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CDC A-Z Index
Public Health Genomics and Precision Health Knowledge Base (v8.6)
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Office of Genomics and Precision Public Health
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Records 1 - 24 (of 24 Records)
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Blood Disorder[original query]>>Original Studies[Product Type]
Gene therapy in sickle cell disease: Attitudes and informational needs of patients and caregivers.
Akshay Sharma et al. Pediatric blood & cancer 2023 e30319
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A non-invasive machine learning mechanism for early disease recognition on Twitter: The case of anemia.
Sarsam Samer Muthana et al. Artificial intelligence in medicine 2022 134102428
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Sickle cell disease among Latinx in California.
Valle Jhaqueline et al. PloS one 2022 17(10) e0276653
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Surveillance for Sickle Cell Disease - Sickle Cell Data Collection Program, Two States, 2004-2018.
Snyder Angela B et al. Morbidity and mortality weekly report. Surveillance summaries (Washington, D.C. : 2002) 2022 71(9) 1-18
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Internalizing Symptoms in Adolescents With Sickle Cell Disease.
Heitzer Andrew M et al. Journal of pediatric psychology 2022
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Sickle cell disease prevention: How prepared are the senior secondary school students in Surulere Local Government Area, Lagos, Nigeria?
Kanma-Okafor Oluchi J et al. African journal of primary health care & family medicine 2022 14(1) e1-e7
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Thalassemia screening: Low level of knowledge among unmarried youths in Kota Bharu, Kelantan, Malaysia.
Mohd Nor Muhammad Akmal et al. Malaysian family physician : the official journal of the Academy of Family Physicians of Malaysia 2022 17(1) 57-65
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Attitudes and practices of unmarried adults towards sickle cell disease: emergent factors from a cross sectional study in Nigeria's capital.
Adigwe Obi Peter et al. Hematology (Amsterdam, Netherlands) 2022 27(1) 488-493
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Process and strategies for patient engagement and outreach in the Sickle Cell Disease (SCD) community to promote clinical trial participation.
Byrnes C et al. Journal of the National Medical Association 2022
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Peripheral health workers' knowledge and experience related to sickle cell disease: an in-depth interview study in six tribal-dominated districts of India.
Babu Bontha V et al. Journal of community genetics 2022
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Treatment decision-making in sickle cell disease patients.
Booth A et al. Journal of community genetics 2021
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Toward a Conversational Agent to Support the Self-Management of Adults and Young Adults With Sickle Cell Disease: Usability and Usefulness Study.
Issom David-Zacharie et al. Frontiers in digital health 2021 3600333
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Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial.
Hood Anna M et al. JMIR research protocols 2021 10(5) e27650
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Insights from the Hereditary Thrombotic Thrombocytopenic Purpura Registry: Discussion of Key Findings Based on Individual Cases from Switzerland.
Kremer Hovinga Johanna A et al. Hamostaseologie 2020 Nov 40(S 01) S5-S14
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Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registry.
Glassberg Jeffrey A et al. Orphanet journal of rare diseases 2020 Jul 15(1) 178
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Genetic counselling in sickle cell disease: views of single young adults in Ghana.
Appiah Stella et al. Journal of community genetics 2020 Jul
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Clinical utility of combined preimplantation genetic testing methods in couples at risk of passing on beta thalassemia/hemoglobin E disease: A retrospective review from a single center.
Satirapod Chonthicha et al. PloS one 2019 14(11) e0225457
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Single tube allele specific PCR: a low cost technique for molecular screening of sickle cell anaemia in Nigeria.
Toye Emuejevoke T et al. African health sciences 2018 Dec 18(4) 995-1002
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A CRISPR focus on attitudes and beliefs toward somatic genome editing from stakeholders within the sickle cell disease community.
Persaud Anitra et al. Genetics in medicine : official journal of the American College of Medical Genetics 2018 Dec
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Newborn screening by tandem mass spectrometry confirms the high prevalence of sickle cell disease among German newborns.
Lobitz Stephan et al. Annals of hematology 2018 Aug
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Specifying sickle cell disease interventions: a study protocol of the Sickle Cell Disease Implementation Consortium (SCDIC).
Baumann Ana A et al. BMC health services research 2018 Jun 18(1) 500
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Sickle cell disease in southwestern Nigeria: assessment of knowledge of primary health care workers and available facilities.
Adegoke Samuel A et al. Transactions of the Royal Society of Tropical Medicine and Hygiene 2018 Mar
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Attitudes and beliefs among high- and low-risk population groups towards β-thalassemia prevention: a cross-sectional descriptive study from India.
Chawla Swati et al. Journal of community genetics 2017 Apr
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Prevalence of Sickle Cell Trait and Reliability of Self-Reported Status among Expectant Parents in Nigeria: Implications for Targeted Newborn Screening.
Burnham-Marusich Amanda R et al. Public health genomics 2016 Sep 19(5)
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Page last reviewed:
Feb 1, 2023
Page last updated:
Jun 02, 2023
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