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Public Health Genomics and Precision Health Knowledge Base (v8.4)
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Last data update: Mar 21, 2023
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Breast Cancer[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
Ethical layering in AI-driven polygenic risk scores-New complexities, new challenges.
Marie-Christine Fritzsche et al. Frontiers in genetics 2023 141098439
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Risk-Stratified Approach to Breast Cancer Screening in Canada: Women’s Knowledge of the Legislative Context and Concerns about Discrimination from Genetic and Other Predictive Health Data
S Alarie et al, JPM, July 2021
Sharing genetic variants with the NGS pipeline is essential for effective genomic data sharing and reproducibility in health information exchange.
Lee Jeong Hoon et al. Scientific reports 2021 Jan 11(1) 2268
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Genetic testing for breast cancer risk, from BRCA1/2 to a seven gene panel: an ethical analysis.
Gustavsson Erik et al. BMC medical ethics 2020 Oct 21(1) 102
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Genetic Testing May Help Reduce Breast Cancer Disparities for African American Women.
McCarthy Anne Marie et al. Journal of the National Cancer Institute 2020 May
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Negotiating jurisdictional boundaries in response to new genetic possibilities in breast cancer care: The creation of an 'oncogenetic taskscape'.
Wright Sarah et al. Social science & medicine (1982) 2019 22526-33
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Pioneering Informed Consent for Return of Research Results to Breast Cancer Patients Facing Barriers to Implementation of Genomic Medicine: The Kenyan BRCA1/2 Testing Experience Using Whole Exome Sequencing.
Torrorey-Sawe Rispah et al. Frontiers in genetics 2020 11170
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Why using genetic risk scores on embryos is wrong
E Birney blog, November 11, 2019
Why home DNA tests might not be as private as you think
C Fox, World Economic Forum, August 9, 2019
The budgetary impact of genetic testing for hereditary breast cancer for the statutory health insurance.
Neusser Silke et al. Current medical research and opinion 2019 Aug 1
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FDA Approvals Provide Advances for a Range of Cancer Types
K Honey, AACR Blogs, August 6, 2019
How Your Genetic Data Could Be Shared Without Your Consent
E Matloff, Forbes, July 18, 2019
Senior doctors call for crackdown on home genetic testing kits
H Devlin, the Guardian, July 21, 2019
Genetic testing and insurance in Australia.
Otlowski Margaret et al. Australian journal of general practice 2019 Mar 48(3) 96-99
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Protecting essential information about genetic variants as trade secrets: a problem for public policy?
Juergens Alexis K et al. Journal of law and the biosciences 2018 Dec 5(3) 682-705
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Personalized Medicine in the Information Age: Myriad's De Facto Monopoly on Breast Cancer Research.
Oliver Angela M et al. SMU law review : a publication of Southern Methodist University School of Law 68(2) 537-66
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Racism Plays into Concerns About Genomic Info
J Frieden, Medpage Today, June 28, 2018
Ethics of Genomic Data Sharing: An Interview with Bartha Maria Knoppers
Global Alliance for Genomics and Health, Apr 2018
The FDA says you can now test yourself for cancer at home without a doctor. Here's why you shouldn't.
D Ropeik, NBC News Blog, Mar 23, 2018
The Right Not to Know: When Ignorance Is Bliss but Deadly
AM Clausen, Pultizer Center, Mar 20, 2018
Opinion: No, FDA DidnÂ’t Really Approve BRCA Test-Rather, the breast cancer mutation screen was classified as a type of medical device with obligations for the company to reduce risks to customers.
C Janssens, The Scientist, Mar 19, 2018
23andMe Will Now Test for BRCA Breast-Cancer Genes It's the first FDA-authorized genetic-cancer-risk test available without a doctor's note.
S Zhang, The Atlantic, Mar 6, 2018
FDA authorizes, with special controls, direct-to-consumer test that reports three mutations in the BRCA breast cancer genes,
FDA, March 6, 2018
FDA approves olaparib for germline BRCA-mutated metastatic breast cancer
FDA, Jan 12, 2018
FDA approves first treatment for breast cancer with a certain inherited genetic mutation,
FDA, January 12, 2018
Psychosocial issues of a population approach to high genetic risk identification: Behavioural, emotional and informed choice issues.
French David P et al. Breast (Edinburgh, Scotland) 2017 Nov 37148-153
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Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.
Møller Pål et al. Medicine, health care, and philosophy 2017 Sep
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Perspective for the development of companion diagnostics and regulatory landscape to encourage personalized medicine in Japan.
Tazawa Yoshiaki et al. Breast cancer (Tokyo, Japan) 2016 Jan 23(1) 19-23
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Myriad Genetics Embroiled in Breast-Cancer Data Fight—Again,
by Erika Check Hayden, Scientific American, May 24, 2016
Myriad Genetics embroiled in breast-cancer data fight ? again,
by Erika Check Hayden, Nature News, May 20, 2016
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