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CDC-Authored Genomics Publication Database|Home|PHGKB CDC Authored Genomics Publication Database

Last data update: Feb 7, 2019. (Total: 2221 publications since 2011)
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Records 1-41 (of 41 Records)
Query Trace: all>>Scott D Grosse[CDC Author]
Using Decision Analysis to Support Newborn Screening Policy Decisions: A Case Study for Pompe Disease.
Lisa A Prosser, K K Lam, Scott D Grosse, Mia Casale, and Alex R Kemper
MDM policy & practice 3(1)
Genomic sequencing in acutely ill infants: what will it take to demonstrate clinical value?
Scott D Grosse, and Lauge Farnaes
Genetics in medicine : official journal of the American College of Medical Genetics 2018 Aug
Is universal tumor testing for Lynch syndrome cost-effective? It depends!
Scott D Grosse
Genetics in medicine : official journal of the American College of Medical Genetics 2018 May
Precision Medicine In Action: The Impact Of Ivacaftor On Cystic Fibrosis-Related Hospitalizations.
Lisa B Feng, Scott D Grosse, Ridgely Fisk Green, Aliza K Fink, and Gregory S Sawicki
Health affairs (Project Hope) 2018 May 37(5) 773-779
In Reference to: "Cost and Utility of Thrombophilia Testing".
Brygida Berse, Julie A Lynch, Scott Bowen, and Scott D Grosse
Journal of hospital medicine 2017 Sep 12(9) 783
Clinical penetrance in hereditary hemochromatosis: estimates of the cumulative incidence of severe liver disease among HFE C282Y homozygotes.
Scott D Grosse, Lyle C Gurrin, Nadine A Bertalli, and Katrina J Allen
Genetics in medicine : official journal of the American College of Medical Genetics 2018 Apr 20(4) 383-389
Cognitive outcomes and age of detection of severe mucopolysaccharidosis type 1.
Scott D Grosse, Wendy K K Lam, Lisa D Wiggins, and Alex R Kemper
Genetics in medicine : official journal of the American College of Medical Genetics 2017 19(9) 975-982
The need for a next-generation public health response to rare diseases.
Rodolfo Valdez, Scott D Grosse, and Muin J Khoury
Genetics in medicine : official journal of the American College of Medical Genetics 2016 Oct
Newborn screening for X-linked adrenoleukodystrophy: evidence summary and advisory committee recommendation.
Alex R Kemper, Jeffrey Brosco, Anne Marie Comeau, Nancy S Green, Scott D Grosse, Elizabeth Jones, Jennifer M Kwon, Wendy K K Lam, Jelili Ojodu, Lisa A Prosser, and Susan Tanksley
Genetics in medicine : official journal of the American College of Medical Genetics 2017 19(1) 121-126
The Use of Economic Evaluation to Inform Newborn Screening Policy Decisions: The Washington State Experience.
Scott D Grosse, John D Thompson, Yao Ding, and Michael Glass
The Milbank quarterly 2016 94(2) 366-91
Cost-Effectiveness/Cost-Benefit Analysis of Newborn Screening for Severe Combined Immune Deficiency in Washington State.
Yao Ding, John D Thompson, Lisa Kobrynski, Jelili Ojodu, Guisou Zarbalian, and Scott D Grosse
The Journal of pediatrics 2016 Feb
The health system impact of false positive newborn screening results for medium-chain acyl-CoA dehydrogenase deficiency: a cohort study.
Maria D Karaceper, Pranesh Chakraborty, Doug Coyle, Kumanan Wilson, Jonathan B Kronick, Steven Hawken, Christine Davies, Marni Brownell, Linda Dodds, Annette Feigenbaum, Deshayne B Fell, Scott D Grosse, Astrid Guttmann, Anne-Marie Laberge, Aizeddin Mhanni, Fiona A Miller, John J Mitchell, Meranda Nakhla, Chitra Prasad, Cheryl Rockman-Greenberg, Rebecca Sparkes, Brenda J Wilson, Beth K Potter, and
Orphanet journal of rare diseases 2016 Feb 1112
Showing Value in Newborn Screening: Challenges in Quantifying the Effectiveness and Cost-Effectiveness of Early Detection of Phenylketonuria and Cystic Fibrosis.
Scott D Grosse
Healthcare (Basel, Switzerland) 2015 3(4) 1133-57
Observed and expected frequencies of structural hemoglobin variants in newborn screening surveys in Africa and the Middle East: deviations from Hardy-Weinberg equilibrium.
Frédéric B Piel, Thomas V Adamkiewicz, Djesika Amendah, Thomas N Williams, Sunetra Gupta, and Scott D Grosse
Genetics in medicine : official journal of the American College of Medical Genetics 2015 Dec
A Cost-Effectiveness Analysis of a Pilot Neonatal Screening Program for Sickle Cell Anemia in the Republic of Angola.
Patrick T McGann, Scott D Grosse, Brigida Santos, Vysolela de Oliveira, Luis Bernardino, Nicholas J Kassebaum, Russell E Ware, and Gladstone E Airewele
The Journal of pediatrics 2015 Dec 167(6) 1314-9
When is Genomic Testing Cost-Effective? Testing for Lynch Syndrome in Patients with Newly-Diagnosed Colorectal Cancer and Their Relatives.
Scott D Grosse
Healthcare (Basel, Switzerland) 2015 3(4) 860-78
Contribution of Sickle Cell Disease to the Pediatric Stroke Burden Among Hospital Discharges of African-Americans-United States, 1997-2012.
Charlotte Baker, Althea M Grant, Mary G George, Scott D Grosse, and Thomas V Adamkiewicz
Pediatric blood & cancer 2015 Dec 62(12) 2076-81
The cost-effectiveness of routine testing for Lynch syndrome in newly diagnosed patients with colorectal cancer in the United States: corrected estimates.
Scott D Grosse, Glenn E Palomaki, Mercy Mvundura, and Heather Hampel
Genet. Med. 2015 Jun 17(6) 510-1
Estimates of utility weights in hemophilia: implications for cost-utility analysis of clotting factor prophylaxis.
Scott D Grosse, Shraddha S Chaugule, and Joel W Hay
Expert review of pharmacoeconomics & outcomes research 2015 Apr 15(2) 267-83
Universal state newborn screening programs can reduce health disparities.
Jeffrey P Brosco, Scott D Grosse, and Lainie Friedman Ross
JAMA Pediatr 2015 Jan 169(1) 7-8
Health policy for sickle cell disease in Africa: experience from Tanzania on interventions to reduce under-five mortality.
Julie Makani, Deogratias Soka, Stella Rwezaula, Marlene Krag, Janneth Mghamba, Kaushik Ramaiya, Sharon E Cox, and Scott D Grosse
Trop. Med. Int. Health 2015 Feb 20(2) 184-7
Mortality of New York children with sickle cell disease identified through newborn screening.
Ying Wang, Gang Liu, Michele Caggana, Joseph Kennedy, Regina Zimmerman, Suzette O Oyeku, Ellen M Werner, Althea M Grant, Nancy S Green, and Scott D Grosse
Genet. Med. 2015 Jun 17(6) 452-9
Understanding and improving health education among first-time parents of infants with sickle cell anemia in Alabama: a mixed methods approach.
Jeffrey D Lebensburger, Scott D Grosse, Jessica L Altice, JoAnn M Thierry, and Nataliya V Ivankova
J. Pediatr. Hematol. Oncol. 2015 Jan 37(1) 35-42
A comparison of family financial and employment impacts of fragile X syndrome, autism spectrum disorders, and intellectual disability.
Lijing Ouyang, Scott D Grosse, Catharine Riley, Julie Bolen, Ellen Bishop, Melissa Raspa, and Donald B Bailey
Research in developmental disabilities 2014 Jul 35(7) 1518-27
A public health economic assessment of hospitals' cost to screen newborns for critical congenital heart disease.
Cora Peterson, Scott D Grosse, Jill Glidewell, Lorraine F Garg, Kim Van Naarden Braun, Mary M Knapp, Leslie M Beres, Cynthia F Hinton, Richard S Olney, and Cynthia H Cassell
Public Health Rep 129(1) 86-93
Economic analyses of genetic tests in personalized medicine: clinical utility first, then cost utility.
Scott D Grosse
Genet. Med. 2014 Mar 16(3) 225-7
Hydroxyurea is associated with lower costs of care of young children with sickle cell anemia.
Winfred C Wang, Suzette O Oyeku, Zhaoyu Luo, Sheree L Boulet, Scott T Miller, James F Casella, Billie Fish, Bruce W Thompson, Scott D Grosse, and
Pediatrics 2013 Oct 132(4) 677-83
Criteria for fairly allocating scarce health-care resources to genetic tests: which matter most?
Wolf H Rogowski, Scott D Grosse, Jörg Schmidtke, and Georg Marckmann
Eur. J. Hum. Genet. 2014 Jan 22(1) 25-31
The use of US health insurance data for surveillance of rare disorders: hereditary hemorrhagic telangiectasia.
Scott D Grosse, Sheree L Boulet, Althea M Grant, Mary M Hulihan, and Marie E Faughnan
Genet. Med. 2014 Jan 16(1) 33-9
Modeling uncertain outcomes of genetic testing: factor V Leiden mutation and pregnant women.
Scott D Grosse, and Aaron B Caughey
Genet. Med. 2013 May 15(5) 335-7
Sickle cell disease incidence among newborns in New York State by maternal race/ethnicity and nativity.
Ying Wang, Joseph Kennedy, Michele Caggana, Regina Zimmerman, Sanil Thomas, John Berninger, Katharine Harris, Nancy S Green, Suzette Oyeku, Mary Hulihan, Althea M Grant, and Scott D Grosse
Genetics in medicine : official journal of the American College of Medical Genetics 2013 Mar 15(3) 222-8
The Jamaican historical experience of the impact of educational interventions on sickle cell disease child mortality.
Scott D Grosse, Hani K Atrash, Isaac Odame, Djesika Amendah, Frédéric B Piel, and Thomas N Williams
Am J Prev Med 2012 Jun 42(6) e101-3
Decision analysis, economic evaluation, and newborn screening: challenges and opportunities.
Lisa A Prosser, Scott D Grosse, Alex R Kemper, Beth A Tarini, and James M Perrin
Genet. Med. 2012 Apr 5.
Iron overload: what is the role of public health?
Mary M Hulihan, Cindy A Sayers, Scott D Grosse, Cheryl Garrison, and Althea M Grant
Am J Prev Med 2011 Dec 41(6 Suppl 4) S422-7
Sickle cell disease in Africa: a neglected cause of early childhood mortality.
Scott D Grosse, Isaac Odame, Hani K Atrash, Djesika D Amendah, Frédéric B Piel, and Thomas N Williams
Am J Prev Med 2011 Dec 41(6 Suppl 4) S398-405
Disability among individuals with sickle cell disease: literature review from a public health perspective.
Mark E Swanson, Scott D Grosse, and Roshni Kulkarni
American journal of preventive medicine 2011 Dec 41(6 Suppl 4) S390-7
A public health framework for rare blood disorders.
Scott D Grosse, Andra H James, Michele A Lloyd-Puryear, and Hani K Atrash
Am J Prev Med 2011 Dec 41(6 Suppl 4) S319-23
The role of health technology assessment in coverage decisions on newborn screening.
Katharina E Fischer, Scott D Grosse, and Wolf H Rogowski
International journal of technology assessment in health care 2011 Oct 27(4) 313-21
A national profile of health care and family impacts of children with muscular dystrophy and special health care needs in the United States.
Lijing Ouyang, Scott D Grosse, Michael H Fox, and Julie Bolen
Journal of child neurology 2012 May 27(5) 569-76
Ethical implications and practical considerations of ethnically targeted screening for genetic disorders: the case of hemoglobinopathy screening.
Cynthia F Hinton, Althea M Grant, and Scott D Grosse
Ethn Health 16(4-5) 377-88
Variation in immunoreactive trypsinogen concentrations among Michigan newborns and implications for cystic fibrosis newborn screening.
Steven J Korzeniewski, William I Young, Harry C Hawkins, Kevin Cavanagh, Samya Z Nasr, Carrie Langbo, Kelly R Teneyck, Scott D Grosse, Mary Kleyn, and Violanda Grigorescu
Pediatric pulmonology 2011 Feb 46(2) 125-30
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