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Precision Health Database


Genomics & Health Impact Scan Database|Search|PHGKB

Family Health History

Last data update: May 24, 2022. (Total: 47290 Documents since 2012)
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Query Trace: all[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
Ethical considerations in gene selection for reproductive carrier screening.
Dive Lisa et al. Human genetics 2021
Legal terms of use and public genealogy websites.
Contreras Jorge L et al. Journal of law and the biosciences 2021 7(1) lsaa063
Obstetrics, genetics and litigation.
Milunsky Aubrey et al. Acta obstetricia et gynecologica Scandinavica 2021 Jan
Health policy and genetic endowments: Understanding sources of response to Minimum Legal Drinking Age laws.
Fletcher Jason M et al. Health economics 2020 Nov
Survey of palliative care providers' needs, perceived roles, and ethical concerns about addressing cancer family history at the end of life.
Cléophat Jude E et al. Palliative & supportive care 2020 Aug 1-6
Relationships of Family History-related Factors and Causal Beliefs to Cancer Risk Perception and Mammography Screening Adherence Among Medically Underserved Women.
Hong Soo Jung et al. Journal of health communication 2020 Jul 1-12
Adult adoptees and their use of direct-to-consumer genetic testing: Searching for family, searching for health.
Lee Heewon et al. Journal of genetic counseling 2020 Jun
Returning genomic results in a Federally Qualified Health Center: the intersection of precision medicine and social determinants of health.
Shaibi Gabriel Q et al. Genetics in medicine : official journal of the American College of Medical Genetics 2020 May
Pioneering Informed Consent for Return of Research Results to Breast Cancer Patients Facing Barriers to Implementation of Genomic Medicine: The Kenyan BRCA1/2 Testing Experience Using Whole Exome Sequencing.
Torrorey-Sawe Rispah et al. Frontiers in genetics 2020 11170
Navigating the Intersection between Genomic Research and Clinical Practice.
Daly Mary B et al. Cancer prevention research (Philadelphia, Pa.) 2020 Mar 13(3) 219-222
Ethical Dilemmas Linked to Fragile X Testing of Minors-a Preliminary Survey Among Professionals.
Gabis Lidia V et al. Journal of molecular neuroscience : MN 2020 Jan
Ethical Issues in Newborn Sequencing Research: The Case Study of BabySeq.
Ross Lainie Friedman et al. Pediatrics 2019 Nov
Is Genetic Medicine Making the World Less Fair?
L Hercher, the Nation, August 23, 2019
Why home DNA tests might not be as private as you think
C Fox, World Economic Forum, August 9, 2019
Genetic Testing: Who Owns Your Data?
Being Patient, August 2, 2019
How Your Genetic Data Could Be Shared Without Your Consent
E Matloff, Forbes, July 18, 2019
Do human subject safeguards matter to potential participants in psychiatric genetic research?
Roberts Laura Weiss et al. Journal of psychiatric research 2019 Jun 11695-103
What You Should Know About Insurance Before You Have Genetic Testing
E Matloff, Forbes, June 25, 2019
Genomic malpractice: what healthcare providers need to know to reduce the risk
J McCarthy, Precision Medicine Advisor, June 10, 2019
Perspectives on communication and engagement with regard to collecting biospecimens and family health histories for cancer research in a rural Alaska Native community.
Dirks Lisa G et al. Journal of community genetics 2019 Jan
Direct-to-Consumer Tests with Marketing Authorization
FDA, 2018
You Discovered Your Genetic History. Is It Worth the Privacy Risk?
M Rodriguez, Fortune, September 10, 2018
Racism Plays into Concerns About Genomic Info
J Frieden, Medpage Today, June 28, 2018
Using a genetic test result in the care of family members: how does the duty of confidentiality apply?
Parker Michael et al. European journal of human genetics : EJHG 2018 Apr
The Right Not to Know: When Ignorance Is Bliss but Deadly
AM Clausen, Pultizer Center, Mar 20, 2018
Is direct-to-consumer genetic testing reifying race?
T Caulfield, the Cure, Mar 22, 2018
Opinion: No, FDA Didn’t Really Approve BRCA Test-Rather, the breast cancer mutation screen was classified as a type of medical device with obligations for the company to reduce risks to customers.
C Janssens, The Scientist, Mar 19, 2018
Autonomy, Well-Being, and the Value of Genetic Testing for Adopted Persons.
May Thomas et al. HEC forum : an interdisciplinary journal on hospitals' ethical and legal issues 2017 Dec
Does Lack of "Genetic-Relative Family Health History" Represent a Potentially Avoidable Health Disparity for Adoptees?
May Thomas et al. The American journal of bioethics : AJOB 2016 Dec 16(12) 33-38
It's Interpersonal: Family Relationships, Genetic Risk, and Caregiving.
Koehly Laura M et al. The Gerontologist 2016 Aug
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