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Public Health Genomics and Precision Health Knowledge Base (v8.2)
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all[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
STATEMENT American Society of Human Genetics Board of Directors On The Report of the ASHG Facing Our History – Building an Equitable Future Initiative
ASHG, January 23, 2023
Overcoming and mitigating ethical issues raised by artificial intelligence in health and medicine: The search continues
N Liu et al, BMC Blog, December 2022
Words matter: The language of difference in human genetics
MK Cho et al, Genetics in Medicine, December 15, 2022
A scoping review of guidelines for the use of race, ethnicity, and ancestry reveals widespread consensus but also points of ongoing disagreement.
Mauro Madelyn et al. American journal of human genetics 2022
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Equitable and Informed Consent in Genetic Studies.
Navar Ann Marie et al. JAMA cardiology 2022
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Addressing racial disparities in surgical care with machine learning
J Halamka et al, NPJ Digital Medicine, September 30, 2022
Social and scientific motivations to move beyond groups in allele frequencies: The TOPMed experience.
Nelson Sarah C et al. American journal of human genetics 2022 109(9) 1582-1590
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A reimbursement framework for artificial intelligence in healthcare
MD Abramoff et al, NPJ Digital Medicine, June 9, 2022
Paying for artificial intelligence in medicine
RB Parikh et al, NPJ Digital Medicine, May 20, 2022
An ethical plan for including forcibly displaced persons in omics and digital technology research
F Taki et al, Nature Medicine,May 5, 2022
Getting genetic ancestry right for science and society.
Lewis Anna C F et al. Science (New York, N.Y.) 2022 376(6590) 250-252
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The risk of coding racism into pediatric sepsis care: the necessity of anti-racism in machine learning.
Sveen William Norman et al. The Journal of pediatrics 2022
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Machine learning and health need better values
M Ghassemi et al, NPJ Digital Medicine, April 22, 2022
Genomics and justice: mitigating the potential harms and inequities that arise from the implementation of genomics in medicine.
Clarke A J et al. Human genetics 2022
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A Framework for Promoting Diversity, Equity, and Inclusion in Genetics and Genomics Research
TR Rebbeck et al, JAMA Health Forum, April 15, 2022
A proposal for developing a platform that evaluates algorithmic equity and accuracy.
Cerrato Paul et al. BMJ health & care informatics 2022 29(1)
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Ethical Considerations for Equitable Access to Genomic Sequencing for Critically Ill Neonates in the United States.
P Fishler Kristen et al. International journal of neonatal screening 2022 8(1)
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Translational Science, DNA Commercialization, and Informed Consent: The Need for Specific Terminology, Insights from a Review of H3Africa Projects
P Marshall et al, Public Health Genomics, March 2022
Diversity in cancer genomics research is a matter of equity and scientific discovery.
Pal Tuya et al. Genetics in medicine : official journal of the American College of Medical Genetics 2021
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Precision medicine research with American Indian and Alaska Native communities: Results of a deliberative engagement with tribal leaders.
Trinidad Susan Brown et al. Genetics in medicine : official journal of the American College of Medical Genetics 2021
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Promoting Health Equity in Cancer Care — ‘It’s Time to Declare Disparities Intolerable’
S Miceli, NASEM, January 2022
Use of a community advisory board to build equitable algorithms for participation in clinical trials: a protocol paper for HoPeNET.
Farmer Nicole et al. BMJ health & care informatics 2022 29(1)
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Defining AMIA's artificial intelligence principles.
Solomonides Anthony E et al. Journal of the American Medical Informatics Association : JAMIA 2022
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Towards equitable and trustworthy genomics research.
Atutornu Jerome et al. EBioMedicine 2022 76103879
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The Potential For Bias In Machine Learning And Opportunities For Health Insurers To Address It
SS Gervasi et al, Health Affairs, February 2022
A roadmap to increase diversity in genomic studies
S Fatumo et al, Nature Medicine, February 10, 2022
Racial Biology and Medical Misconceptions
A Deyrup et al, NEJM, February 10, 2022
Peeking into a black box, the fairness and generalizability of a MIMIC-III benchmarking model.
Röösli Eliane et al. Scientific data 2022 9(1) 24
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Balancing openness with Indigenous data sovereignty: An opportunity to leave no one behind in the journey to sequence all of life
AM Mc Cartney et al, PNAS, January 25, 2022
Advocating for equitable management of hereditary cancer syndromes.
Caffrey Rikki Gaber et al. Journal of genetic counseling 2022
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Page last updated:
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