Skip directly to search
Skip directly to A to Z list
Skip directly to navigation
Skip directly to page options
Skip directly to site content
Start of Search Controls
Search Form Controls
Search The CDC
submit
CDC A-Z Index
MENU
CDC A-Z
SEARCH
A
B
C
D
E
F
G
H
I
J
K
L
M
N
O
P
Q
R
S
T
U
V
W
X
Y
Z
#
Search Form Controls
Search The CDC
submit
CDC A-Z Index
Public Health Genomics and Precision Health Knowledge Base (v7.9)
Note: Javascript is disabled or is not supported by your browser. For this reason, some items on this page will be unavailable. For more information about this message, please visit this page:
About CDC.gov
.
PHGKB
About
Specialized PHGKB
Cancer PHGKB
Diabetes PHGKB
Infectious Diseases PHGKB
HLBS-PopOmics
Rare Diseases PHGKB
Health Equity PHGKB
Family Health History PHGKB
Reproductive and Child Health PHGKB
Pharmacogenomics PHGKB
Neurological Disorders PHGKB
Primary Immune Deficiency Diseases PHGKB
Environmental Health PHGKB
Genomics (A-Z)
Office of Genomics and Precision Public Health
State Public Health Genomics Programs Map
Genomics Precision Health Weekly Scan
(Current Edition)
Advanced Molecular Detection Weekly Clips
(Current Edition)
Non-Genomics Precision Health Weekly Scan
(Current Edition)
CDC-authored Publications Update
COVID-19 Precision Health Weekly Update
(Current Edition)
All Databases
COVID-19 GPH (38488)
CDC/NIH Web Information Database (29783)
CDC-Authored Genomics and Precision Health Publications Database (3965)
Precision Health Database (48803)
Tier-Classified Guidelines Database (497)
State Public Health Genomics Programs Database (319)
Pathogen Advanced Molecular Detection Database (22755)
All of Us Reports and Publications Database (119)
HuGE Navigator
Phenopedia (3416)
Genopedia (16250)
HuGE Literature Finder (166242)
Variant Name Mapper (18583)
Release Note
Contact Us
Precision Health Database
Genomics & Health Impact Scan Database|Search|PHGKB
Last data update: Aug 12, 2022
. (Total: 48803 Documents since 2012)
All
HLBS
RCH
FHH
Equity
Diabetes
Rare
Cancer
COVID-19
ND
PGx
PI
Environmental
dataset
All
GPH
Non-GPH
Filtered By
:
Select to fine-tune your search
Disease
Gene
Product Type
Category
Year
Previous
Records 1 - 30 (of 32 Records)
Next
Query Trace:
Whole genome sequencing[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
A roadmap to increase diversity in genomic studies.
Fatumo Segun et al. Nature medicine 2022
Similar articles in PubMed
Parental Access to Children's Raw Genomic Data in Canada: Legal Rights and Professional Responsibility.
Beauvais Michael J S et al. Frontiers in genetics 2021 12535340
Similar articles in PubMed
Genetic Research Using Archival Tissue: Ethical, Social, and Legal Considerations in the United Arab Emirates.
Almarzooqi Saeeda et al. Asian bioethics review 2018 10(3) 219-230
Similar articles in PubMed
Please give me a copy of my child’s raw genomic data
L Chad et al, NPJ Genomic Medicine, February 17, 2021
Parents, their children, whole exome sequencing and unsolicited findings: growing towards the child's future autonomy.
Tibben Aad et al. European journal of human genetics : EJHG 2021 Jan
Similar articles in PubMed
Reflections on the cost of "low-cost" whole genome sequencing: framing the health policy debate.
Caulfield Timothy et al. PLoS biology 2013 Nov 11(11) e1001699
Similar articles in PubMed
Governing the futures of non-invasive prenatal testing: An exploration of social acceptability using the Delphi method.
Dupras Charles et al. Social science & medicine (1982) 2020 Mar 112930
Similar articles in PubMed
Managing the Unimaginable: Biobank Participant Views on Reconsent for Whole Genome Sequencing of Stored Biospecimens.
Sutton Erica J et al. Biopreservation and biobanking 2019 Mar
Similar articles in PubMed
Factors complicating the informed consent process for whole exome sequencing in neonatal and pediatic intensive care units.
Diamonstein Callie J et al. Journal of genetic counseling 2019 Feb
Similar articles in PubMed
Beyond medical actionability: Public perceptions of important actions in response to hypothetical genetic testing results.
Seiffert David J et al. Journal of genetic counseling 2019 Feb
Similar articles in PubMed
Return of individual genomic research results: are laws and policies keeping step?
Thorogood Adrian, et al. European journal of human genetics : EJHG 2019 4 0. (4) 535-546
Similar articles in PubMed
Ethical conundrums in pediatric genomics.
Rotz Seth J et al. Hematology. American Society of Hematology. Education Program 2018 Nov 2018(1) 301-306
Similar articles in PubMed
Resisting Paternalism in Prenatal Whole-Genome Sequencing.
Rhodes Rosamond et al. The American journal of bioethics : AJOB 2017 17(1) 35-37
Similar articles in PubMed
Response to Open Peer Commentaries on "A Framework for Unrestricted Prenatal Whole-Genome Sequencing: Respecting and Enhancing the Autonomy of Prospective Parents".
Chen Stephanie C et al. The American journal of bioethics : AJOB 2017 17(1) W1-W3
Similar articles in PubMed
A New Era, New Strategies: Education and Communication Strategies to Manage Greater Access to Genomic Information.
Lewis Megan A et al. The Hastings Center report 2018 Jul 48 Suppl 2S25-S27
Similar articles in PubMed
[Ethical dilemmas in a general practitioner's clinic due to incidental findings resulting from whole genome sequencing].
Wouters Roel H P et al. Nederlands tijdschrift voor geneeskunde 2018 Jun 162
Similar articles in PubMed
Consent and participation in the 100,000 Genomes Project public attitudes
Genomics England, July 18, 2018
Incidental or secondary findings: an integrative and patient-inclusive approach to the current debate.
Saelaert Marlies et al. European journal of human genetics : EJHG 2018 Jul
Similar articles in PubMed
Ethical Implications of Rapid Whole-Genome Sequencing in Neonates.
Bell Susan Givens et al. Neonatal network : NN 2018 Jan 37(1) 42-44
Similar articles in PubMed
Genomics England's implementation of its public engagement strategy: Blurred boundaries between engagement for the United Kingdom's 100,000 Genomes project and the need for public support.
Samuel Gabrielle Natalie et al. Public understanding of science (Bristol, England) 2017 Dec 963662517747200
Similar articles in PubMed
Ethical issues with newborn screening in the genomics era.
Tarini Beth A et al. Annual review of genomics and human genetics 2012 13381-93
Similar articles in PubMed
Readability of informed consent forms for whole-exome and whole-genome sequencing.
Niemiec Emilia et al. Journal of community genetics 2017 Aug
Similar articles in PubMed
The elusive ideal of inclusiveness: lessons from a worldwide survey of neurologists on the ethical issues raised by whole-genome sequencing.
Hurlimann Thierry et al. BMC medical ethics 2017 Apr 18(1) 28
Similar articles in PubMed
Whole genome sequencing in children: ethics, choice and deliberation.
Newson Ainsley J et al. Journal of medical ethics 2017 Jan
Similar articles in PubMed
Genomic Test Results and the Courtroom: The Roles of Experts and Expert Testimony.
Ramos Edward et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2016 Mar 44(1) 205-15
Similar articles in PubMed
The challenge of consent in clinical genome-wide testing.
Burke Katherine et al. Archives of disease in childhood 2016 Apr
Similar articles in PubMed
Ethical issues in consumer genome sequencing: Use of consumers' samples and data.
Niemiec Emilia et al. Applied & translational genomics 2016 Mar 823-30
Similar articles in PubMed
Whole-Genome Screening of Newborns? The Constitutional Boundaries of State Newborn Screening Programs.
King Jaime S et al. Pediatrics 2016 Jan 137 Suppl 1S8-S15
Similar articles in PubMed
Genomic Databases and Biobanks in Denmark.
Hartlev Mette et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2015 Dec 43(4) 743-53
Similar articles in PubMed
Return of genetic testing results in the era of whole-genome sequencing.
Knoppers Bartha Maria et al. Nat. Rev. Genet. 2015 Aug 4.
Similar articles in PubMed
File Formats Help:
How do I view different file formats (PDF, DOC, PPT, MPEG) on this site?
Adobe PDF file
Microsoft PowerPoint file
Microsoft Word file
Microsoft Excel file
Audio/Video file
Apple Quicktime file
RealPlayer file
Text file
Zip Archive file
SAS file
ePub file
Page last reviewed:
Jul 25, 2022
Page last updated:
Aug 12, 2022
Content source:
Office of Genomics and Precision Public Health
,
CDC Office of Science
TOP