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Public Health Genomics and Precision Health Knowledge Base (v7.3)
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Records 1-30 (of 42 Record(s))
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Gene therapy[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
Publication
Primum Non Nocere: Should Gene Therapy be Used to Prevent Potentially Fatal Disease but Enable Potentially Destructive Behavior?
Crystal Ronald G et al. Human gene therapy 2021
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Gene therapy companies have an ethical obligation to develop expanded access policies.
Kearns Lisa et al. Molecular therapy : the journal of the American Society of Gene Therapy 2021
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Development and Use of Gene Therapy Orphan Drugs-Ethical Needs for a Broader Cooperation Between the Pharmaceutical Industry and Society.
Kerpel-Fronius Sandor et al. Frontiers in medicine 2020 7608249
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Systemic Modelling in Bioethics.
Stoeklé Henri-Corto et al. The New bioethics : a multidisciplinary journal of biotechnology and the body 2020 Jul 1-13
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The Use and Misuse of Brave New World in the CRISPR Debate.
So Derek et al. The CRISPR journal 2019 2(5) 316-323
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THE GORDON WILSON LECTURE: THE ETHICS OF HUMAN GENOME EDITING.
Coller Barry S et al. Transactions of the American Clinical and Climatological Association 2020 13199-118
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FDA orphan drug designations for lysosomal storage disorders - a cross-sectional analysis.
Garbade Sven F et al. PloS one 2020 15(4) e0230898
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Variability in Genome Editing Outcomes: Challenges for Research Reproducibility and Clinical Safety.
Teboul Lydia et al. Molecular therapy : the journal of the American Society of Gene Therapy 2020 Mar
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A Need for Better Understanding Is the Major Determinant for Public Perceptions of Human Gene Editing.
McCaughey Tristan et al. Human gene therapy 2019 30(1) 36-43
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The special considerations of gene therapy for mitochondrial diseases.
Slone Jesse et al. NPJ genomic medicine 2020 57
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The special considerations of gene therapy for mitochondrial diseases
J Slone et al, NPJ Genomic Medicine, March 2, 2020
NIH Director Backs Moratorium for Heritable Genome Editing
Gen News, November 8, 2019
Human Germline Genome Editing: An Assessment.
Greely Henry T et al. The CRISPR journal 2019 Oct 2(5) 253-265
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Important Considerations in Modeling the Cost-Effectiveness for the First Food and Drug Administration-Approved Gene Therapy and Implications for Future One-Time Therapies.
Buessing Marric et al. Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research 2019 Aug 22(8) 970-971
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Analytic Considerations in Applying a General Economic Evaluation Reference Case to Gene Therapy.
Drummond Michael F et al. Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research 2019 22(6) 661-668
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Principles of and strategies for germline gene therapy.
Wolf Don P et al. Nature medicine 2019 25(6) 890-897
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Getting serious about the challenge of regulating germline gene therapy.
Caplan Arthur, et al. PLoS biology 2019 4 0. (4) e3000223
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Gene Therapy Leaders Push for Germline Editing Moratorium
Clinical Omics, April 24, 2019
Moving towards a cure in genetics: what is needed to bring somatic gene therapy to the clinic?
Cornel Martina C, et al. European journal of human genetics : EJHG 2019 3 0. (3) 484-487
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CRISPR/Cas9 gene-editing: Research technologies, clinical applications and ethical considerations.
Memi Fani et al. Seminars in perinatology 2018 Oct
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Innovation for rare diseases and bioethical concerns: A thin thread between medical progress and suffering.
Tommasini Alberto et al. World journal of clinical pediatrics 2018 Aug 7(3) 75-82
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FDA rejects Akcea rare-disease drug that uses gene-blocking technology
K Sheridan, Stat News, August 27, 2018
Broad societal debate should inform the use of genome editing in reproduction
S Griffin, BMJ, July 23, 2018
FDA Issues Set of Gene Therapy Draft Guidances
Global Genes, July 11, 2018
When you have a serious hereditary disease, who has a right to know
S Raviv, Mosaic, Wellcome, July 11, 2018
Are Payers Ready To Address The Financial Challenges Associated With Gene Therapy?
Health Affairs Blog, June 28, 2018
Scott Gottlieb Expects the FDA to Approve 40 Gene Therapies by 2022
F Holme, Frontline Genomics, June 8, 2018
FDA plans to speed path to approval for some gene therapies, starting with hemophilia
I. Swetlitz, StatNews, May 22, 2018
Gene therapy for inherited blindness sets precedent: $850,000 price tag
Washington Post, Jan 3, 2018
An Appreciation of The Gene: An Intimate History by Siddhartha Mukherjee and a Call for Expanded Training in the Responsible Conduct of Research .
Morris Evan D et al. The Yale journal of biology and medicine 2017 Dec 90(4) 661-665
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Page last updated:
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