CDC/NIH Web Information Database

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Last data update: May 22, 2023. (Total: 8751 Documents)

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CDC/NIH Web Information
Sickle Cell Data Collection Program CDC, March 2023
Transcript for Vital Signs Telebriefing: Children with sickle cell anemia are at risk for stroke and other complications CDC, October 2022
National Sickle Cell Awareness Month HHS Minority Health, September 2022
Breaking Down Barriers to ED Care for People with SCD CDC, May 2022
Real Stories from People Living with Sickle Cell Disease: Rae Blaylark CDC, November 2021
Health Equity and Genetic Disorders CDC, August 2021
Innovating Sickle Cell Disease education models NHLBI, July 2021
Summer Camp, A Place Where A Kid Can Just Be A Kid… Even If He Or She Has Sickle Cell Disease CDC, June 2021
The Bloodline Newsletter CDC, June 2021
Steps to Better Health for People with Sickle Cell Disease Toolkit CDC, April 2021
SCDC Fact Sheets CDC, 2020
Did You Know Sickle Cell Has Many Faces? CDC, September 2020
Portable sickle disease test could aid early detection in children NHLBI, July 2020
Cure Sickle Cell Initiative NIH, 2019
Fulfilling the Promise - Ensuring the Success of Newborn Screening throughout Life CDC, November 2019
Gene-Editing Advance Puts More Gene-Based Cures Within Reach F Collins, NIH Director Blog, November 5, 2019
Caregivers and Sickle Cell Disease CDC, September 2019
Strengthening Public Health Laboratories: Newborn Screening and Genetics – Hemoglobinopathies Project CDC, 2019
Transfusion Complications Monitoring CDC, 2019
NHLBI's 2019 Annual Sickle Cell Disease Research Meeting NHLBI, August 26-28, 2019
Disease of the Week: Sickle Cell Disease CDC<,June 2019
Capacity Building for Sickle Cell Disease Surveillance CDC Funding Announcement, May 2019
A CRISPR Approach to Treating Sickle Cell NIH Director blog, April 2, 2019
Holistic Health and Sickle Cell Disease: A Focus on Mental and Behavioral Health Office of Minority Health, webinar, February 28, 2019
Sickle cell disease (SCD) community is hopeful that genome editing will rechart course of the disease J Mjoseth, NHGRI, January 2019
A Collaborative Patient-Focused Approach to Cure Sickle Cell Disease G Gibbons, HHS Blog, September 13, 2018
NIH launches initiative to accelerate genetic therapies to cure sickle cell disease NIH, September 13, 2018
Sickle Cell in Focus Conference October 22-23, 2018 NLBI, 2018
Sickle Cell Disease: Taking Charge of Your Health and Health Care
Sickle Cell Disease CDC Videos