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Public Health Genomics and Precision Health Knowledge Base (v9.0)
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Precision Health Database|Search|Public Health Genomics and Precision Health Knowledge Base (PHGKB)
Last data update: Mar 28, 2024
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Discrimination[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
Ethics of artificial intelligence in medicine.
Julian Savulescu et al. Singapore Med J 2024 65(3) 150-158
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What Legal Frameworks Should Govern Use of Genetic Test Results by Private Health Insurers in New Zealand?
Hanne Janes et al. J Law Med 2024 30(4) 862-883
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Ethical Aspects of Pediatric Genetic Care: Testing and Treatment.
Kelly E Ormond et al. Pediatr Clin North Am 2023 70(5) 1029-1046
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Fairness of artificial intelligence in healthcare: review and recommendations.
Daiju Ueda et al. Jpn J Radiol 2023
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Genetic discrimination by insurance companies in Aotearoa New Zealand: experiences and views of health professionals.
Harry Fraser et al. N Z Med J 2023 136(1574) 32-52
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Evolved Eugenics and Reinforcement of "Othering": Renewed Ethico-Legal Perspectives of Genome Editing in Reproduction.
Pin Lean Lau et al. BioTech (Basel) 2023 12(3)
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Utilization of genetic information for medicines development and equitable benefit sharing.
Kotone Matsuyama et al. Front Genet 2023 141085864
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Connecting the Dots: Carrier Screening and the Genetic Information Nondiscrimination Act in the United States.
Stephanie M Rice et al. Prenat Diagn 2023
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Patients' perspectives related to ethical issues and risks in precision medicine: a systematic review.
Lawko Ahmed et al. Front Med (Lausanne) 2023 101215663
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Addressing the ethical and societal challenges posed by genome-wide association studies of behavioral and brain-related traits.
Matthieu C de Hemptinne et al. Nat Neurosci 2023
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Human Genetics Society of Australasia Position Statement: Genetic Testing and Personal Insurance Products in Australia.
Aideen M McInerney-Leo et al. Twin Res Hum Genet 2023 1-4
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Community concerns about genetic discrimination in life insurance persist in Australia: A survey of consumers offered genetic testing.
Jane Tiller et al. Eur J Hum Genet 2023
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Equity should be fundamental to the emergence of innovation.
Jack Gallifant et al. PLOS Digit Health 2023 2(4) e0000224
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Do genomic passports leave us more vulnerable or less vulnerable? Perspectives from an online citizen engagement.
Chloé Mayeur et al. Humanities & social sciences communications 2023 10(1) 83
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Keeping Quiet About Genetic Risk.
Susanna J Smith et al. Health affairs (Project Hope) 2023 42(3) 443-447
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Health inequity in genomic personalized medicine in underrepresented populations: a look at the current evidence.
Sherouk M Tawfik et al. Functional & integrative genomics 2023 23(1) 54
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Malpractice litigation surrounding in vitro fertilization in the United States: a legal literature review.
Applebaum Jeremy et al. Fertility and sterility 2022
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Australian public perspectives on genomic data storage and sharing: Benefits, concerns and access preferences.
Lynch Fiona et al. European journal of medical genetics 2022 104676
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Genetic Discrimination and Misuse of Genetic Information: Areas of Possible Discrimination, Current Legislation, and Potential Limitations
SG Lee et al, CDC Blog Post, October 3, 2022
Genetic discrimination still casts a large shadow in 2022
Y Joly et al, EJHG, September 26, 2022
Genetic testing for psychiatric illness in children: ethical issues.
Lynch Fiona et al. Current opinion in pediatrics 2022
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How Australia's Policymakers Can Ethically Approach Human Germline Genome Editing Technology.
Mangiapane Matthew et al. Journal of law and medicine 2022 29(3) 740-759
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Justice for Our Genes: The Case for Genetic Non-discrimination Regulations in the New Zealand Life Insurance Industry.
Buckenham Boyle Emily et al. Journal of law and medicine 2022 29(3) 760-782
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Ethical Challenges Associated with Pathogen and Host Genetics in Infectious Disease.
Milne Richard et al. The New bioethics : a multidisciplinary journal of biotechnology and the body 2022 1-13
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Ethical, Legal, and Financial Considerations of Artificial Intelligence in Surgery.
Morris Miranda X et al. The American surgeon 2022 31348221117042
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The goldilocks conundrum: Disclosing discrimination risks in informed consent.
Prince Anya E R et al. Journal of genetic counseling 2022
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Health professionals' views and experiences of the Australian moratorium on genetic testing and life insurance: A qualitative study.
Dowling Grace et al. European journal of human genetics : EJHG 2022
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Artificial Intelligence and Surgery: Ethical Dilemmas and Open Issues.
Cobianchi Lorenzo et al. Journal of the American College of Surgeons 2022 235(2) 268-275
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Beyond bias and discrimination: redefining the AI ethics principle of fairness in healthcare machine-learning algorithms.
Giovanola Benedetta et al. AI & society 2022 1-15
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Perspectives on choice of law challenges in multistate precision medicine research.
Beskow Laura M et al. Journal of law and the biosciences 2022 9(1) lsac010
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Page last reviewed:
Feb 1, 2024
Page last updated:
Mar 28, 2024
Content source:
Public Health Genomics Branch in the Division of Blood Disorders and Public Health Genomics
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National Center on Birth Defects and Developmental Disabilities
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