Genomics and Precision Health Database

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Query Trace: all[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]

Publication
Recommendations to researchers for aiding in increasing American Indian representation in genetic research and personalized medicine. Carroll Dana M et al. Personalized medicine 2020 Dec Similar articles in PubMed
To test or not to test: genetic cancer predisposition testing in paediatric patients with cancer. Mehta Sapna et al. Journal of medical ethics 2020 Dec Similar articles in PubMed
Informed consent for genetic testing in hematology. Marron Jonathan M et al. Hematology. American Society of Hematology. Education Program 2020 2020(1) 213-218 Similar articles in PubMed
Prevention in the age of personal responsibility: epigenetic risk-predictive screening for female cancers as a case study. Bolt Ineke et al. Journal of medical ethics 2020 Nov Similar articles in PubMed
Researcher Knowledge, Attitudes, and Communication Practices for Genomic Data Sharing. Nick Heather P et al. Journal of empirical research on human research ethics : JERHRE 2020 Nov 1556264620969301 Similar articles in PubMed
Ethical Considerations about Genomic Medicine Implementation: Lessons Learned from the eMERGE III Study. Inamura Kentaro et al. Journal of personalized medicine 2020 Oct 10(4) Similar articles in PubMed
Autonomy and social influence in predictive genetic testing decision-making: A qualitative interview study. Zimmermann Bettina M et al. Bioethics 2020 Oct Similar articles in PubMed
Genetic testing for breast cancer risk, from BRCA1/2 to a seven gene panel: an ethical analysis. Gustavsson Erik et al. BMC medical ethics 2020 Oct 21(1) 102 Similar articles in PubMed
Ethical challenges of precision cancer medicine. Winkler Eva Caroline et al. Seminars in cancer biology 2020 Oct Similar articles in PubMed
Gap between pediatric and adult approvals of molecular targeted drugs. Nishiwaki Satoshi et al. Scientific reports 2020 Oct 10(1) 17145 Similar articles in PubMed
Understanding Medical Mistrust in Black Women at Risk of BRCA 1/2 Mutations. Sutton Arnethea L et al. Journal of health disparities research and practice 2019 12(3) 35-47 Similar articles in PubMed
Bioethics and healthcare policies. The benefit of using genetic tests of BRCA 1 and BRCA 2 in elderly patients. Fonseca Vasco et al. The International journal of health planning and management 2020 Sep Similar articles in PubMed
Q&A: John Carpten on the Genomics of Cancer Disparities. et al. Cancer discovery 2020 Sep Similar articles in PubMed
Cancer Projects to Diversify Genetic Research Receive New Grants E Goldberg, NY Times, September 11, 2020
Survey of palliative care providers' needs, perceived roles, and ethical concerns about addressing cancer family history at the end of life. Cléophat Jude E et al. Palliative & supportive care 2020 Aug 1-6 Similar articles in PubMed
Whether, when, and how to communicate genetic risk to minors: 'I wanted more information but I think they were scared I couldn't handle it'. Stuttgen Kelsey et al. Journal of genetic counseling 2020 Jul Similar articles in PubMed
Data sharing for clinical utility. Bjork Isabel et al. Cold Spring Harbor molecular case studies 2019 5(5) Similar articles in PubMed
Relationships of Family History-related Factors and Causal Beliefs to Cancer Risk Perception and Mammography Screening Adherence Among Medically Underserved Women. Hong Soo Jung et al. Journal of health communication 2020 Jul 1-12 Similar articles in PubMed
Genetic Testing May Help Reduce Breast Cancer Disparities for African American Women. McCarthy Anne Marie et al. Journal of the National Cancer Institute 2020 May Similar articles in PubMed
'There is a lot of good in knowing, but there is also a lot of downs': public views on ethical considerations in population genomic screening. Smit Amelia K et al. Journal of medical ethics 2020 May Similar articles in PubMed
Negotiating jurisdictional boundaries in response to new genetic possibilities in breast cancer care: The creation of an 'oncogenetic taskscape'. Wright Sarah et al. Social science & medicine (1982) 2019 22526-33 Similar articles in PubMed
Pioneering Informed Consent for Return of Research Results to Breast Cancer Patients Facing Barriers to Implementation of Genomic Medicine: The Kenyan BRCA1/2 Testing Experience Using Whole Exome Sequencing. Torrorey-Sawe Rispah et al. Frontiers in genetics 2020 11170 Similar articles in PubMed
Legal Considerations in Genetic Screening and Testing: Three Case Studies: ACOG Committee Opinion, Number 805. et al. Obstetrics and gynecology 2020 Apr 135(4) e189-e192 Similar articles in PubMed
Legal Considerations in Genetic Screening and Testing: Three Case Studies: ACOG Committee Opinion Summary, Number 805. et al. Obstetrics and gynecology 2020 Apr 135(4) 994-995 Similar articles in PubMed
Genetic Discrimination: The Genetic Information Nondiscrimination Act's Impact on Practice and Research. Underhill-Blazey Meghan et al. Clinical journal of oncology nursing 2020 Apr 24(2) 135-137 Similar articles in PubMed
"My Research Is Their Business, but I'm Not Their Business": Patient and Clinician Perspectives on Commercialization of Precision Oncology Data. Spector-Bagdady Kayte et al. The oncologist 2020 Mar Similar articles in PubMed
Navigating the Intersection between Genomic Research and Clinical Practice. Daly Mary B et al. Cancer prevention research (Philadelphia, Pa.) 2020 Mar 13(3) 219-222 Similar articles in PubMed
Relationships of health information orientation and cancer history on preferences for consent and control over biospecimens in a biobank: A race-stratified analysis. Hong Soo Jung et al. Journal of genetic counseling 2020 Jan Similar articles in PubMed
Exploring broad consent in the context of the 100,000 Genomes Project: a mixed methods study. Ballard Lisa M et al. European journal of human genetics : EJHG 2020 Jan Similar articles in PubMed
Data Sharing for the Public Good. Helzlsouer Kathy J et al. Journal of the National Cancer Institute 2020 Jan Similar articles in PubMed