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Genomics and Precision Health Database


Genomics & Health Impact Scan Database|Search|PHGKB
Last data update: Sep 16, 2019. (Total: 25321 Documents since 2012)
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Records 1-40 (of 40 Record(s))
Query Trace: All HLBS[orginal query]>>Ethical, Legal and Social Issues (ELSI)[Category]
Publication
The Anticipatory Politics of Improving Childhood Survival for Sickle Cell Disease.
Jae Gina et al. Science, technology & human values 2018 Nov 43(6) 1122-1141
Turning Diversity Toward Precision.
Lin Pei-Ying et al. Journal of the National Cancer Institute 2017 Jan 109(1) 1-2
The preimplantation genetic testing debate continues: first the hype, then the tension, now the hypertension?
Patounakis George et al. Fertility and sterility 2019 May
A justice-based argument for including sickle cell disease in CRISPR/Cas9 clinical research.
Baffoe-Bonnie Marilyn S et al. Bioethics 2019 May
FDA backs clinician-free AI imaging diagnostic tools.
Ratner Mark et al. Nature biotechnology 2018 36(8) 673-674
A CRISPR focus on attitudes and beliefs toward somatic genome editing from stakeholders within the sickle cell disease community.
Persaud Anitra et al. Genetics in medicine : official journal of the American College of Medical Genetics 2018 Dec
Ethical conundrums in pediatric genomics.
Rotz Seth J et al. Hematology. American Society of Hematology. Education Program 2018 Nov 2018(1) 301-306
FDA takes new action to advance the development of reliable and beneficial genetic tests that can improve patient care
FDA Press Release, December 4, 2018
The "African gene" theory: it is time to stop teaching and promoting the slavery hypertension hypothesis.
Lujan Heidi L et al. Advances in physiology education 2018 42(3) 412-416
Use the patent system to regulate gene editing.
Parthasarathy Shobita, et al. Nature 2018 0 0. (7728) 486-488
ETHICS EVALUATION REVEALING DECISION-MAKER MOTIVES: A CASE OF NEONATAL SCREENING.
Raimond Véronique et al. International journal of technology assessment in health care 2018 Jan 34(2) 189-195
Ethical Issues in Contemporary Clinical Genetics.
Braverman Genna et al. Mayo Clinic proceedings. Innovations, quality & outcomes 2018 Jun 2(2) 81-90
Equitable CF care as a basic human right.
De Boeck Kris et al. Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society 2016 15(6) 703-704
Effort to Diversify Medical Research Raises Thorny Questions of Race
M Miller, Scientific American, August 10, 2018
Broad societal debate should inform the use of genome editing in reproduction
S Griffin, BMJ, July 23, 2018
FDA Issues Set of Gene Therapy Draft Guidances
Global Genes, July 11, 2018
When you have a serious hereditary disease, who has a right to know
S Raviv, Mosaic, Wellcome, July 11, 2018
Are Payers Ready To Address The Financial Challenges Associated With Gene Therapy?
Health Affairs Blog, June 28, 2018
FDA plans to speed path to approval for some gene therapies, starting with hemophilia
I. Swetlitz, StatNews, May 22, 2018
Opinion: No, FDA Didn’t Really Approve BRCA Test-Rather, the breast cancer mutation screen was classified as a type of medical device with obligations for the company to reduce risks to customers.
C Janssens, The Scientist, Mar 19, 2018
Inherited blood disorders, genetic risk and global public health: framing 'birth defects' as preventable in India.
Chattoo Sangeeta et al. Anthropology & medicine 2018 Apr 25(1) 30-49
A search for insomnia genes involving 1.3 million people is the largest genetic study ever
A Regalado, MIT Tech Review, Feb 2,2018
Epistemology, Ethics, and Progress in Precision Medicine.
Hey Spencer Phillips et al. Perspectives in biology and medicine 2016 59(3) 293-310
Gene Patents in Canada: Is There a New Legal Landscape?
Bonter Katherine L et al. Molecular diagnosis & therapy 2017 Dec
First-In-Human Phase 1 CRISPR Gene Editing Cancer Trials: Are We Ready?
Baylis Francoise et al. Current gene therapy 2017 Nov
Navigating social and ethical challenges of biobanking for human microbiome research.
Chuong Kim H et al. BMC medical ethics 2017 Jan 18(1) 1
The Benefits and Challenges of Preconsent in a Multisite, Pediatric Sickle Cell Intervention Trial.
Nimmer Mark et al. Pediatric blood & cancer 2016 Sep 63(9) 1649-52
Ethical considerations in genomic testing for hematologic disorders.
Marron Jonathan M et al. Blood 2017 Jun
Gene patents still alive and kicking: their impact on provision of genetic testing for long QT syndrome in the Canadian public health-care system.
Ali-Khan Sarah E et al. Genetics in medicine : official journal of the American College of Medical Genetics 2017 May
Health and genetic ancestry testing: time to bridge the gap.
Smart Andrew et al. BMC medical genomics 2017 Jan 10(1) 3
Informed choice and decision making in women offered cell-free DNA prenatal genetic screening.
Lo Tsz-Kin et al. Prenatal diagnosis 2016 Dec
Combating Racial Health Disparities Through Medical Education: The Need for Anthropological and Genetic Perspectives in Medical Training.
Bolnick Deborah A et al. Human biology 2015 Oct 87(4) 361-371
Privacy: The myth of anonymity.
Savage Neil et al. Nature 2016 537(7619) S70-2
Genetic discrimination lawsuit raises broader concerns about testing, privacy: Case involves middle school student impacted by results of genetic screening test as newborn.
et al. American journal of medical genetics. Part A 2016 May 170(5) 1111-2
Recent patents and technology transfer for molecular diagnosis of β-thalassemia and other hemoglobinopathies.
Breveglieri Giulia et al. Expert opinion on therapeutic patents 2015 Sep 1-24
The gene patent controversy on Twitter: a case study of Twitter users' responses to the CHEO lawsuit against Long QT gene patents.
Du Li et al. BMC Med Ethics 2015 1655
Feasibility of an Assessment Tool for Children's Competence to Consent to Predictive Genetic Testing: a Pilot Study.
Hein Irma M et al. J Genet Couns 2015 Apr 26.
The intersection of relational autonomy and narrative ethics for the patient unwilling to disclose genetic diagnosis information.
Gallagher Michael et al. Life Sci Soc Policy 2014 Dec 10(1) 7
Ethics, genetics and public policies in Uruguay: newborn and infant screening as a paradigm.
Larrandaburu Mariela et al. J Community Genet 2015 May 29.
Whole-genome sequencing in critically ill infants and emerging ethical challenges.
Char Danton S et al. Lancet Respir Med 2015 Apr 27.
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