle cell disease complications include stroke
  

Go to CDC Information Database

• Genome-wide association study to identify variants associated with vaso-occlusive pain in sickle cell anemia.
  Chaturvedi Shruti et al. Blood 2017 Jun
• Emergency department utilization by Californians with sickle cell disease, 2005-2014.
  Paulukonis Susan T et al. Pediatric blood & cancer 2017 Jun 64(6)
• Emergency Department Visits and Inpatient Admissions Associated with Priapism among Males with Sickle Cell Disease in the United States, 2006-2010.
  Dupervil Brandi et al. PloS one 2016 11(4) e0153257
• A Cost-Effectiveness Analysis of a Pilot Neonatal Screening Program for Sickle Cell Anemia in the Republic of Angola.
  McGann Patrick T et al. The Journal of pediatrics 2015 Dec 167(6) 1314-9
• Contribution of Sickle Cell Disease to the Pediatric Stroke Burden Among Hospital Discharges of African-Americans-United States, 1997-2012.
  Baker Charlotte et al. Pediatric blood & cancer 2015 Dec 62(12) 2076-81
• Incidence of sickle cell trait--United States, 2010.
  Ojodu Jelili et al. MMWR Morb. Mortal. Wkly. Rep. 2014 Dec 12. 63(49) 1155-8
• Health policy for sickle cell disease in Africa: experience from Tanzania on interventions to reduce under-five mortality.
  Makani Julie et al. Trop. Med. Int. Health 2015 Feb 20(2) 184-7
• Mortality of New York children with sickle cell disease identified through newborn screening.
  Wang Ying et al. Genet. Med. 2015 Jun 17(6) 452-9
• Understanding and improving health education among first-time parents of infants with sickle cell anemia in Alabama: a mixed methods approach.
  Lebensburger Jeffrey D et al. J. Pediatr. Hematol. Oncol. 2015 Jan 37(1) 35-42
• Discordance between self-report and genetic confirmation of sickle cell disease status in African-American adults.
  Bean Christopher J et al. Public Health Genomics 2014 17(3) 169-72
• Hydroxyurea is associated with lower costs of care of young children with sickle cell anemia.
  Wang Winfred C et al. Pediatrics 2013 Oct 132(4) 677-83
• Acute chest syndrome is associated with single nucleotide polymorphism-defined beta globin cluster haplotype in children with sickle cell anaemia.
  Bean Christopher J et al. Br. J. Haematol. 2013 Oct 163(2) 268-76
• Sickle cell disease incidence among newborns in New York State by maternal race/ethnicity and nativity.
  Wang Ying et al. Genetics in medicine : official journal of the American College of Medical Genetics 2013 Mar 15(3) 222-8
• Heme oxygenase-1 gene promoter polymorphism is associated with reduced incidence of acute chest syndrome among children with sickle cell disease.
  Bean Christopher J et al. Blood 2012 Nov 1. 120(18) 3822-8
• The Jamaican historical experience of the impact of educational interventions on sickle cell disease child mortality.
  Grosse Scott D et al. Am J Prev Med 2012 Jun 42(6) e101-3
• A genome-wide association study of total bilirubin and cholelithiasis risk in sickle cell anemia.
  Milton Jacqueline N et al. PLoS ONE 2012 7(4) e34741
• Public health implications of sickle cell trait: a report of the CDC meeting.
  Grant Althea M et al. Am J Prev Med 2011 Dec 41(6 Suppl 4) S435-9
• Screening U.S. college athletes for their sickle cell disease carrier status.
  Jordan Lanetta B et al. Am J Prev Med 2011 Dec 41(6 Suppl 4) S406-12
• Sickle cell disease in Africa: a neglected cause of early childhood mortality.
  Grosse Scott D et al. Am J Prev Med 2011 Dec 41(6 Suppl 4) S398-405
• Disability among individuals with sickle cell disease: literature review from a public health perspective.
  Swanson Mark E et al. American journal of preventive medicine 2011 Dec 41(6 Suppl 4) S390-7
• Sickle cell disease: the need for a public health agenda.
  Yusuf Hussain R et al. Am J Prev Med 2011 Dec 41(6 Suppl 4) S376-83

Go to CDC-Authored Genomics Publication Database

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• A Collaborative Patient-Focused Approach to Cure Sickle Cell Disease
  G Gibbons, HHS Blog, September 13, 2018
• Hemolytic Anemia
  From NHLBI health topic site
• NIH launches initiative to accelerate genetic therapies to cure sickle cell disease
  NIH, September 13, 2018
• Opioid crisis adds to pain of sickle cell patients
  
• Sickle cell - hemoglobin D disease
  From NCATS Genetic and Rare Diseases Information Center
• Sickle cell anemia
  From NCATS Genetic and Rare Diseases Information Center
• Sickle Cell Disease
  From NHLBI health topic site
• Sickle cell disease (SCD) community is hopeful that genome editing will rechart course of the disease
  J Mjoseth, NHGRI, January 2019
• Sickle Cell in Focus Conference October 22-23, 2018
  NLBI, 2018

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The Genetic Testing Registry (GTR®) provides a central location for voluntary submission of genetic test information by providers. The scope includes the test's purpose, methodology, validity, evidence of the test's usefulness, and laboratory contacts and credentials. The overarching goal of the GTR is to advance the public health and research into the genetic basis of health and disease.

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