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Public Health Genomics and Precision Health Knowledge Base (v8.8)
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all[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
Legal aspects of genetic testing in the evaluation of ventricular tachycardias.
Regina Duryagina et al. Herzschrittmacherther Elektrophysiol 2023
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Experimental drugs in clinical trials for COPD: Artificial Intelligence via Machine Learning approach to predict the successful advance from early-stage development to approval.
Luigino Calzetta et al. Expert Opin Investig Drugs 2023
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CRISPR in Public Health: The Health Equity Implications and Role of Community in Gene-Editing Research and Applications.
Andrew M Subica et al. Am J Public Health 2023 e1-e9
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Genetic Testing in Patients With Congenital Heart Disease: You Do No Harm When Using the Right Tools!
Julie De Backer et al. Circulation. Genomic and precision medicine 2023 e004104
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Ethical layering in AI-driven polygenic risk scores-New complexities, new challenges.
Marie-Christine Fritzsche et al. Frontiers in genetics 2023 141098439
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The ethics of gene therapy for hemophilia: a narrative review.
Lieke Baas et al. Journal of thrombosis and haemostasis : JTH 2023
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Ethical Perspectives of Therapeutic Human Genome Editing From Multiple and Diverse Viewpoints: A Scoping Review.
Joseph Andrew M et al. Cureus 2022 14(11) e31927
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Public willingness to participate in population DNA screening in Australia.
Tiller Jane M et al. Journal of medical genetics 2022
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Population genomic screening: Ethical considerations to guide age at implementation.
Spencer Scott J et al. Frontiers in genetics 2022 13899648
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Ethics of digital therapeutics (DTx).
Refolo P et al. European review for medical and pharmacological sciences 2022 26(18) 6418-6423
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The current status and future of FDA-approved artificial intelligence tools in chest radiology in the United States.
Milam M E et al. Clinical radiology 2022
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The controversial embryo tests that promise a better baby Some companies offer tests that rank embryos based on their risk of developing complex diseases such as schizophrenia or heart disease. Are they accurate — or ethical?
M Koslov, Nature, September 21, 2022
Artificial Intelligence-Augmented Propensity Score, Cost Effectiveness and Computational Ethical Analysis of Cardiac Arrest and Active Cancer with Novel Mortality Predictive Score.
Monlezun Dominique J et al. Medicina (Kaunas, Lithuania) 2022 58(8)
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Legal Implications of Stroke Biobanking and Genomics Research in Sub-Saharan Africa.
Adigun Muyiwa et al. Journal of law and medicine 2022 29(2) 579-598
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The 2021 landscape of FDA-approved artificial intelligence/machine learning-enabled medical devices: An analysis of the characteristics and intended use.
Zhu Simeng et al. International journal of medical informatics 2022 165104828
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Capacity-Building for Stroke Genomic Research Data Collection: The African Neurobiobank Ethical, Legal, and Social Implications Project Experience.
Uvere Ezinne O et al. Biopreservation and biobanking 2022
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Communal Coping as a Strategy to Enhance Family Engagement in Dilated Cardiomyopathy.
Burke Wylie et al. Circulation. Genomic and precision medicine 2022 101161CIRCGEN121003541
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The impact of FDA and EMA regulatory decision-making process on the access to CFTR modulators for the treatment of cystic fibrosis.
Costa Enrico et al. Orphanet journal of rare diseases 2022 17(1) 188
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Is the world ready for gene therapy?
Garrison Louis P et al. Haemophilia : the official journal of the World Federation of Hemophilia 2022 28 Suppl 25-8
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Symbolic Legislation and the Regulation of Stroke Biobanking and Genomics Research in Sub-Saharan Africa.
Adigun Muyiwa et al. The theory and practice of legislation 2022 9(3) 404-424
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Need for Racial and Ethnic Diversity in Asthma Precision Medicine.
González Burchard Esteban et al. The New England journal of medicine 2021 385(24) 2297-2298
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Ethical dilemma: ELX/TEZ/IVA or Lung Transplantation in Cystic Fibrosis and End Stage Lung Disease?
Breuer Oded et al. Chest 2021
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Unraveling the Ethical, Legal, and Social Implications of Neurobiobanking and Stroke Genomic Research in Africa: A Study Protocol of the African Neurobiobank for Precision Stroke Medicine ELSI Project.
Akinyemi Rufus O et al. International journal of qualitative methods 2020 19
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Using Artificial Intelligence for High-Volume Identification of Silicosis and Tuberculosis: A Bio-Ethics Approach.
Spiegel Jerry M et al. Annals of global health 2021 87(1) 58
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Professionally responsible management of the ethical and social challenges of antenatal screening and diagnosis of β-thalassemia in a high-risk population.
Corda Valentina et al. Journal of perinatal medicine 2021
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An Integrated Review of Hypertrophic Cardiomyopathy in Black Populations: Underrecognized and Understudied.
Arabadjian Milla et al. The Journal of cardiovascular nursing 36(2) 104-115
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Constructing a Bioethical Framework to Evaluate and Optimise Newborn Bloodspot Screening for Cystic Fibrosis.
Armstrong Rachael E et al. International journal of neonatal screening 2020 May 6(2)
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Health data research on sudden cardiac arrest: perspectives of survivors and their next-of-kin.
Bak Marieke A R et al. BMC medical ethics 2021 Jan 22(1) 7
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Organoids for personalized treatment of Cystic Fibrosis: Professional perspectives on the ethics and governance of organoid biobanking.
Lensink Michael A et al. Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society 2020 Dec
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Feasibility and acceptability of early infant screening for sickle cell disease in Lagos, Nigeria-A pilot study.
Oluwole Esther O et al. PloS one 2020 15(12) e0242861
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Page last reviewed:
Feb 1, 2023
Page last updated:
Sep 29, 2023
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