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Last Posted: Sep 21, 2023

• Gene therapy for Hemoglobinopathies.
  Maria Rosa Lidonnici et al. Hum Gene Ther 2023
• Preimplantation genetic testing for sickle cell disease: a cost-effectiveness analysis.
  Joshua C Combs et al. F S Rep 2023 4(3) 300-307
• Pregnant and Living with Sickle Cell Disease: A Push for Better Outcomes
  NIH, September 2023
• Evaluation of newborn screening in the state of Mato Grosso from 2005 to 2019.
  Roseli Divino Costa et al. Rev Paul Pediatr 2023 42e2022161
• A Proclamation on National Sickle Cell Awareness Month, 2023
  The White House, September 2023.
• CRISPR-Cas9 Editing of the HBG1 and HBG2 Promoters to Treat Sickle Cell Disease.
  Akshay Sharma et al. N Engl J Med 2023 8 (9) 820-832
• Newborn screening for sickle cell disease in Butembo and Beni: a pilot experience in a highland region of the Democratic Republic of Congo.
  Mupenzi Mumbere et al. Pan Afr Med J 2023 4556
• Sickle cell disease in Ontario, Canada: an epidemiologic profile based on health administrative data.
  Jacob Pendergrast et al. CMAJ Open 2023 11(4) E725-E733
• Genetic counseling in sickle cell disease: Insights from the Indian tribal population.
  Pooja Aggarwal et al. J Community Genet 2023 8
• Spreading awareness of sickle cell trait and its possible complications A better understanding of the trait is crucial for both patients and providers
  M Shaniqua, Sickle Cell New, August 2023
• Barriers and Facilitators of Premarital Genetic Counseling for Sickle Cell Disease in Northern Nigeria.
  Aisha A Galadanci et al. J Pediatr Hematol Oncol 2023 45(6) e716-e722
• Base-edited gene therapies ‘may be superior’ for sickle cell disease
  Healio, July 2023
• Defining global strategies to improve outcomes in sickle cell disease: a Lancet Haematology Commission.
  Frédéric B Piel et al. Lancet Haematol 2023
• Sickle cell disease in the Caribbean: progress in newborn screening, clinical care, and research through collaboration.
  Jennifer Knight-Madden et al. Lancet Haematol 2023
• Sickle cell disease landscape and challenges in the EU: the ERN-EuroBloodNet perspective.
  María Del Mar Mañú Pereira et al. Lancet Haematol 2023
• The Importance of Patient-Doctor Relationships With Sickle Cell Disease
  L Poret, WebMD, July 2023
• Sickle cell cures are coming. African children can’t be left behind
  JK Iyer, Statnews, July 2023
• Ending the burden of sickle cell disease in Africa
  MR Motti et al, Lancet Hematology, July 2023
• Global, regional, and national prevalence and mortality burden of sickle cell disease, 2000-2021: a systematic analysis from the Global Burden of Disease Study 2021.
  et al. Lancet Haematol 2023 6
• Social determinants of health: the next frontier for improving care and outcomes in sickle cell disease
  JS Porter et al, Lancet Heamtology, July 2023
• The Lancet Haematology Commission on sickle cell disease: key recommendations
  The Lancet Haematology Commission on sickle cell disease: Lancet Hematology, July 2023
• School and Sickle Cell Disease: Lessons I Had to Unlearn
  DN Wilson, WebMD, July 2023
• Screening during IVF for inherited diseases can greatly reduce costs of care
  L Flynn, MedicalXpress, July 2023
• Potent and uniform fetal hemoglobin induction via base editing.
  Thiyagaraj Mayuranathan et al. Nat Genet 2023 7
• Clinical Profiles of Children With Sickle Cell Anaemia Presenting With Acute Clinical Events: A Single-Center Study.
  Anwesha Singh et al. Cureus 2023 15(5) e39008
• Evaluating the Discriminatory Ability of the Sickle Cell Data Collection Program's Administrative Claims Case Definition in Identifying Adults With Sickle Cell Disease: Validation Study.
  Ashima Singh et al. JMIR Public Health Surveill 2023 9e42816
• The Role of Hyposthenuria in Enuresis Among Paediatric Patients With Sickle Cell Disease.
  Jasim N Al-Asadi et al. Sultan Qaboos Univ Med J 2023 23(2) 206-211
• Base editing shows potential superiority for curing sickle cell disease
  Medical XPress, June 29, 2023
• Why we need more Black blood donors to treat sickle cell anemia
  SB Peter, CNN, June 27, 2023
• Suddenly, It Looks Like We’re in a Golden Age for Medicine We may be on the cusp of an era of astonishing innovation — the limits of which aren’t even clear yet.
  DW Wells, New York Times. June 23, 2023

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