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Public Health Genomics and Precision Health Knowledge Base (v9.0)
PHGKB
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Public Health Genomics Branch
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Precision Health Database|Search|Public Health Genomics and Precision Health Knowledge Base (PHGKB)
Last data update: Mar 28, 2024
. (Total: 63390 Documents since 2012)
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Records 1 - 23 (of 23 Records)
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Informed consent [original query]>>Evidence Synthesis [Product Type]
The Lived Experience of Pediatric Gene Therapy - A Scoping Review.
Laura Kimberly et al. Hum Gene Ther 2023
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Specific measures for data-intensive health research without consent: a systematic review of soft law instruments and academic literature.
Julie-Anne R Smit et al. Eur J Hum Genet 2023
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Bioethics of somatic gene therapy: what do we know so far?
Paola Buedo et al. Curr Med Res Opin 2023 1-11
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Patients' perspectives related to ethical issues and risks in precision medicine: a systematic review.
Lawko Ahmed et al. Front Med (Lausanne) 2023 101215663
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Risk factors for cardiovascular events in patients with heterozygous familial hypercholesterolaemia: protocol for a systematic review.
María Elena Mansilla-Rodríguez et al. BMJ open 2023 13(3) e065551
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Patient perspectives on noninvasive prenatal testing among black women in the United States: a scoping review.
Shameka P Thomas et al. BMC pregnancy and childbirth 2023 23(1) 183
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Malpractice litigation surrounding in vitro fertilization in the United States: a legal literature review.
Applebaum Jeremy et al. Fertility and sterility 2022
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Ethical Perspectives of Therapeutic Human Genome Editing From Multiple and Diverse Viewpoints: A Scoping Review.
Joseph Andrew M et al. Cureus 2022 14(11) e31927
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Rapid Genetic Testing in Pediatric and Neonatal Critical Care: A Scoping Review of Emerging Ethical Issues.
Chad Lauren et al. Hospital pediatrics 2022
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Clinical utility of tumour mutational burden on efficacy of immune checkpoint inhibitors in malignant solid tumours: protocol for a systematic review and meta-analysis.
Xiang Xuemei et al. BMJ open 2022 12(8) e058692
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Patients' Perceptions of Pharmacogenetic Testing and Access to Their Results: State of the Art in Spain and Systematic Review.
Zubiaur Pablo et al. Journal of personalized medicine 2022 12(2)
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Revisiting Risk and Benefit in Early Oncology Trials in the Era of Precision Medicine: A Systematic Review and Meta-Analysis of Phase I Trials of Targeted Single-Agent Anticancer Therapies.
Mackley Michael P et al. JCO precision oncology 2022 517-26
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Ethical Issues of Smart Home-based Elderly Care: A Scoping Review.
Zhu Junhong et al. Journal of nursing management 2021
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Methods for evaluating the benefits and harms of antenatal and newborn screening programmes adopted by health economic assessments: protocol for a systematic review.
Png May Ee et al. BMJ open 2021 11(8) e048031
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Stakeholders' perspectives on the post-mortem use of genetic and health-related data for research: a systematic review.
Bak Marieke A R et al. European journal of human genetics : EJHG 2019 Sep
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Secondary findings from whole-exome/genome sequencing evaluating stakeholder perspectives. A review of the literature.
Delanne J et al. European journal of medical genetics 2018 Aug
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The research participant perspective related to the conduct of genomic cohort studies: A systematic review of the quantitative literature.
Goodman Deborah et al. Translational behavioral medicine 2018 Jan 8(1) 119-129
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Participants' Understanding of Informed Consent for Biobanking: A Systematic Review.
Eisenhauer Elizabeth R et al. Clinical nursing research 2017 Jul 1054773817722690
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A review of consent practices and perspectives for pharmacogenetic testing.
Haga Susanne B et al. Pharmacogenomics 2016 Aug
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Ethics Reporting in Biospecimen and Genetic Research: Current Practice and Suggestions for Changes.
Chin William Wei Lim et al. PLoS biology 2016 Aug 14(8) e1002521
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SOCIO-ETHICAL ISSUES IN PERSONALIZED MEDICINE: A SYSTEMATIC REVIEW OF ENGLISH LANGUAGE HEALTH TECHNOLOGY ASSESSMENTS OF GENE EXPRESSION PROFILING TESTS FOR BREAST CANCER PROGNOSIS.
Ali-Khan Sarah E et al. Int J Technol Assess Health Care 2015 May 20. 1-15
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Points to consider in the clinical use of NGS panels for mitochondrial disease: an analysis of gene inclusion and consent forms.
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SCN1A testing for epilepsy: application in clinical practice.
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Page last reviewed:
Feb 1, 2024
Page last updated:
Mar 28, 2024
Content source:
Public Health Genomics Branch in the Division of Blood Disorders and Public Health Genomics
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National Center on Birth Defects and Developmental Disabilities
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