Genomics and Precision Health Database

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Query Trace: Informed consent [original query]>>Reviews/Commentaries[Product Type]

Publication
Ethical and Psychosocial Implications of Genomic Newborn Screening. Levy Harvey L et al. International journal of neonatal screening 2021 Jan 7(1) Similar articles in PubMed
Organoids for personalized treatment of Cystic Fibrosis: Professional perspectives on the ethics and governance of organoid biobanking. Lensink Michael A et al. Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society 2020 Dec Similar articles in PubMed
How to Develop a Risk Prediction Smartphone App. Mauch Jaclyn T et al. Surgical innovation 2020 Dec 1553350620974827 Similar articles in PubMed
Explainability for artificial intelligence in healthcare: a multidisciplinary perspective. Amann Julia et al. BMC medical informatics and decision making 2020 Nov 20(1) 310 Similar articles in PubMed
Informed consent for genetic testing in hematology. Marron Jonathan M et al. Hematology. American Society of Hematology. Education Program 2020 2020(1) 213-218 Similar articles in PubMed
Reflections on dynamic consent in biomedical research: the story so far. Teare Harriet J A et al. European journal of human genetics : EJHG 2020 Nov Similar articles in PubMed
Ethical Considerations about Genomic Medicine Implementation: Lessons Learned from the eMERGE III Study. Inamura Kentaro et al. Journal of personalized medicine 2020 Oct 10(4) Similar articles in PubMed
Should You Recommend Direct-to-Consumer Genetic Testing for This Patient? : Grand Rounds Discussion From Beth Israel Deaconess Medical Center. Smetana Gerald W et al. Annals of internal medicine 2020 Oct 173(7) 563-571 Similar articles in PubMed
As genome-editing trials become more common, informed consent is changing Science Daily, October 12, 2020
Contributory factors to the evolution of the concept and practice of informed consent in clinical research: A narrative review. O'Sullivan Lydia et al. Contemporary clinical trials communications 2020 Sep 19100634 Similar articles in PubMed
Role of a regulatory and governance framework in human biological materials and data sharing in National Biobanks: Case studies from Biobank Integrating Platform, Taiwan and the National Biorepository, Uganda. Nansumba Hellen et al. Wellcome open research 2019 4171 Similar articles in PubMed
Public engagement with genomic medicine: a summary of town hall discussions. Etchegary Holly et al. Journal of community genetics 2020 Aug Similar articles in PubMed
Digitizing clinical trials. Inan O T et al. NPJ digital medicine 2020 3101 Similar articles in PubMed
Trust in and Ethical Design of Carebots: The Case for Ethics of Care. Yew Gary Chan Kok et al. International journal of social robotics 2020 May 1-17 Similar articles in PubMed
Ethical Questions Concerning Newborn Genetic Screening. Esquerda Montse et al. Clinical genetics 2020 Aug Similar articles in PubMed
The generic Informed Consent Service gICS ® : implementation and benefits of a modular consent software tool to master the challenge of electronic consent management in research. Rau Henriette et al. Journal of translational medicine 2020 Jul 18(1) 287 Similar articles in PubMed
A call for an ethical framework when using social media data for artificial intelligence applications in public health research. Gilbert Jean-Philippe et al. Canada communicable disease report = Releve des maladies transmissibles au Canada 2020 Jun 46(6) 169-173 Similar articles in PubMed
The ethics of deferred consent in times of pandemics RVD Graaf et al, Nature Medicine, July 10, 2020
Biobanking in health care: evolution and future directions. Coppola Luigi et al. Journal of translational medicine 2019 17(1) 172 Similar articles in PubMed
[Challenges of screening germline predispositions in children]. Manabe Atsushi et al. [Rinsho ketsueki] The Japanese journal of clinical hematology 2020 61(6) 682-686 Similar articles in PubMed
Dynamic-informed consent: A potential solution for ethical dilemmas in population sequencing initiatives. Dankar Fida K et al. Computational and structural biotechnology journal 2020 18913-921 Similar articles in PubMed
Genetic testing for neurodegenerative diseases: Ethical and health communication challenges. Roberts J Scott et al. Neurobiology of disease 2020 Apr 104871 Similar articles in PubMed
Budgets versus Bans: How U.S. Law Restricts Germline Gene Editing. Johnston Josephine et al. The Hastings Center report 2020 Mar 50(2) 4-5 Similar articles in PubMed
Why NIPT should be publicly funded. Bunnik Eline Maria et al. Journal of medical ethics 2020 Apr Similar articles in PubMed
[A consensus on the standardization of the next generation sequencing process for the diagnosis of genetic diseases (1) - Procedures prior to genetic testing]. Wang Jian et al. Zhonghua yi xue yi chuan xue za zhi = Zhonghua yixue yichuanxue zazhi = Chinese journal of medical genetics 2020 Mar 37(3) 334-338 Similar articles in PubMed
[A consensus on the standardization of the next generation sequencing process for the diagnosis of genetic diseases (4) - Report interpretation and genetic counseling]. Huang Hui et al. Zhonghua yi xue yi chuan xue za zhi = Zhonghua yixue yichuanxue zazhi = Chinese journal of medical genetics 2020 Mar 37(3) 352-357 Similar articles in PubMed
User-focused data sharing agreements: a foundation for the genomic future. Petersen Carolyn et al. JAMIA open 2019 Dec 2(4) 402-406 Similar articles in PubMed
User-focused data sharing agreements: a foundation for the genomic future. Petersen Carolyn et al. JAMIA open 2019 Dec 2(4) 402-406 Similar articles in PubMed
User-focused data sharing agreements: a foundation for the genomic future. Petersen Carolyn et al. JAMIA open 2019 Dec 2(4) 402-406 Similar articles in PubMed
User-focused data sharing agreements: a foundation for the genomic future. Petersen Carolyn et al. JAMIA open 2019 Dec 2(4) 402-406 Similar articles in PubMed