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Public Health Genomics and Precision Health Knowledge Base (v9.0)
PHGKB
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Precision Health Database|Search|Public Health Genomics and Precision Health Knowledge Base (PHGKB)
Last data update: Apr 25, 2024
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Records 1 - 23 (of 23 Records)
Query Trace:
Omics[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
Recommendations on the use and reporting of race, ethnicity, and ancestry in genetic research: Experiences from the NHLBI TOPMed program.
Khan Alyna T et al. Cell genomics 2022 2(8)
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Social and scientific motivations to move beyond groups in allele frequencies: The TOPMed experience.
Nelson Sarah C et al. American journal of human genetics 2022 109(9) 1582-1590
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An ethical plan for including forcibly displaced persons in omics and digital technology research
F Taki et al, Nature Medicine,May 5, 2022
Unraveling the Ethical, Legal, and Social Implications of Neurobiobanking and Stroke Genomic Research in Africa: A Study Protocol of the African Neurobiobank for Precision Stroke Medicine ELSI Project.
Akinyemi Rufus O et al. International journal of qualitative methods 2020 19
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Challenges and Legal Gaps of Genetic Profiling in the Era of Big Data.
Sariyar Murat et al. Frontiers in big data 2019 240
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Toward a Framework for Assessing Privacy Risks in Multi-Omic Research and Databases.
Dupras Charles et al. The American journal of bioethics : AJOB 2021 Jan 1-32
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Barriers and Considerations for Diagnosing Rare Diseases in Indigenous Populations.
D'Angelo Carla S et al. Frontiers in pediatrics 2020 8579924
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Precision health data: Requirements, challenges and existing techniques for data security and privacy.
Thapa Chandra et al. Computers in biology and medicine 2020 Nov 129104130
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Thought Leader Comparisons of Risks in Precision Medicine Research.
Beskow Laura M et al. Ethics & human research 2020 Nov 42(6) 35-40
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How Do Postgenomic Innovations Emerge? Building Legitimacy by Proteomics Standards and Informing the Next-Generation Technology Policy.
McDonald Fiona et al. Omics : a journal of integrative biology 2019 23(8) 406-415
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Personalised medicine in paediatric oncology: Ethical practice outside the clinical trial framework?
Hansford Jordan R et al. Journal of paediatrics and child health 2019 Jan 55(1) 10-12
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African American mothers' attitudes towards genetic testing in the InterGEN study.
Wright Michelle L et al. Journal of community genetics 2019 Dec
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Gene Therapy Leaders Push for Germline Editing Moratorium
Clinical Omics, April 24, 2019
The integration of emerging omics approaches to advance precision medicine: How can regulatory science help?
Adamo Joan E et al. Journal of clinical and translational science 2018 Oct 2(5) 295-300
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Meeting Patients' Right to the Correct Diagnosis: Ongoing International Initiatives on Undiagnosed Rare Diseases and Ethical and Social Issues.
Gainotti Sabina et al. International journal of environmental research and public health 2018 15(10)
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Will precision medicine be available for all patients in the near future?
Gómez René Maximiliano et al. Current opinion in allergy and clinical immunology 2018 Nov
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Precision medicine in diabetes and diabetic kidney disease: Regulatory considerations.
Mol Peter G M et al. Diabetes, obesity & metabolism 2018 Oct 20 Suppl 319-23
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Ethical, Legal, and Regulatory Issues for the Implementation of Omics-Based Risk Prediction of Women's Cancer: Points to Consider.
Lévesque Emmanuelle et al. Public health genomics 2018 Sep 1-8
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Recent updates and challenges on the regulation of precision medicine: The United States in perspective.
Chang Lin-Chau et al. Regulatory toxicology and pharmacology : RTP 2018 Apr
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What Is Trust? Ethics and Risk Governance in Precision Medicine and Predictive Analytics.
Adjekum Afua et al. Omics : a journal of integrative biology 2017 Dec 21(12) 704-710
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Paving the road to personalized medicine: recommendations on regulatory, intellectual property and reimbursement challenges.
Knowles Lori, et al. Journal of law and the biosciences 2017 12 0. (3) 453-506
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Security controls in an integrated Biobank to protect privacy in data sharing: rationale and study design.
Takai-Igarashi Takako et al. BMC medical informatics and decision making 2017 Jul 17(1) 100
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Biobank research, informed consent and society. Towards a new alliance?
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Page last reviewed:
Feb 1, 2024
Page last updated:
Apr 25, 2024
Content source:
Public Health Genomics Branch in the Division of Blood Disorders and Public Health Genomics
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National Center on Birth Defects and Developmental Disabilities
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