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Query Trace: all[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
Symbolic Legislation and the Regulation of Stroke Biobanking and Genomics Research in Sub-Saharan Africa. Adigun Muyiwa et al. The theory and practice of legislation 2022 9(3) 404-424 Similar articles in PubMed
Ethical considerations in design and implementation of home-based smart care for dementia. Hine Christine et al. Nursing ethics 2022 9697330211062980 Similar articles in PubMed
The good, the bad, and the utilitarian: attitudes towards genetic testing and implications for disability. Maftei Alexandra et al. Current psychology (New Brunswick, N.J.) 2022 1-22 Similar articles in PubMed
Individualized Therapeutics Development for Rare Diseases: The Current Ethical Landscape and Policy Responses. Bateman-House Alison et al. Nucleic acid therapeutics 2021 Similar articles in PubMed
An ethical analysis of divergent clinical approaches to the application of genetic testing for autism and schizophrenia. Morris E et al. Human genetics 2021 Similar articles in PubMed
Guidelines for Conducting Ethical Artificial Intelligence Research in Neurology: A Systematic Approach for Clinicians and Researchers. Chiang Sharon et al. Neurology 2021 Similar articles in PubMed
Controversy and Progress in Alzheimer's Disease - FDA Approval of Aducanumab. Rabinovici Gil D et al. The New England journal of medicine 2021 Similar articles in PubMed
Unraveling the Ethical, Legal, and Social Implications of Neurobiobanking and Stroke Genomic Research in Africa: A Study Protocol of the African Neurobiobank for Precision Stroke Medicine ELSI Project. Akinyemi Rufus O et al. International journal of qualitative methods 2020 19 Similar articles in PubMed
Ethical Issues in Care and Treatment of Neuronal Ceroid Lipofuscinoses (NCL)-A Personal View. Kohlschütter Alfried et al. Frontiers in neurology 2021 12692527 Similar articles in PubMed
'That would be dreadful': The ethical, legal, and social challenges of sharing your Alzheimer's disease biomarker and genetic testing results with others. Largent Emily A et al. Journal of law and the biosciences 2021 8(1) lsab004 Similar articles in PubMed
Obstetrics, genetics and litigation. Milunsky Aubrey et al. Acta obstetricia et gynecologica Scandinavica 2021 Jan Similar articles in PubMed
Whether, when, and how to communicate genetic risk to minors: 'I wanted more information but I think they were scared I couldn't handle it'. Stuttgen Kelsey et al. Journal of genetic counseling 2020 Jul Similar articles in PubMed
[Clinical Ethics in Hereditary Neuromuscular Diseases such as Duchenne Muscular Dystrophy]. Nakajima Takashi et al. Brain and nerve = Shinkei kenkyu no shinpo 2020 Jul 72(7) 753-766 Similar articles in PubMed
FDA orphan drug designations for lysosomal storage disorders - a cross-sectional analysis. Garbade Sven F et al. PloS one 2020 15(4) e0230898 Similar articles in PubMed
Biobanking for Genomic and Personalized Health Research: Participant Perceptions and Preferences. Barnes Rebecca et al. Biopreservation and biobanking 2020 Apr Similar articles in PubMed
Rare inherited kidney diseases: an evolving field in Nephrology. Cunha Mariana Faucz Munhoz da et al. Jornal brasileiro de nefrologia : 'orgao oficial de Sociedades Brasileira e Latino-Americana de Nefrologia 2020 Similar articles in PubMed
Pharmacogenetic Testing: The Ethics of Implementing in Clinical Practice for Chronic Pain Patients. Fredrikson Karin M et al. Journal of pain & palliative care pharmacotherapy 2020 Jan 1-8 Similar articles in PubMed
Heritable Genome Editing: Who Speaks for "Future" Children? Knoppers Bartha Maria et al. The CRISPR journal 2019 Oct 2(5) 285-292 Similar articles in PubMed
Is Genetic Medicine Making the World Less Fair? L Hercher, the Nation, August 23, 2019
Genetic Testing: Who Owns Your Data? Being Patient, August 2, 2019
Genetic-Testing Scam Targets Seniors And Rips Off Medicare M Bailey, KHN News, July 31, 2019
Did CRISPR help - or harm - the first-ever gene-edited babies? J Cohen, Science, August 1, 2019
Bioethicists worried patients couldn?t handle their own genetic testing results. They were (mostly) wrong E Parens et al, Stat News, July 30, 2019
Personally Collected Health Data for Precision Medicine and Longitudinal Research. D'Antrassi Pierluigi et al. Frontiers in medicine 2019 6125 Similar articles in PubMed
Ethical issues with testing and treatment for Krabbe disease. Ehmann Paul et al. Developmental medicine and child neurology 2019 May Similar articles in PubMed
Attitudes and experiences regarding genetic research among persons of African descent. Scott Denise M et al. Journal of community genetics 2019 May Similar articles in PubMed
Beyond medical actionability: Public perceptions of important actions in response to hypothetical genetic testing results. Seiffert David J et al. Journal of genetic counseling 2019 Feb Similar articles in PubMed
Leveraging Evidence-Based Public Policy and Advocacy to Advance Newborn Screening in California. Bronstein Max G et al. Pediatrics 2019 Jan Similar articles in PubMed
Ethical issues in susceptibility genetic testing for late-onset neurodegenerative diseases. Manrique de Lara Amaranta et al. American journal of medical genetics. Part B, Neuropsychiatric genetics : the official publication of the International Society of Psychiatric Genetics 2018 Dec Similar articles in PubMed
FDA approves precision medicine drug for different cancers with same mutation L McGinley, Washington Post, November 26, 2018

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