Genomics and Precision Health Database

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Query Trace: All HLBS[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]

Publication
Psychological Impact of NBS for CF. Chudleigh Jane et al. International journal of neonatal screening 2020 Jun 6(2) 27 Similar articles in PubMed
Constructing a Bioethical Framework to Evaluate and Optimise Newborn Bloodspot Screening for Cystic Fibrosis. Armstrong Rachael E et al. International journal of neonatal screening 2020 Jun 6(2) 40 Similar articles in PubMed
The Meaning of Informed Consent: Genome Editing Clinical Trials for Sickle Cell Disease. Desine Stacy et al. AJOB empirical bioethics 2020 Oct 1-13 Similar articles in PubMed
When Actions Speak Louder Than Words - Racism and Sickle Cell Disease. Power-Hays Alexandra et al. The New England journal of medicine 2020 Sep Similar articles in PubMed
The next chapter for African genomics. Maxmen Amy et al. Nature 2020 578(7795) 350-354 Similar articles in PubMed
How digital tools can advance quality and equity in genomic medicine. Bombard Yvonne et al. Nature reviews. Genetics 2020 Jun Similar articles in PubMed
The care of patients with Duchenne, Becker and other muscular dystrophies in the COVID-19 pandemic. Veerapandiyan Aravindhan et al. Muscle & nerve 2020 Apr Similar articles in PubMed
Biobanking for Genomic and Personalized Health Research: Participant Perceptions and Preferences. Barnes Rebecca et al. Biopreservation and biobanking 2020 Apr Similar articles in PubMed
Disparities, Uncertainties and Societal Cost: Precision Medicine and Transthyretin Amyloidosis. Hauptman Paul J et al. The American journal of medicine 2020 Apr Similar articles in PubMed
Screening Human Embryos for Polygenic Traits Has Limited Utility. Karavani Ehud et al. Cell 2019 Nov 179(6) 1424-1435.e8 Similar articles in PubMed
Preferences for Return of Genetic Results among Participants in the Jackson and Framingham Heart Studies. Joffe Steven et al. Circulation. Genomic and precision medicine 2019 Nov Similar articles in PubMed
Does genetics matter for disease-related stigma? The impact of genetic attribution on stigma associated with rheumatic heart disease in the Western Cape, South Africa. Faure Marlyn C et al. Social science & medicine (1982) 2019 Dec 243112619 Similar articles in PubMed
Why using genetic risk scores on embryos is wrong E Birney blog, November 11, 2019
NIH Director Backs Moratorium for Heritable Genome Editing Gen News, November 8, 2019
Establishing a Multi-Country Sickle Cell Disease Registry in Africa: Ethical Considerations. Munung Nchangwi Syntia et al. Frontiers in genetics 2019 10943 Similar articles in PubMed
To Join Or Not To Join? A Case Of Sickle Cell Clubs, Stigma And Discrimination In Secondary Schools In Butambala District, Uganda. Tusuubira Sharifu K et al. Adolescent health, medicine and therapeutics 2019 10145-152 Similar articles in PubMed
The Anticipatory Politics of Improving Childhood Survival for Sickle Cell Disease. Jae Gina et al. Science, technology & human values 2018 Nov 43(6) 1122-1141 Similar articles in PubMed
How Do We Stop Genetic Medicine From Perpetuating Inequality? E Amsen, the WIRE, August 2019
Is Genetic Medicine Making the World Less Fair? L Hercher, the Nation, August 23, 2019
Why home DNA tests might not be as private as you think C Fox, World Economic Forum, August 9, 2019
Exploring the Role of Shared Decision Making in the Consent Process for Pediatric Genomics Research in Cameroon, Tanzania, and Ghana. Bukini Daima et al. AJOB empirical bioethics 10(3) 182-189 Similar articles in PubMed
Genetic Testing: Who Owns Your Data? Being Patient, August 2, 2019
Genetic-Testing Scam Targets Seniors And Rips Off Medicare M Bailey, KHN News, July 31, 2019
Did CRISPR help - or harm - the first-ever gene-edited babies? J Cohen, Science, August 1, 2019
Bioethicists worried patients couldn?t handle their own genetic testing results. They were (mostly) wrong E Parens et al, Stat News, July 30, 2019
What You Should Know About Insurance Before You Have Genetic Testing E Matloff, Forbes, June 25, 2019
Putting diversity front and center P Ganguly, NHGRI, June 19, 2019
Turning Diversity Toward Precision. Lin Pei-Ying et al. Journal of the National Cancer Institute 2017 Jan 109(1) 1-2 Similar articles in PubMed
The preimplantation genetic testing debate continues: first the hype, then the tension, now the hypertension? Patounakis George et al. Fertility and sterility 2019 May Similar articles in PubMed
Good Intentions Gone Bad. Reza Nosheen et al. Circulation. Genomic and precision medicine 2019 May 12(5) e002560 Similar articles in PubMed