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Precision Health Database


Genomics & Health Impact Scan Database|Search|PHGKB

Last data update: Jul 03, 2022. (Total: 48007 Documents since 2012)
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Query Trace: Personal genomics[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
Direct-to-consumer personal genomic tests need better regulation
O Moneer et al, Nature Medicine, May 20, 2021
Opening Pandora’s Box of a family’s medical secrets: ‘As hard as it is knowing, not knowing is much worse’
A Keshner, Market Watch, January 2020
What You’re Unwrapping When You Get a DNA Test for Christmas
H Murphy, NY Times, December 22, 2019
A Reporter Took DNA Tests in the U.S. and China. The Results Left Her Worried
KA Ha, et al, Bloomberg, November 30, 2019
Opportunities and Challenges in Interpreting and Sharing Personal Genomes.
Rubin Irit R et al. Genes 2019 Aug 10(9)
Genetic Testing Unleashed: What Could Possibly Go Wrong?
E Matloff, Forbes, August 20, 2019
Senior doctors call for crackdown on home genetic testing kits
H Devlin, the Guardian, July 21, 2019
Peeking at Your Genes Can Raise Red Flags for Life Insurers
A Alexander, Bloomberg News, May 15, 2019
The U.S. May Soon Have a De Facto National DNA Database
N Ram, future tense, March 2019
You Share Your Genetic Data at Your Own Risk- But how can we better inform people about those risks?
B Berkman, Slate, March 15, 2019
Genetics Start-Up Wants to Sequence People’s Genomes for Free
K Weintrob, Scientific American, November 2018
Direct-to-Consumer Tests with Marketing Authorization
FDA, 2018
Food and Drug Administration's regulatory shift on direct-to-consumer genetic tests for cancer risk.
Yang Y Tony et al. Cancer 2018 Nov
Behind at-home DNA testing companies sharing genetic data with third parties
CBS This Morning, August 2, 2018
Ethical Implications of Direct-to-Consumer Hereditary Cancer Tests.
Kilbride Madison K et al. JAMA oncology 2018 Jul
Deleting your online DNA data is brutally difficult
KV Brown, Bloomberg News, June 15, 2018
First, do no harm: direct-to-consumer genetic testing.
Schleit Jennifer et al. Genetics in medicine : official journal of the American College of Medical Genetics 2018 Jun
5 biggest risks of sharing your DNA with consumer genetic-testing companies
CNBC, June 16, 2018
FDA Lifts Some Regulatory Hurdles for Genetic Health Risk Tests as Planned
Genomeweb, June 5, 2018
The FDA says you can now test yourself for cancer at home without a doctor. Here's why you shouldn't.
D Ropeik, NBC News Blog, Mar 23, 2018
Is direct-to-consumer genetic testing reifying race?
T Caulfield, the Cure, Mar 22, 2018
Opinion: No, FDA Didn’t Really Approve BRCA Test-Rather, the breast cancer mutation screen was classified as a type of medical device with obligations for the company to reduce risks to customers.
C Janssens, The Scientist, Mar 19, 2018
NSGC Responds to U.S. Food and Drug Administration Approval of Direct-to-Consumer Cancer Test that Reports Three BRCA Mutations
NSGC, Mar 6, 2018
FDA approves new direct to consumer genetic test for 3 BRCA mutations
FORCE, Mar 6, 2018
Direct to consumer genetic testing-law and policy concerns in Ireland.
de Paor Aisling et al. Irish journal of medical science 2017 Nov
Legislation of direct-to-consumer genetic testing in Europe: a fragmented regulatory landscape.
Kalokairinou L et al. Journal of community genetics 2017 Nov
As Consumer DNA Testing Grows, Two States Resist
E Mullin, MIT Tech Review, Sep 28, 2017
Third party interpretation of raw genetic data: an ethical exploration.
Badalato Lauren et al. European journal of human genetics : EJHG 2017 Aug
Your DNA data may be vulnerable to hacking. Here’s how
UL McFarling, StatNews, August 10, 2017
Regulating the advertising of genetic tests in Europe: a balancing act.
Kalokairinou Louiza et al. Journal of medical genetics 2017 Jul
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