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Precision Health Database


Genomics & Health Impact Scan Database|Search|PHGKB

Last data update: Oct 18, 2021. (Total: 42873 Documents since 2012)
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Query Trace: Education[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
A scoping review of case law relating to support and treatment for people with Prader-Willi Syndrome.
Murray Anna et al. International journal of law and psychiatry 2021 78101733
Australian human research ethics committee members' confidence in reviewing genomic research applications.
Pysar Ryan et al. European journal of human genetics : EJHG 2021
Attitudes of Indonesian Medical Doctors and Medical Students Toward Genome Editing.
Izzah Safira Nur et al. Journal of multidisciplinary healthcare 2021 141017-1027
African American Nurses' Perspectives on Genomic Medicine Research.
Hendricks-Sturrup Rachele M et al. AMA journal of ethics 2021 23(3) E240-251
Preparing genetic counselors to serve Native American communities.
Freeman Abigail A et al. Journal of genetic counseling 2021
Barriers and strategies to integrate medical genetics and primary care in underserved populations: a scoping review.
Chou Ann F et al. Journal of community genetics 2021 Feb
Ethical Aspects of Genotype Disclosure: Perceptions of Participants in a Nutrigenetic Study in Finland.
De Suchetana et al. Public health genomics 2021 Jan 1-11
Feasibility and acceptability of early infant screening for sickle cell disease in Lagos, Nigeria-A pilot study.
Oluwole Esther O et al. PloS one 2020 15(12) e0242861
Informed consent for genetic testing in hematology.
Marron Jonathan M et al. Hematology. American Society of Hematology. Education Program 2020 2020(1) 213-218
"Who is watching the watchdog?": ethical perspectives of sharing health-related data for precision medicine in Singapore.
Lysaght Tamra et al. BMC medical ethics 2020 Nov 21(1) 118
THE FUTURE OF MEDICINE, healthcare innovation through precision medicine: policy case study of Qatar.
Qoronfleh M Walid et al. Life sciences, society and policy 2020 Nov 16(1) 12
Regulatory landscape of providing information on newborn screening to parents across Europe.
Franková Vera et al. European journal of human genetics : EJHG 2020 Oct
Ethical and regulatory issues in human gene editing: Chinese perspective.
Lei Ruipeng et al. Biotechnology and applied biochemistry 2020 Oct
Understanding Medical Mistrust in Black Women at Risk of BRCA 1/2 Mutations.
Sutton Arnethea L et al. Journal of health disparities research and practice 2019 12(3) 35-47
Survey of palliative care providers' needs, perceived roles, and ethical concerns about addressing cancer family history at the end of life.
Cléophat Jude E et al. Palliative & supportive care 2020 Aug 1-6
Public engagement with genomic medicine: a summary of town hall discussions.
Etchegary Holly et al. Journal of community genetics 2020 Aug
Human Genetics Society of Australasia Position Statement: Online DNA Testing.
Savard Jacqueline et al. Twin research and human genetics : the official journal of the International Society for Twin Studies 2020 Aug 1-3
Genetics experience impacts attitudes towards germline gene editing: a survey of over 1500 members of the public.
Jedwab Abbie et al. Journal of human genetics 2020 Jul
Factors associated with participation by African Americans in a study of the genetics of glaucoma.
Parikh Rupin et al. Ethnicity & health 2019 24(6) 694-704
Genetic testing for neurodegenerative diseases: Ethical and health communication challenges.
Roberts J Scott et al. Neurobiology of disease 2020 Apr 104871
Attitudes towards genetic testing and information: does parenthood shape the views?
Saastamoinen Antti et al. Journal of community genetics 2020 Apr
Genetic Exceptionalism and Precision Health Promotion.
Terry Paul E et al. American journal of health promotion : AJHP 2020 Mar 890117120908806
"My Research Is Their Business, but I'm Not Their Business": Patient and Clinician Perspectives on Commercialization of Precision Oncology Data.
Spector-Bagdady Kayte et al. The oncologist 2020 Mar
'It's much more grey than black and white': clinical geneticists' views on the oversight of consumer genomics in Europe.
Kalokairinou Louiza et al. Personalized medicine 2020 Mar
Disclosure to genetic relatives without consent - Australian genetic professionals' awareness of the health privacy law.
Meggiolaro Natalia et al. BMC medical ethics 2020 Feb 21(1) 13
Reexamining the Ethics of Human Germline Editing in the Wake of Scandal.
Meagher Karen M et al. Mayo Clinic proceedings 2020 Feb 95(2) 330-338
African American mothers' attitudes towards genetic testing in the InterGEN study.
Wright Michelle L et al. Journal of community genetics 2019 Dec
Willingness of women to participate in obstetrical and pediatric research involving biobanks.
Savich Renate D et al. Journal of community genetics 2019 Nov
Preferences for Return of Genetic Results among Participants in the Jackson and Framingham Heart Studies.
Joffe Steven et al. Circulation. Genomic and precision medicine 2019 Nov
"I didn't have anything to decide, I wanted to help my kids"-An interview-based study of consent procedures for sampling human biological material for genetic research in rural Pakistan.
Kongsholm Nana Cecilie Halmsted et al. AJOB empirical bioethics 9(3) 113-127
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