Genomics and Precision Health Database

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Query Trace: all[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]

Publication
Organoids for personalized treatment of Cystic Fibrosis: Professional perspectives on the ethics and governance of organoid biobanking. Lensink Michael A et al. Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society 2020 Dec Similar articles in PubMed
Informed consent for genetic testing in hematology. Marron Jonathan M et al. Hematology. American Society of Hematology. Education Program 2020 2020(1) 213-218 Similar articles in PubMed
Transparency, trust, and community welfare: towards a precision public health ethics framework for the genomics era. Juengst Eric T et al. Genome medicine 2020 Nov 12(1) 98 Similar articles in PubMed
Psychological Impact of NBS for CF. Chudleigh Jane et al. International journal of neonatal screening 2020 Jun 6(2) 27 Similar articles in PubMed
Constructing a Bioethical Framework to Evaluate and Optimise Newborn Bloodspot Screening for Cystic Fibrosis. Armstrong Rachael E et al. International journal of neonatal screening 2020 Jun 6(2) 40 Similar articles in PubMed
Understanding Medical Mistrust in Black Women at Risk of BRCA 1/2 Mutations. Sutton Arnethea L et al. Journal of health disparities research and practice 2019 12(3) 35-47 Similar articles in PubMed
Q&A: John Carpten on the Genomics of Cancer Disparities. et al. Cancer discovery 2020 Sep Similar articles in PubMed
[Clinical Ethics in Hereditary Neuromuscular Diseases such as Duchenne Muscular Dystrophy]. Nakajima Takashi et al. Brain and nerve = Shinkei kenkyu no shinpo 2020 Jul 72(7) 753-766 Similar articles in PubMed
FDA orphan drug designations for lysosomal storage disorders - a cross-sectional analysis. Garbade Sven F et al. PloS one 2020 15(4) e0230898 Similar articles in PubMed
International consensus: ovarian tissue cryopreservation in young Turner syndrome patients: outcomes of an ethical Delphi study including 55 experts from 16 different countries. Schleedoorn M J et al. Human reproduction (Oxford, England) 2020 Apr Similar articles in PubMed
Rare inherited kidney diseases: an evolving field in Nephrology. Cunha Mariana Faucz Munhoz da et al. Jornal brasileiro de nefrologia : 'orgao oficial de Sociedades Brasileira e Latino-Americana de Nefrologia 2020 Similar articles in PubMed
Branding of subjects affected with genetic syndromes of severe short stature in developing countries. Guevara-Aguirre Jaime et al. BMJ case reports 2020 Feb 13(2) Similar articles in PubMed
Black Women's Confidence in the Genetic Information Nondiscrimination Act. Sutton Arnethea L et al. International journal of environmental research and public health 2019 Dec 16(24) Similar articles in PubMed
Why using genetic risk scores on embryos is wrong E Birney blog, November 11, 2019
NIH Director Backs Moratorium for Heritable Genome Editing Gen News, November 8, 2019
The genetics of human ageing. Melzer David, et al. Nature reviews. Genetics 2019 11 0. Similar articles in PubMed
Heritable Genome Editing: Who Speaks for "Future" Children? Knoppers Bartha Maria et al. The CRISPR journal 2019 Oct 2(5) 285-292 Similar articles in PubMed
[NIPT – implentation, counselling and ethical issues]. Ingvoldstad Malmgren Charlotta et al. Lakartidningen 2017 114 Similar articles in PubMed
Is Genetic Medicine Making the World Less Fair? L Hercher, the Nation, August 23, 2019
Why home DNA tests might not be as private as you think C Fox, World Economic Forum, August 9, 2019
The budgetary impact of genetic testing for hereditary breast cancer for the statutory health insurance. Neusser Silke et al. Current medical research and opinion 2019 Aug 1 Similar articles in PubMed
FDA Approvals Provide Advances for a Range of Cancer Types K Honey, AACR Blogs, August 6, 2019
Did CRISPR help - or harm - the first-ever gene-edited babies? J Cohen, Science, August 1, 2019
Bioethicists worried patients couldn?t handle their own genetic testing results. They were (mostly) wrong E Parens et al, Stat News, July 30, 2019
Senior doctors call for crackdown on home genetic testing kits H Devlin, the Guardian, July 21, 2019
Putting diversity front and center P Ganguly, NHGRI, June 19, 2019
Ethical issues with testing and treatment for Krabbe disease. Ehmann Paul et al. Developmental medicine and child neurology 2019 May Similar articles in PubMed
FDA Approval of PARP Inhibitors and the Impact on Genetic Counseling and Genetic Testing Practices. Buchtel Kathryn M et al. Journal of genetic counseling 2018 27(1) 131-139 Similar articles in PubMed
Leveraging Evidence-Based Public Policy and Advocacy to Advance Newborn Screening in California. Bronstein Max G et al. Pediatrics 2019 Jan Similar articles in PubMed
FDA approves ‘precision medicine’ drug for different cancers with same mutation L McGinley, Washington Post, November 26, 2018