Blood Disorder
What's New
Last Posted: May 30, 2024
- Current and Future Therapeutics for Treating Patients with Sickle Cell Disease.
Mariam Barak et al. Cells 2024 13(10) - The highest-cost Medicaid enrollees with sickle cell disease had annual health care expenditures nearing $200 000.
Junelle Speller et al. Health Aff Sch 2024 2(4) qxae029 - Perceptions and preferences for genetic testing for sickle cell disease or trait: a qualitative study in Cameroon, Ghana and Tanzania.
Nchangwi Syntia Munung et al. Eur J Hum Genet 2024 - Two-Dimensional Ultrasound Assessment of Long-Term Intra-Abdominal Organ Changes in Children with Sickle Cell Anemia during Steady State: A Comparative Study.
C S Nwosu et al. Niger J Clin Pract 2023 26(12) 1861-1867 - CRISPR 2.0: a new wave of gene editors heads for clinical trials Landmark approval of the first CRISPR therapy paves the way for treatments based on more efficient and more precise genome editors.
H Ledford, Nature, December 7, 2023 - In historic decision, FDA approves a CRISPR-based medicine for treatment of sickle cell disease
A Feurstein, StatNews, December 8, 2023 - Genome editing for sickle cell disease: still time to correct?
Giulia Ceglie et al. Front Pediatr 2023 111249275 - A proposed methodology of health education for inherited genetic disorders: Bag and Ball technique.
Sam Marconi David et al. Trop Doct 2023 494755231204633 - Sickle cell cures are coming. African children can’t be left behind
JK Iyer, Statnews, July 2023 - The FDA just approved another gene therapy. Here’s what to know about them
SA Yonah, Washington Post, July 1, 2023 - Supporters set to mark World Sickle Cell Day on June 19
M Chapman, Sickle Cell News, June 15, 2023 - Link Between Long Telomeres and Long Life Is a Tall Tale, Study Finds
G Kolata, NY Times, May 4, 2023 - Managing Sickle Cell Disease in Patients for Whom Blood Transfusion Is Not an Option.
Bukky F Tabiti et al. Hematology/oncology and stem cell therapy 2023 16(3) 254-261 - Gene therapy in sickle cell disease: Attitudes and informational needs of patients and caregivers.
Akshay Sharma et al. Pediatric blood & cancer 2023 e30319 - Hydroxyurea for Children with Sickle Cell Disease in sub-Saharan Africa: A Summary of the Evidence, Opportunities, and Challenges.
Daniel Dexter et al. Pharmacotherapy 2023 - A Framework for a Health Economic Evaluation Model for Patients with Sickle Cell Disease to Estimate the Value of New Treatments in the United States of America.
Aaron Winn et al. PharmacoEconomics - open 2023 - A non-invasive machine learning mechanism for early disease recognition on Twitter: The case of anemia.
Sarsam Samer Muthana et al. Artificial intelligence in medicine 2022 134102428 - Sickle cell disease among Latinx in California.
Valle Jhaqueline et al. PloS one 2022 17(10) e0276653 - Surveillance for Sickle Cell Disease - Sickle Cell Data Collection Program, Two States, 2004-2018.
Snyder Angela B et al. Morbidity and mortality weekly report. Surveillance summaries (Washington, D.C. : 2002) 2022 71(9) 1-18 - Internalizing Symptoms in Adolescents With Sickle Cell Disease.
Heitzer Andrew M et al. Journal of pediatric psychology 2022 - Sickle cell disease prevention: How prepared are the senior secondary school students in Surulere Local Government Area, Lagos, Nigeria?
Kanma-Okafor Oluchi J et al. African journal of primary health care & family medicine 2022 14(1) e1-e7 - Thalassemia screening: Low level of knowledge among unmarried youths in Kota Bharu, Kelantan, Malaysia.
Mohd Nor Muhammad Akmal et al. Malaysian family physician : the official journal of the Academy of Family Physicians of Malaysia 2022 17(1) 57-65 - Attitudes and practices of unmarried adults towards sickle cell disease: emergent factors from a cross sectional study in Nigeria's capital.
Adigwe Obi Peter et al. Hematology (Amsterdam, Netherlands) 2022 27(1) 488-493 - Process and strategies for patient engagement and outreach in the Sickle Cell Disease (SCD) community to promote clinical trial participation.
Byrnes C et al. Journal of the National Medical Association 2022 - Peripheral health workers' knowledge and experience related to sickle cell disease: an in-depth interview study in six tribal-dominated districts of India.
Babu Bontha V et al. Journal of community genetics 2022 - Treatment decision-making in sickle cell disease patients.
Booth A et al. Journal of community genetics 2021 - Toward a Conversational Agent to Support the Self-Management of Adults and Young Adults With Sickle Cell Disease: Usability and Usefulness Study.
Issom David-Zacharie et al. Frontiers in digital health 2021 3600333 - Improving Outcomes for Patients With Sickle Cell Disease in the United States
Making the Case for More Resources, Surveillance, and Longitudinal Data
J Kanter et al, JAMA Health Forum, October 29,2021 - On That Edge of Fear’: One Woman’s Struggle With Sickle Cell Pain
J Eligon, NY Times, May 30, 2021 - Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial.
Hood Anna M et al. JMIR research protocols 2021 10(5) e27650 - Hematopoietic stem cell transplantation for people with β-thalassaemia.
Sharma Akshay et al. The Cochrane database of systematic reviews 2021 4CD008708 - Gene therapy trials for sickle cell disease halted after two patients develop cancer
J Kaiser, Science, February 16, 2021 - Erythrocyte microRNAs: a tiny magic bullet with great potential for sickle cell disease therapy.
Verma Henu Kumar et al. Annals of hematology 2021 Jan - Insights from the Hereditary Thrombotic Thrombocytopenic Purpura Registry: Discussion of Key Findings Based on Individual Cases from Switzerland.
Kremer Hovinga Johanna A et al. Hamostaseologie 2020 Nov 40(S 01) S5-S14 - Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registry.
Glassberg Jeffrey A et al. Orphanet journal of rare diseases 2020 Jul 15(1) 178 - Genetic counselling in sickle cell disease: views of single young adults in Ghana.
Appiah Stella et al. Journal of community genetics 2020 Jul - Clinical utility of combined preimplantation genetic testing methods in couples at risk of passing on beta thalassemia/hemoglobin E disease: A retrospective review from a single center.
Satirapod Chonthicha et al. PloS one 2019 14(11) e0225457 - Gene-Editing Advance Puts More Gene-Based Cures Within Reach
F Collins, NIH Director Blog, November 5, 2019 - CRISPR could help us cure sickle-cell disease. But patients are wary.
M Orcutt, MIT Review, September 18, 2019 - Caregivers and Sickle Cell Disease
CDC, September 2019 - Bleeding Disorders in Women: Free Materials
CDC, 2019 - Sickle Cell Patient Reveals Why She Is Volunteering For Landmark Gene-Editing Study
R Stein, NPR, July 29, 2019 - Current perspectives of Sickle Cell Disease in Nigeria: Changing the narratives.
Ojewunmi Oyesola O et al. Expert review of hematology 2019 Jun - Coming Together to Confront Sickle Cell Disease
A Azar, HHS, June 19, 2019 - Capacity Building for Sickle Cell Disease Surveillance
CDC Funding Announcement, May 2019 - Inheritance of Susceptibility to Malignant Blood Disorders.
Jønsson Viggo et al. Scientific reports 2019 Feb 9(1) 2444 - Single tube allele specific PCR: a low cost technique for molecular screening of sickle cell anaemia in Nigeria.
Toye Emuejevoke T et al. African health sciences 2018 Dec 18(4) 995-1002 - A CRISPR focus on attitudes and beliefs toward somatic genome editing from stakeholders within the sickle cell disease community.
Persaud Anitra et al. Genetics in medicine : official journal of the American College of Medical Genetics 2018 Dec - A Collaborative Patient-Focused Approach to Cure Sickle Cell Disease
G Gibbons, HHS Blog, September 13, 2018 - Scientists Are Retooling Bacteria to Cure Disease
By manipulating DNA, researchers are trying to create microbes that, once ingested, work to treat a rare genetic condition a milestone in synthetic biology.
C Zimmer, NY Times, September 4, 2018
More
About HLBS-PopOmics
HLBS-PopOmics is an online, continuously updated, searchable database of published scientific literature, CDC and NIH resources, and other materials that address the translation of genomic and other precision health discoveries into improved health care and prevention related to Heart and Vascular Diseases(H), Lung Diseases(L), Blood Diseases(B), and Sleep Disorders(S)...more
Content Summary
Common HLBS Health Categories
Site Citation:
Mensah GA, Yu W, Barfield WL, Clyne M, Engelgau MM, Khoury MJ. HLBS-PopOmics: an online knowledge base to accelerate dissemination and implementation of research advances in population genomics to reduce the burden of heart, lung, blood, and sleep disorders. Genet Med. 2018 Sep 10. doi: 10.1038/s41436-018-0118-1
Disclaimer: Articles listed in the Public Health Knowledge Base are selected by Public Health Genomics Branch to provide current awareness of the literature and news. Inclusion in the update does not necessarily represent the views of the Centers for Disease Control and Prevention nor does it imply endorsement of the article's methods or findings. CDC and DHHS assume no responsibility for the factual accuracy of the items presented. The selection, omission, or content of items does not imply any endorsement or other position taken by CDC or DHHS. Opinion, findings and conclusions expressed by the original authors of items included in the update, or persons quoted therein, are strictly their own and are in no way meant to represent the opinion or views of CDC or DHHS. References to publications, news sources, and non-CDC Websites are provided solely for informational purposes and do not imply endorsement by CDC or DHHS.
- Page last reviewed:Feb 1, 2024
- Page last updated:Jun 28, 2024
- Content source: