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Last Posted: May 10, 2023

• Link Between Long Telomeres and Long Life Is a Tall Tale, Study Finds
  G Kolata, NY Times, May 4, 2023
• Managing Sickle Cell Disease in Patients for Whom Blood Transfusion Is Not an Option.
  Bukky F Tabiti et al. Hematology/oncology and stem cell therapy 2023 16(3) 254-261
• Gene therapy in sickle cell disease: Attitudes and informational needs of patients and caregivers.
  Akshay Sharma et al. Pediatric blood & cancer 2023 e30319
• Hydroxyurea for Children with Sickle Cell Disease in sub-Saharan Africa: A Summary of the Evidence, Opportunities, and Challenges.
  Daniel Dexter et al. Pharmacotherapy 2023
• A Framework for a Health Economic Evaluation Model for Patients with Sickle Cell Disease to Estimate the Value of New Treatments in the United States of America.
  Aaron Winn et al. PharmacoEconomics - open 2023
• A non-invasive machine learning mechanism for early disease recognition on Twitter: The case of anemia.
  Sarsam Samer Muthana et al. Artificial intelligence in medicine 2022 134102428
• Sickle cell disease among Latinx in California.
  Valle Jhaqueline et al. PloS one 2022 17(10) e0276653
• Surveillance for Sickle Cell Disease - Sickle Cell Data Collection Program, Two States, 2004-2018.
  Snyder Angela B et al. Morbidity and mortality weekly report. Surveillance summaries (Washington, D.C. : 2002) 2022 71(9) 1-18
• Internalizing Symptoms in Adolescents With Sickle Cell Disease.
  Heitzer Andrew M et al. Journal of pediatric psychology 2022
• Sickle cell disease prevention: How prepared are the senior secondary school students in Surulere Local Government Area, Lagos, Nigeria?
  Kanma-Okafor Oluchi J et al. African journal of primary health care & family medicine 2022 14(1) e1-e7
• Thalassemia screening: Low level of knowledge among unmarried youths in Kota Bharu, Kelantan, Malaysia.
  Mohd Nor Muhammad Akmal et al. Malaysian family physician : the official journal of the Academy of Family Physicians of Malaysia 2022 17(1) 57-65
• Attitudes and practices of unmarried adults towards sickle cell disease: emergent factors from a cross sectional study in Nigeria's capital.
  Adigwe Obi Peter et al. Hematology (Amsterdam, Netherlands) 2022 27(1) 488-493
• Process and strategies for patient engagement and outreach in the Sickle Cell Disease (SCD) community to promote clinical trial participation.
  Byrnes C et al. Journal of the National Medical Association 2022
• Peripheral health workers' knowledge and experience related to sickle cell disease: an in-depth interview study in six tribal-dominated districts of India.
  Babu Bontha V et al. Journal of community genetics 2022
• Treatment decision-making in sickle cell disease patients.
  Booth A et al. Journal of community genetics 2021
• Toward a Conversational Agent to Support the Self-Management of Adults and Young Adults With Sickle Cell Disease: Usability and Usefulness Study.
  Issom David-Zacharie et al. Frontiers in digital health 2021 3600333
• Improving Outcomes for Patients With Sickle Cell Disease in the United States Making the Case for More Resources, Surveillance, and Longitudinal Data
  J Kanter et al, JAMA Health Forum, October 29,2021
• On That Edge of Fear’: One Woman’s Struggle With Sickle Cell Pain
  J Eligon, NY Times, May 30, 2021
• Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial.
  Hood Anna M et al. JMIR research protocols 2021 10(5) e27650
• Hematopoietic stem cell transplantation for people with β-thalassaemia.
  Sharma Akshay et al. The Cochrane database of systematic reviews 2021 4CD008708

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