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Public Health Genomics and Precision Health Knowledge Base (v7.8)
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Last data update: Jun 28, 2022
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Education[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
Governance of Heritable Human Gene Editing World-Wide and Beyond.
Xue Yang et al. International journal of environmental research and public health 2022 19(11)
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Responsible governance of human germline genome editing in China.
Peng Yaojin et al. Biology of reproduction 2022
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Integrating Ethics and Career Futures with Technical Learning to Promote AI Literacy for Middle School Students: An Exploratory Study.
Zhang Helen et al. International journal of artificial intelligence in education 2022 1-35
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The Disruption of Trust in the Digital Transformation Leading to Health 4.0.
Guckert Michael et al. Frontiers in digital health 2022 4815573
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Prevalence and prediction of medical distrust in a diverse medical genomic research sample.
Angelo Frank et al. Genetics in medicine : official journal of the American College of Medical Genetics 2022
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Defining AMIA's artificial intelligence principles.
Solomonides Anthony E et al. Journal of the American Medical Informatics Association : JAMIA 2022
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Genetic Testing for Rare Diseases: A Systematic Review of Ethical Aspects.
Kruse Judith et al. Frontiers in genetics 2022 12701988
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Informed consent, genomic research and mental health: A integrative review.
Kilkku Nina et al. Nursing ethics 2022 9697330211066573
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A global perspective on embryological and fetal collections: Where to from here?
El-Haddad Joyce et al. Anatomical record (Hoboken, N.J. : 2007) 2022
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Who's afraid of genetic tests?: An assessment of Singapore's public attitudes and changes in attitudes after taking a genetic test.
Cheung Ross et al. BMC medical ethics 2022 23(1) 5
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How do Hispanics/Latinos Perceive and Value the Return of Research Results?
Canedo Juan R et al. Hispanic health care international : the official journal of the National Association of Hispanic Nurses 2022 15404153211070821
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CCR5 and Biological Complexity: The Need for Data Integration and Educational Materials to Address Genetic/Biological Reductionism at the Interface of Ethical, Legal, and Social Implications.
Bauss Jacob et al. Frontiers in immunology 2021 12790041
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Perspectives on Genetic Research: Results From a Survey of Navajo Community Members.
Claw Katrina G et al. Frontiers in genetics 2021 12734529
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Qualitative study of GPs' views and experiences of population-based preconception expanded carrier screening in the Netherlands: bioethical perspectives.
Morberg Jämterud Sofia et al. BMJ open 2021 11(12) e056869
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[A review on the status quo and implementation methods of ethics education in standardized training for resident doctors in medical genetics department].
Zhang Zhu et al. Zhonghua yi xue yi chuan xue za zhi = Zhonghua yixue yichuanxue zazhi = Chinese journal of medical genetics 2021 38(11) 1037-1040
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A scoping review of case law relating to support and treatment for people with Prader-Willi Syndrome.
Murray Anna et al. International journal of law and psychiatry 2021 78101733
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Australian human research ethics committee members' confidence in reviewing genomic research applications.
Pysar Ryan et al. European journal of human genetics : EJHG 2021
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Attitudes of Indonesian Medical Doctors and Medical Students Toward Genome Editing.
Izzah Safira Nur et al. Journal of multidisciplinary healthcare 2021 141017-1027
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African American Nurses' Perspectives on Genomic Medicine Research.
Hendricks-Sturrup Rachele M et al. AMA journal of ethics 2021 23(3) E240-251
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Preparing genetic counselors to serve Native American communities.
Freeman Abigail A et al. Journal of genetic counseling 2021
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Barriers and strategies to integrate medical genetics and primary care in underserved populations: a scoping review.
Chou Ann F et al. Journal of community genetics 2021 Feb
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Ethical Aspects of Genotype Disclosure: Perceptions of Participants in a Nutrigenetic Study in Finland.
De Suchetana et al. Public health genomics 2021 Jan 1-11
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Feasibility and acceptability of early infant screening for sickle cell disease in Lagos, Nigeria-A pilot study.
Oluwole Esther O et al. PloS one 2020 15(12) e0242861
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Informed consent for genetic testing in hematology.
Marron Jonathan M et al. Hematology. American Society of Hematology. Education Program 2020 2020(1) 213-218
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"Who is watching the watchdog?": ethical perspectives of sharing health-related data for precision medicine in Singapore.
Lysaght Tamra et al. BMC medical ethics 2020 Nov 21(1) 118
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THE FUTURE OF MEDICINE, healthcare innovation through precision medicine: policy case study of Qatar.
Qoronfleh M Walid et al. Life sciences, society and policy 2020 Nov 16(1) 12
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Regulatory landscape of providing information on newborn screening to parents across Europe.
Franková Vera et al. European journal of human genetics : EJHG 2020 Oct
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Ethical and regulatory issues in human gene editing: Chinese perspective.
Lei Ruipeng et al. Biotechnology and applied biochemistry 2020 Oct
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Understanding Medical Mistrust in Black Women at Risk of BRCA 1/2 Mutations.
Sutton Arnethea L et al. Journal of health disparities research and practice 2019 12(3) 35-47
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Survey of palliative care providers' needs, perceived roles, and ethical concerns about addressing cancer family history at the end of life.
Cléophat Jude E et al. Palliative & supportive care 2020 Aug 1-6
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Page last reviewed:
Oct 1, 2021
Page last updated:
Jun 28, 2022
Content source:
Office of Genomics and Precision Public Health
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