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Public Health Genomics and Precision Health Knowledge Base (v7.3)
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all[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
Publication
Artificial intelligence and multi agent based distributed ledger system for better privacy and security of electronic healthcare records.
Alruwaili Fahad F et al. PeerJ. Computer science 2021 6e323
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Artificial Intelligence and Liability in Medicine: Balancing Safety and Innovation.
Maliha George et al. The Milbank quarterly 2021
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Orchestrating privacy-protected big data analyses of data from different resources with R and DataSHIELD.
Marcon Yannick et al. PLoS computational biology 2021 17(3) e1008880
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Mainstreaming informed consent for genomic sequencing: A call for action.
Bunnik Eline M et al. European journal of cancer (Oxford, England : 1990) 2021 148405-410
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Achieving fairness in medical devices.
Kadambi Achuta et al. Science (New York, N.Y.) 2021 372(6537) 30-31
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Is Malaysia Ready for Human Gene Editing: A Regulatory, Biosafety and Biosecurity Perspective.
Kalidasan V et al. Frontiers in bioengineering and biotechnology 2021 9649203
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Primum Non Nocere: Should Gene Therapy be Used to Prevent Potentially Fatal Disease but Enable Potentially Destructive Behavior?
Crystal Ronald G et al. Human gene therapy 2021
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Social epigenomics: are we at an impasse?
Non Amy L et al. Epigenomics 2021
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Adoption of artificial intelligence in breast imaging: evaluation, ethical constraints and limitations.
Hickman Sarah E et al. British journal of cancer 2021
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Pathways, Processes and Protections: Australia's Clinical and Direct-to-Consumer Genetic Testing Spaces.
Charbonneau Jan et al. Journal of law and medicine 2021 28(2) 370-388
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How to address data privacy concerns when using social media data in conservation science.
Di Minin Enrico et al. Conservation biology : the journal of the Society for Conservation Biology 2021
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Co-creating social licence for sharing health and care data.
Fylan Fiona et al. International journal of medical informatics 2021 149104439
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Ushering in safe, effective, secure, and ethical medicine in the digital era
WJ Gordon et al, NPJ Digital Medicine, March 25, 2021
Preparing genetic counselors to serve Native American communities.
Freeman Abigail A et al. Journal of genetic counseling 2021
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Family-level impact of genetic testing: integrating health economics and ethical, legal, and social implications.
Smith Hadley Stevens et al. Personalized medicine 2021
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Gene therapy companies have an ethical obligation to develop expanded access policies.
Kearns Lisa et al. Molecular therapy : the journal of the American Society of Gene Therapy 2021
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Risks and benefits of human germline genome editing: An ethical analysis.
Rubeis Giovanni et al. Asian bioethics review 2018 10(2) 133-141
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Delivering a Practical Framework for Ethical Decision-Making Involving Big Data in Health and Research.
Laurie Graeme T et al. Asian bioethics review 2019 11(3) 223-225
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An Ethics Framework for Big Data in Health and Research.
Xafis Vicki et al. Asian bioethics review 2019 11(3) 227-254
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AI-Assisted Decision-making in Healthcare: The Application of an Ethics Framework for Big Data in Health and Research.
Lysaght Tamra et al. Asian bioethics review 2019 11(3) 299-314
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Genetic Research Using Archival Tissue: Ethical, Social, and Legal Considerations in the United Arab Emirates.
Almarzooqi Saeeda et al. Asian bioethics review 2018 10(3) 219-230
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Precision Medicine and Big Data: The Application of an Ethics Framework for Big Data in Health and Research.
Schaefer G Owen et al. Asian bioethics review 2019 11(3) 275-288
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Framing Ethical Concerns and Attitudes towards Human Gene Patents in the Chinese Press.
Du Li et al. Asian bioethics review 2021 12(3) 307-323
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Professionally responsible management of the ethical and social challenges of antenatal screening and diagnosis of β-thalassemia in a high-risk population.
Corda Valentina et al. Journal of perinatal medicine 2021
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Digital inclusion as a social determinant of health
CJ Sieck et al, NPJ Digital Medicine, March 17, 2021
Challenges and Legal Gaps of Genetic Profiling in the Era of Big Data.
Sariyar Murat et al. Frontiers in big data 2019 240
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Ethical issues in genomics research on neurodevelopmental disorders: a critical interpretive review.
Mezinska S et al. Human genomics 2021 15(1) 16
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AI support for ethical decision-making around resuscitation: proceed with care.
Biller-Andorno Nikola et al. Journal of medical ethics 2021
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Governing AI-Driven Health Research: Are IRBs Up to the Task?
Friesen Phoebe et al. Ethics & human research 2021 43(2) 35-42
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A biographer and a bioethicist take on the CRISPR revolution.
Scully Jackie Leach et al. Nature 2021 591(7849) 196-197
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Page last reviewed:
Oct 1, 2020
Page last updated:
Apr 11, 2021
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