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Public Health Genomics and Precision Health Knowledge Base (v7.3)
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all[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
Publication
Preparing genetic counselors to serve Native American communities.
Freeman Abigail A et al. Journal of genetic counseling 2021
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Professionally responsible management of the ethical and social challenges of antenatal screening and diagnosis of β-thalassemia in a high-risk population.
Corda Valentina et al. Journal of perinatal medicine 2021
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Predictably unequal: understanding and addressing concerns that algorithmic clinical prediction may increase health disparities.
Paulus Jessica K et al. NPJ digital medicine 2020 Jul 3(1) 99
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Polygenic risk scores in the clinic: new perspectives needed on familiar ethical issues.
Lewis Anna C F et al. Genome medicine 2021 Jan 13(1) 14
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'We Should View Him as an Individual': The Role of the Child's Future Autonomy in Shared Decision-Making About Unsolicited Findings in Pediatric Exome Sequencing.
Dondorp W et al. Health care analysis : HCA : journal of health philosophy and policy 2021 Jan
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Human genome editing: how to prevent rogue actors.
Townsend Beverley A et al. BMC medical ethics 2020 Oct 21(1) 95
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Integrating fundamental cause theory and Bourdieu to explain pathways between socioeconomic status and health: the case of health insurance denials for genetic testing.
Hammad Mrig Emily et al. Sociology of health & illness 2020 Oct
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Understanding Medical Mistrust in Black Women at Risk of BRCA 1/2 Mutations.
Sutton Arnethea L et al. Journal of health disparities research and practice 2019 12(3) 35-47
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Improving Community Advisory Board Engagement in Precision Medicine Research to Reduce Health Disparities.
Connors Erin et al. Journal of health disparities research and practice 2019 12(6) 80-94
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Willingness to Participate in Health Research Among Community-Dwelling Middle-Aged and Older Adults: Does Race/Ethnicity Matter?
Milani Sadaf Arefi et al. Journal of racial and ethnic health disparities 2020 Aug
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Equity in Health: Consideration of Race and Ethnicity in Precision Medicine.
Edwards Todd L et al. Trends in genetics : TIG 2020 Jul
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The ethics of investigating cultural and genetic diversity of minority groups.
Capocasa Marco et al. Homo : internationale Zeitschrift fur die vergleichende Forschung am Menschen 2019 Nov 70(3) 233-244
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Equity in Genomics: A Brief Report on Cardiovascular Health Disparities in African American Adults.
Scott Jewel et al. The Journal of cardiovascular nursing 2020 Jul
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Importance of Genetic Studies of Cardiometabolic Disease in Diverse Populations.
Fernández-Rhodes Lindsay et al. Circulation research 2020 Jun 126(12) 1816-1840
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Genetic Privacy and Data Protection: A Review of Chinese Direct-to-Consumer Genetic Test Services.
Du Li et al. Frontiers in genetics 2020 11416
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Legal reflections on the case of genome-edited babies.
Liu Shuang et al. Global health research and policy 2020 524
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Returning genomic results in a Federally Qualified Health Center: the intersection of precision medicine and social determinants of health.
Shaibi Gabriel Q et al. Genetics in medicine : official journal of the American College of Medical Genetics 2020 May
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Genetic Exceptionalism and Precision Health Promotion.
Terry Paul E et al. American journal of health promotion : AJHP 2020 Mar 890117120908806
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At the Research-Clinical Interface: Returning Individual Genetic Results to Research Participants.
West Kathleen M et al. Clinical journal of the American Society of Nephrology : CJASN 2020 Feb
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Uncovering social structures and informational prejudices to reduce inequity in delivery and uptake of new molecular technologies.
Filoche Sara et al. Journal of medical ethics 2020 Jan
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The Use of Racial Categories in Precision Medicine Research.
Callier Shawneequa L et al. Ethnicity & disease 2019 29(Suppl 3) 651-658
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Ethical and Legal Considerations for the Inclusion of Underserved and Underrepresented Immigrant Populations in Precision Health and Genomic Research in the United States.
Wagner Jennifer K et al. Ethnicity & disease 2019 29(Suppl 3) 641-650
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How Can Law Support Development of Genomics and Precision Medicine to Advance Health Equity and Reduce Disparities?
Wolf Susan M et al. Ethnicity & disease 2019 29(Suppl 3) 623-628
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Access and Management: Indigenous Perspectives on Genomic Data Sharing.
Garrison Nanibaa' A et al. Ethnicity & disease 2019 29(Suppl 3) 659-668
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How Should "CRISPRed" Babies Be Monitored Over Their Life Course to Promote Health Equity?
Thompson Charis et al. AMA journal of ethics 2019 Dec 21(12) E1036-1041
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Law, Genomic Medicine and Health Equity
Ethnicity and Disease, suppl 2019
How Can Law Support Development of Genomics and Precision Medicine to Advance Health Equity and Reduce Disparities?
SM Wolfe et al, Ethnicity and Disease, suppl 2019
Changing the Conversation about The Ethics of Genomics and Health Disparities Research with American Indian and Alaska Native Communities: A Report from the Field.
Hull Sara Chandros et al. Journal of health care for the poor and underserved 2019 30(4S) 21-26
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Potential risks and solutions for sharing genome summary data from African populations.
Tiffin Nicki, et al. BMC medical genomics 2019 11 0. (1) 152
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Discouraging Elective Genetic Testing of Minors: A Norm under Siege in a New Era of Genomic Medicine.
Hercher Laura et al. Cold Spring Harbor perspectives in medicine 2019 Sep
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Page last reviewed:
Oct 1, 2020
Page last updated:
Apr 14, 2021
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Office of Genomics and Precision Public Health
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