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Public Health Genomics and Precision Health Knowledge Base (v9.0)
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Precision Health Database|Search|Public Health Genomics and Precision Health Knowledge Base (PHGKB)
Last data update: Apr 19, 2024
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Records 1 - 19 (of 19 Records)
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Breast and ovarian cancer [original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
Regulating cancer risk prediction: legal considerations and stakeholder perspectives on the Canadian context.
Palmira Granados Moreno et al. Hum Genet 2023
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Privacy and utility of genetic testing in families with hereditary cancer syndromes living in three countries: the international cascade genetic screening experience.
Sivia Barnoy et al. Front Genet 2023 141109431
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Testing a deliberative democracy method with citizens of African ancestry to weigh pros and cons of targeted screening for hereditary breast and ovarian cancer risk.
Guan Yue et al. Frontiers in public health 2022 10984926
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Population genomic screening: Ethical considerations to guide age at implementation.
Spencer Scott J et al. Frontiers in genetics 2022 13899648
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Integrating hereditary breast and ovarian cancer genetic counselling and testing into mainstream clinical practice: Legal and ethical challenges.
Charron Marilou et al. Critical reviews in oncology/hematology 2022 103797
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Advocating for equitable management of hereditary cancer syndromes.
Caffrey Rikki Gaber et al. Journal of genetic counseling 2022
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Understanding Medical Mistrust in Black Women at Risk of BRCA 1/2 Mutations.
Sutton Arnethea L et al. Journal of health disparities research and practice 2019 12(3) 35-47
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Black Women's Confidence in the Genetic Information Nondiscrimination Act.
Sutton Arnethea L et al. International journal of environmental research and public health 2019 Dec 16(24)
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Is Genetic Medicine Making the World Less Fair?
L Hercher, the Nation, August 23, 2019
The budgetary impact of genetic testing for hereditary breast cancer for the statutory health insurance.
Neusser Silke et al. Current medical research and opinion 2019 Aug 1
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Bioethicists worried patients couldn?t handle their own genetic testing results. They were (mostly) wrong
E Parens et al, Stat News, July 30, 2019
Senior doctors call for crackdown on home genetic testing kits
H Devlin, the Guardian, July 21, 2019
Reducing the Risk of Gynecologic Cancer in Hereditary Breast Ovarian Cancer Syndrome Mutation Carriers: Moral Dilemmas and the Principle of Double Effect.
Casey Murray Joseph et al. The Linacre quarterly 2018 Aug 85(3) 225-240
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Some Legal Issues Regarding the Patenting of Human Genetic Materials.
MacFarlane Peter et al. Journal of law and medicine 24(1) 181-202
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How are genetic test results being used by Australian life insurers?
Barlow-Stewart K et al. European journal of human genetics : EJHG 2018 Jun
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The FDA says you can now test yourself for cancer at home without a doctor. Here's why you shouldn't.
D Ropeik, NBC News Blog, Mar 23, 2018
The Right Not to Know: When Ignorance Is Bliss but Deadly
AM Clausen, Pultizer Center, Mar 20, 2018
Opinion: No, FDA Didnt Really Approve BRCA Test-Rather, the breast cancer mutation screen was classified as a type of medical device with obligations for the company to reduce risks to customers.
C Janssens, The Scientist, Mar 19, 2018
Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.
Møller Pål et al. Medicine, health care, and philosophy 2017 Sep
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Page last reviewed:
Feb 1, 2024
Page last updated:
Apr 19, 2024
Content source:
Public Health Genomics Branch in the Division of Blood Disorders and Public Health Genomics
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National Center on Birth Defects and Developmental Disabilities
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