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Precision Health Database


Genomics & Health Impact Scan Database|Search|PHGKB

Last data update: Jun 28, 2022. (Total: 47943 Documents since 2012)
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Query Trace: Education[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
Governance of Heritable Human Gene Editing World-Wide and Beyond.
Xue Yang et al. International journal of environmental research and public health 2022 19(11)
Responsible governance of human germline genome editing in China.
Peng Yaojin et al. Biology of reproduction 2022
Integrating Ethics and Career Futures with Technical Learning to Promote AI Literacy for Middle School Students: An Exploratory Study.
Zhang Helen et al. International journal of artificial intelligence in education 2022 1-35
The Disruption of Trust in the Digital Transformation Leading to Health 4.0.
Guckert Michael et al. Frontiers in digital health 2022 4815573
Prevalence and prediction of medical distrust in a diverse medical genomic research sample.
Angelo Frank et al. Genetics in medicine : official journal of the American College of Medical Genetics 2022
Defining AMIA's artificial intelligence principles.
Solomonides Anthony E et al. Journal of the American Medical Informatics Association : JAMIA 2022
Genetic Testing for Rare Diseases: A Systematic Review of Ethical Aspects.
Kruse Judith et al. Frontiers in genetics 2022 12701988
Informed consent, genomic research and mental health: A integrative review.
Kilkku Nina et al. Nursing ethics 2022 9697330211066573
A global perspective on embryological and fetal collections: Where to from here?
El-Haddad Joyce et al. Anatomical record (Hoboken, N.J. : 2007) 2022
Who's afraid of genetic tests?: An assessment of Singapore's public attitudes and changes in attitudes after taking a genetic test.
Cheung Ross et al. BMC medical ethics 2022 23(1) 5
How do Hispanics/Latinos Perceive and Value the Return of Research Results?
Canedo Juan R et al. Hispanic health care international : the official journal of the National Association of Hispanic Nurses 2022 15404153211070821
CCR5 and Biological Complexity: The Need for Data Integration and Educational Materials to Address Genetic/Biological Reductionism at the Interface of Ethical, Legal, and Social Implications.
Bauss Jacob et al. Frontiers in immunology 2021 12790041
Perspectives on Genetic Research: Results From a Survey of Navajo Community Members.
Claw Katrina G et al. Frontiers in genetics 2021 12734529
Qualitative study of GPs' views and experiences of population-based preconception expanded carrier screening in the Netherlands: bioethical perspectives.
Morberg Jämterud Sofia et al. BMJ open 2021 11(12) e056869
[A review on the status quo and implementation methods of ethics education in standardized training for resident doctors in medical genetics department].
Zhang Zhu et al. Zhonghua yi xue yi chuan xue za zhi = Zhonghua yixue yichuanxue zazhi = Chinese journal of medical genetics 2021 38(11) 1037-1040
A scoping review of case law relating to support and treatment for people with Prader-Willi Syndrome.
Murray Anna et al. International journal of law and psychiatry 2021 78101733
Australian human research ethics committee members' confidence in reviewing genomic research applications.
Pysar Ryan et al. European journal of human genetics : EJHG 2021
Attitudes of Indonesian Medical Doctors and Medical Students Toward Genome Editing.
Izzah Safira Nur et al. Journal of multidisciplinary healthcare 2021 141017-1027
African American Nurses' Perspectives on Genomic Medicine Research.
Hendricks-Sturrup Rachele M et al. AMA journal of ethics 2021 23(3) E240-251
Preparing genetic counselors to serve Native American communities.
Freeman Abigail A et al. Journal of genetic counseling 2021
Barriers and strategies to integrate medical genetics and primary care in underserved populations: a scoping review.
Chou Ann F et al. Journal of community genetics 2021 Feb
Ethical Aspects of Genotype Disclosure: Perceptions of Participants in a Nutrigenetic Study in Finland.
De Suchetana et al. Public health genomics 2021 Jan 1-11
Feasibility and acceptability of early infant screening for sickle cell disease in Lagos, Nigeria-A pilot study.
Oluwole Esther O et al. PloS one 2020 15(12) e0242861
Informed consent for genetic testing in hematology.
Marron Jonathan M et al. Hematology. American Society of Hematology. Education Program 2020 2020(1) 213-218
"Who is watching the watchdog?": ethical perspectives of sharing health-related data for precision medicine in Singapore.
Lysaght Tamra et al. BMC medical ethics 2020 Nov 21(1) 118
THE FUTURE OF MEDICINE, healthcare innovation through precision medicine: policy case study of Qatar.
Qoronfleh M Walid et al. Life sciences, society and policy 2020 Nov 16(1) 12
Regulatory landscape of providing information on newborn screening to parents across Europe.
Franková Vera et al. European journal of human genetics : EJHG 2020 Oct
Ethical and regulatory issues in human gene editing: Chinese perspective.
Lei Ruipeng et al. Biotechnology and applied biochemistry 2020 Oct
Understanding Medical Mistrust in Black Women at Risk of BRCA 1/2 Mutations.
Sutton Arnethea L et al. Journal of health disparities research and practice 2019 12(3) 35-47
Survey of palliative care providers' needs, perceived roles, and ethical concerns about addressing cancer family history at the end of life.
Cléophat Jude E et al. Palliative & supportive care 2020 Aug 1-6
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