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Neurological Disorders

Last data update: Sep 24, 2021. (Total: 42473 Documents since 2012)
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Query Trace: all[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
An ethical analysis of divergent clinical approaches to the application of genetic testing for autism and schizophrenia.
Morris E et al. Human genetics 2021
Guidelines for Conducting Ethical Artificial Intelligence Research in Neurology: A Systematic Approach for Clinicians and Researchers.
Chiang Sharon et al. Neurology 2021
Controversy and Progress in Alzheimer's Disease - FDA Approval of Aducanumab.
Rabinovici Gil D et al. The New England journal of medicine 2021
Unraveling the Ethical, Legal, and Social Implications of Neurobiobanking and Stroke Genomic Research in Africa: A Study Protocol of the African Neurobiobank for Precision Stroke Medicine ELSI Project.
Akinyemi Rufus O et al. International journal of qualitative methods 2020 19
Ethical Issues in Care and Treatment of Neuronal Ceroid Lipofuscinoses (NCL)-A Personal View.
Kohlschütter Alfried et al. Frontiers in neurology 2021 12692527
'That would be dreadful': The ethical, legal, and social challenges of sharing your Alzheimer's disease biomarker and genetic testing results with others.
Largent Emily A et al. Journal of law and the biosciences 2021 8(1) lsab004
Obstetrics, genetics and litigation.
Milunsky Aubrey et al. Acta obstetricia et gynecologica Scandinavica 2021 Jan
Whether, when, and how to communicate genetic risk to minors: 'I wanted more information but I think they were scared I couldn't handle it'.
Stuttgen Kelsey et al. Journal of genetic counseling 2020 Jul
[Clinical Ethics in Hereditary Neuromuscular Diseases such as Duchenne Muscular Dystrophy].
Nakajima Takashi et al. Brain and nerve = Shinkei kenkyu no shinpo 2020 Jul 72(7) 753-766
FDA orphan drug designations for lysosomal storage disorders - a cross-sectional analysis.
Garbade Sven F et al. PloS one 2020 15(4) e0230898
Biobanking for Genomic and Personalized Health Research: Participant Perceptions and Preferences.
Barnes Rebecca et al. Biopreservation and biobanking 2020 Apr
Rare inherited kidney diseases: an evolving field in Nephrology.
Cunha Mariana Faucz Munhoz da et al. Jornal brasileiro de nefrologia : 'orgao oficial de Sociedades Brasileira e Latino-Americana de Nefrologia 2020
Pharmacogenetic Testing: The Ethics of Implementing in Clinical Practice for Chronic Pain Patients.
Fredrikson Karin M et al. Journal of pain & palliative care pharmacotherapy 2020 Jan 1-8
Heritable Genome Editing: Who Speaks for "Future" Children?
Knoppers Bartha Maria et al. The CRISPR journal 2019 Oct 2(5) 285-292
Is Genetic Medicine Making the World Less Fair?
L Hercher, the Nation, August 23, 2019
Genetic Testing: Who Owns Your Data?
Being Patient, August 2, 2019
Genetic-Testing Scam Targets Seniors And Rips Off Medicare
M Bailey, KHN News, July 31, 2019
Did CRISPR help - or harm - the first-ever gene-edited babies?
J Cohen, Science, August 1, 2019
Bioethicists worried patients couldn?t handle their own genetic testing results. They were (mostly) wrong
E Parens et al, Stat News, July 30, 2019
Personally Collected Health Data for Precision Medicine and Longitudinal Research.
D'Antrassi Pierluigi et al. Frontiers in medicine 2019 6125
Ethical issues with testing and treatment for Krabbe disease.
Ehmann Paul et al. Developmental medicine and child neurology 2019 May
Attitudes and experiences regarding genetic research among persons of African descent.
Scott Denise M et al. Journal of community genetics 2019 May
Beyond medical actionability: Public perceptions of important actions in response to hypothetical genetic testing results.
Seiffert David J et al. Journal of genetic counseling 2019 Feb
Leveraging Evidence-Based Public Policy and Advocacy to Advance Newborn Screening in California.
Bronstein Max G et al. Pediatrics 2019 Jan
Ethical issues in susceptibility genetic testing for late-onset neurodegenerative diseases.
Manrique de Lara Amaranta et al. American journal of medical genetics. Part B, Neuropsychiatric genetics : the official publication of the International Society of Psychiatric Genetics 2018 Dec
FDA approves ‘precision medicine’ drug for different cancers with same mutation
L McGinley, Washington Post, November 26, 2018
Innovation for rare diseases and bioethical concerns: A thin thread between medical progress and suffering.
Tommasini Alberto et al. World journal of clinical pediatrics 2018 Aug 7(3) 75-82
Effort to Diversify Medical Research Raises Thorny Questions of Race
M Miller, Scientific American, August 10, 2018
Are Payers Ready To Address The Financial Challenges Associated With Gene Therapy?
Health Affairs Blog, June 28, 2018
I handed over my genetic data to the NIH. Here’s why you should, too
E Dishman, All of uS, StatNews, June 13, 2018
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