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Public Health Genomics and Precision Health Knowledge Base (v7.8)
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Big data[original query]>>Ethical, Legal and Social Issues (ELSI)[Category]
A Genomic Information Management System for Maintaining Healthy Genomic States and Application of Genomic Big Data in Clinical Research.
Gim Jeong-An et al. International journal of molecular sciences 2022 23(11)
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Responsible governance of human germline genome editing in China.
Peng Yaojin et al. Biology of reproduction 2022
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A Blockchain-Based Verifiable User Data Access Control Policy for Secured Cloud Data Storage.
Li Xinlong et al. Computational intelligence and neuroscience 2022 20222254411
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The medical and societal impact of big data analytics and artificial intelligence applications in combating pandemics: A review focused on Covid-19.
Galetsi Panagiota et al. Social science & medicine (1982) 2022 301114973
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Ethical issues of collecting, storing, and analyzing geo-referenced tweets for mental health research.
Fadda Marta et al. Digital health 2022 820552076221092539
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[World Health Organization guidance Ethical and Governance of Artificial Intelligence for health and implications for China].
Wei B R et al. Zhonghua yi xue za zhi 2022 102(12) 833-837
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A comparative study of regulatory perspectives on innovative medical devices in Korea and the United States.
Choe Minji et al. Expert review of medical devices 2022 1-7
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iHealth: The ethics of artificial intelligence and big data in mental healthcare.
Rubeis Giovanni et al. Internet interventions 2022 28100518
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Towards an ethical framework about Big Data era: metaethical, normative ethical and hermeneutical approaches.
Morán-Reyes Ariel Antonio et al. Heliyon 2022 8(2) e08926
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Ensuring the ethical use of big data: lessons from secure data access.
Wiltshire Deborah et al. Heliyon 2022 8(2) e08981
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The passivists: Managing risk through institutionalized ignorance in genomic medicine.
Owens Kellie et al. Social science & medicine (1982) 2022 294114715
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Big Data, Surveillance Capitalism, and Precision Medicine: Challenges for Privacy.
Rothstein Mark A et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2022 49(4) 666-676
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"I Agree to Disagree": Comparative Ethical and Legal Analysis of Big Data and Genomics for Privacy, Consent, and Ownership.
Belani Seema et al. Cureus 2021 13(10) e18736
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Privacy and artificial intelligence: challenges for protecting health information in a new era.
Murdoch Blake et al. BMC medical ethics 2021 22(1) 122
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A Systematic Literature Review of Ethical Challenges Related to Medical and Public Health Data Sharing in China.
Li Xiaojie et al. Journal of empirical research on human research ethics : JERHRE 2021 15562646211040299
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Ethics of Artificial Intelligence in Medicine and Ophthalmology.
Abdullah Yasser Ibraheem et al. Asia-Pacific journal of ophthalmology (Philadelphia, Pa.) 2021 10(3) 289-298
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Three decades of genetic privacy: A metaphoric journey.
Knoppers Bartha Maria et al. Human molecular genetics 2021
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Social Media Big Data: The Good, The Bad, and the Ugly (Un)truths.
Chew Alton M K et al. Frontiers in big data 2021 4623794
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Ensuring patient and public involvement in the transition to AI-assisted mental health care: A systematic scoping review and agenda for design justice.
Zidaru Teodor et al. Health expectations : an international journal of public participation in health care and health policy 2021
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Thinking about the idea of consent in data science genomics: How 'informed' is it?
Greenwood Jennifer et al. Nursing philosophy : an international journal for healthcare professionals 2021 e12347
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Ethics review of big data research: What should stay and what should be reformed?
Ferretti Agata et al. BMC medical ethics 2021 22(1) 51
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Orchestrating privacy-protected big data analyses of data from different resources with R and DataSHIELD.
Marcon Yannick et al. PLoS computational biology 2021 17(3) e1008880
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Delivering a Practical Framework for Ethical Decision-Making Involving Big Data in Health and Research.
Laurie Graeme T et al. Asian bioethics review 2019 11(3) 223-225
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An Ethics Framework for Big Data in Health and Research.
Xafis Vicki et al. Asian bioethics review 2019 11(3) 227-254
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AI-Assisted Decision-making in Healthcare: The Application of an Ethics Framework for Big Data in Health and Research.
Lysaght Tamra et al. Asian bioethics review 2019 11(3) 299-314
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Precision Medicine and Big Data: The Application of an Ethics Framework for Big Data in Health and Research.
Schaefer G Owen et al. Asian bioethics review 2019 11(3) 275-288
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Challenges and Legal Gaps of Genetic Profiling in the Era of Big Data.
Sariyar Murat et al. Frontiers in big data 2019 240
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My Data, My Choice? - German Patient Organizations' Attitudes towards Big Data-Driven Approaches in Personalized Medicine. An Empirical-Ethical Study.
Rauter Carolin Martina et al. Journal of medical systems 2021 45(4) 43
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THE FUTURE OF MEDICINE, healthcare innovation through precision medicine: policy case study of Qatar.
Qoronfleh M Walid et al. Life sciences, society and policy 2020 Nov 16(1) 12
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Just data? Solidarity and justice in data-driven medicine.
Hummel Patrik et al. Life sciences, society and policy 2020 Aug 16(1) 8
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Page last reviewed:
Oct 1, 2021
Page last updated:
Jul 05, 2022
Content source:
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CDC Office of Science
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