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Precision Health Database


Precision Health Database|Search|PHGKB

Last data update: Jun 05, 2023. (Total: 60081 Documents since 2012)
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Query Trace: Disparities[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
Partnering with First Nations in Northern British Columbia Canada to Reduce Inequity in Access to Genomic Research.
Nadine R Caron et al. Int J Environ Res Public Health 2023 20(10)
Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical Care.
Meghan C Halley et al. Am J Bioeth 2023 1-10
Addressing bias in artificial intelligence for public health surveillance.
Lidia Flores et al. J Med Ethics 2023
Embracing Diversity, Equity, and Inclusion in Genetics Textbooks and Testing
R Lewis, PLOS Blogs, April 2023
Clinical, technical, and environmental biases influencing equitable access to clinical genetics/genomics testing: A points to consider statement of the American College of Medical Genetics and Genomics (ACMG)
DR Matalon et al, Genetics in Medicine, April 14, 2023
Unraveling non-participation in genomic research: A complex interplay of barriers, facilitators, and sociocultural factors.
Allyn McConkie-Rosell et al. Journal of genetic counseling 2023
Equity implications of patient-initiated recontact and follow-up in clinical genetics
MP Mackley et al, EJHG, March 23, 2023
"Overestimated technology - underestimated consequences" - reflections on risks, ethical conflicts, and social disparities in the handling of non-invasive prenatal tests (NIPTs).
Marion Baldus et al. Medicine, health care, and philosophy 2023
2022 ASHG presidential address-One human race: Billions of genomes.
Charles N Rotimi et al. American journal of human genetics 2023 110(3) 398-401
On the report of the ASHG "Facing Our History-Building an Equitable Future" initiative.
et al. American journal of human genetics 2023 110(3) 375-376
Sources of bias in artificial intelligence that perpetuate healthcare disparities-A global review.
Leo Anthony Celi et al. PLOS digital health 2023 1(3) e0000022
Priorities to promote participant engagement in the Participant Engagement and Cancer Genome Sequencing (PE-CGS) Network.
Anne L R Schuster et al. Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology 2023
Health inequity in genomic personalized medicine in underrepresented populations: a look at the current evidence.
Sherouk M Tawfik et al. Functional & integrative genomics 2023 23(1) 54
Indigenous peoples and inclusion in clinical and genomic research: Understanding the history and navigating contemporary engagement.
Angela Waanders et al. Neoplasia (New York, N.Y.) 2023 37100879
STATEMENT American Society of Human Genetics Board of Directors On The Report of the ASHG Facing Our History – Building an Equitable Future Initiative
ASHG, January 23, 2023
Words matter: The language of difference in human genetics
MK Cho et al, Genetics in Medicine, December 15, 2022
Benefit sharing in genomic and biobanking research in Uganda: Perceptions of researchers and research ethics committee members.
Mwaka Erisa Sabakaki et al. Frontiers in genetics 2022 131037401
A scoping review of guidelines for the use of race, ethnicity, and ancestry reveals widespread consensus but also points of ongoing disagreement.
Mauro Madelyn et al. American journal of human genetics 2022
Epigenetic citizenship and political claims-making: the ethics of molecularizing structural racism.
Cerdeña Jessica P et al. BioSocieties 2022 1-24
Addressing racial disparities in surgical care with machine learning
J Halamka et al, NPJ Digital Medicine, September 30, 2022
Social and scientific motivations to move beyond groups in allele frequencies: The TOPMed experience.
Nelson Sarah C et al. American journal of human genetics 2022 109(9) 1582-1590
Artificial Intelligence-Augmented Propensity Score, Cost Effectiveness and Computational Ethical Analysis of Cardiac Arrest and Active Cancer with Novel Mortality Predictive Score.
Monlezun Dominique J et al. Medicina (Kaunas, Lithuania) 2022 58(8)
Ethical, Legal, and Financial Considerations of Artificial Intelligence in Surgery.
Morris Miranda X et al. The American surgeon 2022 31348221117042
Challenges and potential solutions to health disparities in genomic medicine.
Lee Sandra Soo-Jin et al. Cell 2022 185(12) 2007-2010
Evaluation and Mitigation of Racial Bias in Clinical Machine Learning Models: Scoping Review.
Huang Jonathan et al. JMIR medical informatics 2022 10(5) e36388
State legislative trends related to biomarker testing.
Sadigh Gelareh et al. Cancer 2022
Genomic supremacy: the harm of conflating genetic ancestry and race.
Cerdeña Jessica P et al. Human genomics 2022 16(1) 18
An ethical plan for including forcibly displaced persons in omics and digital technology research
F Taki et al, Nature Medicine,May 5, 2022
Risks and benefits of dermatological machine learning healthcare applications - an overview and ethical analysis.
Willem Theresa et al. Journal of the European Academy of Dermatology and Venereology : JEADV 2022
Getting genetic ancestry right for science and society.
Lewis Anna C F et al. Science (New York, N.Y.) 2022 376(6590) 250-252
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