Skip directly to search
Skip directly to A to Z list
Skip directly to navigation
Skip directly to page options
Skip directly to site content
Start of Search Controls
Search Form Controls
Search The CDC
submit
CDC A-Z Index
MENU
CDC A-Z
SEARCH
A
B
C
D
E
F
G
H
I
J
K
L
M
N
O
P
Q
R
S
T
U
V
W
X
Y
Z
#
Search Form Controls
Search The CDC
submit
CDC A-Z Index
Public Health Genomics and Precision Health Knowledge Base (v9.0)
PHGKB
About
Public Health Genomics Branch
PHGKB Weekly Horizon Scan
Genomics Precision Health Scan
Advanced Molecular Detection Clips
Non-Genomics Precision Health Scan
CDC-authored Publications Scan
Specialized PHGKB
Cancer PHGKB
Diabetes PHGKB
Economic Evaluation PHGKB
Environmental Health PHGKB
Family Health History PHGKB
Health Equity PHGKB
HLBS-PopOmics
Infectious Diseases PHGKB
Implementation Science PHGKB
Neurological Disorders PHGKB
Pharmacogenomics PHGKB
Primary Immune Deficiency Diseases PHGKB
Rare Diseases PHGKB
Reproductive and Child Health PHGKB
All Databases
COVID-19 GPH (47352)
CDC/NIH Web Information Database (32182)
CDC-Authored Genomics and Precision Health Publications Database (5836)
Precision Health Database (63657)
Tier-Classified Guidelines Database (534)
Pathogen Advanced Molecular Detection Database (26729)
All of Us Reports and Publications Database (673)
Human Genome Epidemiology
Human Genome Epidemiology Literature Finder (226468)
Epigenetic Epidemiology Publications Database (22758)
Release Note
Contact Us
Precision Health Database
Precision Health Database|Search|Public Health Genomics and Precision Health Knowledge Base (PHGKB)
Last data update: Apr 25, 2024
. (Total: 63657 Documents since 2012)
All
Cancer
Diabetes
Economic
Equity
Environmental
FHH
HLBS
ID
Implementation
ND
PGx
PI
Rare
RCH
dataset
All
GPH
Non-GPH
Filtered By
:
Select to fine-tune your search
Disease
Gene
Product Type
Category
Year
Previous
Records 1 - 30 (of 193 Records)
Next
Query Trace:
Data sharing[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
FAIR Header Reference genome: a TRUSTworthy standard.
Adam Wright et al. Brief Bioinform 2024 25(3)
Similar articles in PubMed
Secondary use of genomic data: patients’ decisions at point of testing and perspectives to inform international data sharing
M Martyn et al, EJHG, March 25, 2024
The importance, challenges, and possible solutions for sharing proteomics data while safeguarding individuals' privacy.
Mahasish Shome et al. Mol Cell Proteomics 2024 100731
Similar articles in PubMed
Sharing of Genomic Data: Exploring the Privacy Implications of the Changing Status of Genomic Data.
Margaret Otlowski et al. J Law Med 2024 30(2) 326-344
Similar articles in PubMed
Use of Electronic Medical Records (EMR) in Gerontology: Benefits, Considerations and a Promising Future.
Adam Bednorz et al. Clin Interv Aging 2023 182171-2183
Similar articles in PubMed
Ethical implications of AI and robotics in healthcare: A review.
Chukwuka Elendu et al. Medicine (Baltimore) 2023 102(50) e36671
Similar articles in PubMed
Ethical considerations for genetic research in low-income countries: perceptions of informed consent, data sharing, and expectations in Nicaragua.
Iris S Delgado et al. Eur J Hum Genet 2023
Similar articles in PubMed
Research participants' perception of ethical issues in stroke genomics and neurobiobanking research in Africa.
Ayodele Jegede et al. medRxiv 2023
Similar articles in PubMed
Public attitudes towards genomic data sharing: results from a provincial online survey in Canada.
Holly Etchegary et al. BMC Med Ethics 2023 24(1) 81
Similar articles in PubMed
Unraveling the Ethical Enigma: Artificial Intelligence in Healthcare.
Madhan Jeyaraman et al. Cureus 2023 15(8) e43262
Similar articles in PubMed
Genomic Data as a National Strategic Resource: Implications for the Genomic Commons and International Data Sharing for Biomedical Research and Innovation.
Kyle McKibbin et al. J Law Med Ethics 2023 51(2) 301-313
Similar articles in PubMed
Federated Analysis for Privacy-Preserving Data Sharing: A Technical and Legal Primer.
James Casaletto et al. Annu Rev Genomics Hum Genet 2023
Similar articles in PubMed
Payer reimbursement practices and incentives for improving interpretation of germline genetic testing.
Patricia Deverka et al. J Law Biosci 2023 10(2) lsad020
Similar articles in PubMed
Policy options to facilitate cancer genomic variant data sharing: outcomes of a modified policy Delphi.
Jill O Robinson et al. J Law Biosci 2023 10(2) lsad022
Similar articles in PubMed
Australian public perspectives on genomic data governance: responsibility, regulation, and logistical considerations.
Fiona Lynch et al. Eur J Hum Genet 2023
Similar articles in PubMed
Ethics of 'Counting Me In': framing the implications of direct-to-patient genomics research.
Tenny R Zhang et al. J Med Ethics 2023
Similar articles in PubMed
Public attitudes toward cloud computing and willingness to share personal health records (PHRs) and genome data for health care research in Japan.
Mayumi Kusunose et al. Human genome variation 2023 10(1) 11
Similar articles in PubMed
Old and new challenges regarding comparable and viable data sharing in population-scale genomic research
A Raz et al, EJHG, March 31, 2023
A preregistered vignette experiment on determinants of health data sharing behavior Willingness to donate sensor data, medical records, and biomarkers.
Henning Silber et al. Politics and the life sciences : the journal of the Association for Politics and the Life Sciences 2023 41(2) 161-181
Similar articles in PubMed
Democratizing clinical-genomic data: How federated platforms can promote benefits sharing in genomics.
Maria Alvarellos et al. Frontiers in genetics 2023 131045450
Similar articles in PubMed
Australian public perspectives on genomic data storage and sharing: Benefits, concerns and access preferences.
Lynch Fiona et al. European journal of medical genetics 2022 104676
Similar articles in PubMed
Data Sharing and the Growth of Medical Knowledge
A Flanagin et al, JAMA, December 5, 2022
Bridging the European Data Sharing Divide in Genomic Science.
Molnár-Gábor Fruzsina et al. Journal of medical Internet research 2022 24(10) e37236
Similar articles in PubMed
Regulatory Aspects of the Use of Artificial Intelligence Medical Software.
Zanca Federica et al. Seminars in radiation oncology 2022 32(4) 432-441
Similar articles in PubMed
Privacy-Preserving Deep Learning NLP Models for Cancer Registries.
Alawad Mohammed et al. IEEE transactions on emerging topics in computing 2022 9(3) 1219-1230
Similar articles in PubMed
Without appropriate metadata, data-sharing mandates are pointless
MA Musen, Nature, September 5, 2022
Benefits and Risks of Sharing Genomic Data for Research: Comparing the Views of Rare Disease Patients, Informal Carers and Healthcare Professionals.
Amorim Mariana et al. International journal of environmental research and public health 2022 19(14)
Similar articles in PubMed
Is blockchain the breakthrough we are looking for to facilitate genomic data sharing? The European Union perspective.
Cascini Fidelia et al. Digital health 2022 820552076221114225
Similar articles in PubMed
Many researchers say they’ll share data — but don’t
C Watson, Nature, June 21, 2022
A View on Genomic Medicine Activities in Africa: Implications for Policy.
Jongeneel C Victor et al. Frontiers in genetics 2022 13769919
Similar articles in PubMed
File Formats Help:
How do I view different file formats (PDF, DOC, PPT, MPEG) on this site?
Adobe PDF file
Microsoft PowerPoint file
Microsoft Word file
Microsoft Excel file
Audio/Video file
Apple Quicktime file
RealPlayer file
Text file
Zip Archive file
SAS file
ePub file
Page last reviewed:
Feb 1, 2024
Page last updated:
Apr 25, 2024
Content source:
Public Health Genomics Branch in the Division of Blood Disorders and Public Health Genomics
,
National Center on Birth Defects and Developmental Disabilities
TOP