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Public Health Genomics and Precision Health Knowledge Base (v9.0)
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Precision Health Database|Search|Public Health Genomics and Precision Health Knowledge Base (PHGKB)
Last data update: Apr 17, 2024
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Genetic counseling[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
The ethics of polygenic scores in psychiatry: minefield or opportunity for patient-centered psychiatry?
Roel H P Wouters et al. Psychiatr Genet 2024 34(2) 31-36
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Conducting inclusive research in genetics for transgender, gender-diverse, and sex-diverse individuals: Case analyses and recommendations from a clinical genomics study.
Harris T Bland et al. J Genet Couns 2023
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Project Inclusive Genetics: Protecting reproductive autonomy from bias via prenatal patient-centered counseling.
Apolline Jungels et al. HGG Adv 2023 4(4) 100228
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Legal approaches to risk of harm in genetic counseling: perspectives from Quebec and Qatar.
Dimitri Patrinos et al. Front Genet 2023 141190421
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Defining critical educational components of informed consent for genetic testing: views of US-based genetic counselors and medical geneticists.
Miranda L G Hallquist et al. Eur J Hum Genet 2023
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A balancing act: Non-directive communication, risk perceptions, and meeting patient needs in genetic counseling: A South African case study.
Megan Scott et al. J Genet Couns 2023
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Unraveling non-participation in genomic research: A complex interplay of barriers, facilitators, and sociocultural factors.
Allyn McConkie-Rosell et al. Journal of genetic counseling 2023
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"We've Opened Pandora's Box, Haven't We?" Clinical Geneticists' Views on Ethical Aspects of Genomic Testing in Neonatal Intensive Care.
T Arsov et al. Balkan journal of medical genetics : BJMG 2023 25(1) 5-12
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Perceived social support: A study of genetic counseling graduate students in the United States (US) and Canada.
Sierra Clark et al. Journal of genetic counseling 2023
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Attitudes and beliefs regarding race-targeted genetic testing of Black people: A systematic review.
Iltis Ana S et al. Journal of genetic counseling 2023
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How should we address the inevitable harms from non-negligent variant reclassification in predictive genetic testing?
Rashkin Misha et al. Journal of genetic counseling 2022
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Australian healthcare professionals' perspectives on the ethical and practical issues associated with genomic newborn screening.
Cao Michelle et al. Journal of genetic counseling 2022
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The Directiveness that Dare Not Speak Its Name. Views and Attitudes of Polish Clinical Geneticists toward the Nondirectiveness Principle.
Chanska Weronika et al. Journal of bioethical inquiry 2022
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The goldilocks conundrum: Disclosing discrimination risks in informed consent.
Prince Anya E R et al. Journal of genetic counseling 2022
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Impact of the Access to Genetic Counselor Services Act.
Nowlen Carol et al. Delaware journal of public health 2022 7(5) 40-41
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Diversity training experiences and factors associated with implicit racial bias among recent genetic counselor graduates of accredited programs in the United States and Canada.
Pollock Bethany et al. Journal of genetic counseling 2022
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Moral distress in genetic counseling: A study of North American genetic counselors.
Wadman Erin et al. Journal of genetic counseling 2022
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Advocating for equitable management of hereditary cancer syndromes.
Caffrey Rikki Gaber et al. Journal of genetic counseling 2022
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Defining the Critical Components of Informed Consent for Genetic Testing.
Ormond Kelly E et al. Journal of personalized medicine 2021 11(12)
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[A review on the status quo and implementation methods of ethics education in standardized training for resident doctors in medical genetics department].
Zhang Zhu et al. Zhonghua yi xue yi chuan xue za zhi = Zhonghua yixue yichuanxue zazhi = Chinese journal of medical genetics 2021 38(11) 1037-1040
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An ethical analysis of divergent clinical approaches to the application of genetic testing for autism and schizophrenia.
Morris E et al. Human genetics 2021
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Offering preimplantation genetic testing for monogenic disorders (PGT-M) for conditions with reduced penetrance or variants of uncertain significance: Ethical insight from U.S. laboratory genetic counselors.
Porto Anthony et al. Journal of genetic counseling 2021
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Ethical and moral perspectives of individuals who considered/used preimplantation (embryo) genetic testing.
Zhang Jiahui et al. Journal of genetic counseling 2021
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Unraveling the Ethical, Legal, and Social Implications of Neurobiobanking and Stroke Genomic Research in Africa: A Study Protocol of the African Neurobiobank for Precision Stroke Medicine ELSI Project.
Akinyemi Rufus O et al. International journal of qualitative methods 2020 19
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Easing the burden of multi-state genetic counseling licensure in the United States: Process, pitfalls, and possible solutions.
Tschirgi Matthew L et al. Journal of genetic counseling 2021
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Genetic discrimination views in online discussion forums: Perspectives from Canadian forumites.
Dalpé Gratien et al. Journal of genetic counseling 2021
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Genetic Testing in Natural History Studies: A Review of the Regulatory and Legal Landscape.
Bevan Andrew et al. Public health genomics 2021 1-14
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Preparing genetic counselors to serve Native American communities.
Freeman Abigail A et al. Journal of genetic counseling 2021
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Talking to policy makers about genetic counseling: A personal reflection.
Bishop Michelle et al. Journal of genetic counseling 2020 Dec
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Understanding Medical Mistrust in Black Women at Risk of BRCA 1/2 Mutations.
Sutton Arnethea L et al. Journal of health disparities research and practice 2019 12(3) 35-47
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Page last reviewed:
Feb 1, 2024
Page last updated:
Apr 17, 2024
Content source:
Public Health Genomics Branch in the Division of Blood Disorders and Public Health Genomics
,
National Center on Birth Defects and Developmental Disabilities
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