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Genomics and Precision Health Database


Genomics & Health Impact Scan Database|Search|PHGKB
Last data update: Jan 18, 2021. (Total: 38235 Documents since 2012)
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Records 1-30 (of 62 Record(s))
Query Trace: Communication[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
Publication
Precision health data: Requirements, challenges and existing techniques for data security and privacy.
Thapa Chandra et al. Computers in biology and medicine 2020 Nov 129104130
Researcher Knowledge, Attitudes, and Communication Practices for Genomic Data Sharing.
Nick Heather P et al. Journal of empirical research on human research ethics : JERHRE 2020 Nov 1556264620969301
Potential research ethics violations against an indigenous tribe in Ecuador: a mixed methods approach.
Ortiz-Prado Esteban et al. BMC medical ethics 2020 Oct 21(1) 100
Psychological Impact of NBS for CF.
Chudleigh Jane et al. International journal of neonatal screening 2020 Jun 6(2) 27
Ethical challenges of precision cancer medicine.
Winkler Eva Caroline et al. Seminars in cancer biology 2020 Oct
Demonstrating 'respect for persons' in clinical research: findings from qualitative interviews with diverse genomics research participants.
Kraft Stephanie A et al. Journal of medical ethics 2020 Oct
Relationships of Family History-related Factors and Causal Beliefs to Cancer Risk Perception and Mammography Screening Adherence Among Medically Underserved Women.
Hong Soo Jung et al. Journal of health communication 2020 Jul 1-12
Weight-related genomic information and provider communication approach: looking through the lens of patient race.
Boland Sarah E et al. Personalized medicine 2019 16(5) 387-397
Understanding the Return of Genomic Sequencing Results Process: Content Review of Participant Summary Letters in the eMERGE Research Network.
Lynch John A et al. Journal of personalized medicine 2020 May 10(2)
At a Moment's Notice: Community Advisory Board Perspectives on Biobank Communication to Supplement Broad Consent.
Meagher Karen M et al. Public health genomics 2020 May 1-13
Dynamic-informed consent: A potential solution for ethical dilemmas in population sequencing initiatives.
Dankar Fida K et al. Computational and structural biotechnology journal 2020 18913-921
Genetic testing for neurodegenerative diseases: Ethical and health communication challenges.
Roberts J Scott et al. Neurobiology of disease 2020 Apr 104871
Diagnostic uncertainties, ethical tensions, and accounts of role responsibilities in genetic counseling communication.
Thomassen Hammerstad Gøril et al. Journal of genetic counseling 2020 Apr
Ethical and professional challenges encountered by Japanese healthcare professionals who provide genetic counseling services.
Yoshida Akiko et al. Journal of genetic counseling 2020 Feb
Ethical and professional challenges encountered by Japanese healthcare professionals who provide genetic counseling services.
Yoshida Akiko et al. Journal of genetic counseling 2020 Feb
Ethical and professional challenges encountered by Japanese healthcare professionals who provide genetic counseling services.
Yoshida Akiko et al. Journal of genetic counseling 2020 Feb
Ethical and professional challenges encountered by Japanese healthcare professionals who provide genetic counseling services.
Yoshida Akiko et al. Journal of genetic counseling 2020 Feb
Evaluating the German Biobank Node as Coordinating Institution of the German Biobank Alliance: Engaging with Stakeholders via Survey Research.
Klingler Corinna et al. Biopreservation and biobanking 2019 Dec
Cases in Precision Medicine: Should You Participate in a Study Involving Genomic Sequencing of Your Patients?
Appelbaum Paul S et al. Annals of internal medicine 2019 Oct
Opinion: Big data scientists must be ethicists too
J Vitti, Broad Institute Blog, August 29, 2019
How to Address Material Incidental Findings
Panel on Research Ethics, Canada, August 2019
Race, Trust in Doctors, Privacy Concerns, and Consent Preferences for Biobanks.
Hong Soo Jung et al. Health communication 2019 Jun 1-10
"You Really Do Have to Know the Local Context": IRB Administrators and Researchers on the Implications of the NIH Single IRB Mandate for Multisite Genomic Studies.
Henrikson Nora B et al. Journal of empirical research on human research ethics : JERHRE 2019 May 1556264619850440
Points-to-consider on the return of results in epigenetic research.
Dyke Stephanie O M et al. Genome medicine 2019 May 11(1) 31
Working with the Hmong Population in a Genetics Setting: an Interpreter Perspective.
Krieger Meghan et al. Journal of genetic counseling 2018 27(3) 565-573
How Uncertainty Influences Lay People's Attitudes and Risk Perceptions Concerning Predictive Genetic Testing and Risk Communication.
Wöhlke Sabine et al. Frontiers in genetics 2019 10380
European perspectives on big data applied to health: The case of biobanks and human databases.
de Lecuona Itziar et al. Developing world bioethics 2018 18(3) 291-298
Research participants' preferences for receiving genetic risk information: a discrete choice experiment.
Viberg Johansson Jennifer et al. Genetics in medicine : official journal of the American College of Medical Genetics 2019 Apr
Beyond medical actionability: Public perceptions of important actions in response to hypothetical genetic testing results.
Seiffert David J et al. Journal of genetic counseling 2019 Feb
Perspectives on communication and engagement with regard to collecting biospecimens and family health histories for cancer research in a rural Alaska Native community.
Dirks Lisa G et al. Journal of community genetics 2019 Jan
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