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Last Posted: May 31, 2023

• Distributional Cost-Effectiveness of Equity-Enhancing Gene Therapy in Sickle Cell Disease in the United States.
  George Goshua et al. Ann Intern Med 2023
• Case Ascertainment of Sickle Cell Disease Using Surveillance or Single Administrative Database Case Definitions.
  Sarah L Reeves et al. Public Health Rep 2023 333549231166465
• New ASH initiatives to improve patient care of the long-overlooked Sickle Cell Disease.
  Venée N Tubman et al. Blood 2023
• Newborn screening for sickle cell disease in Kisangani, Democratic Republic of the Congo: an update.
  Emmanuel Tebandite Kasai et al. Hematology 2023 28(1) 2213043
• COVID-19 Infection and Outcomes in Newborn Screening Cohorts of Sickle Cell Trait and Sickle Cell Disease in Michigan and Georgia.
  Susan T Paulukonis et al. J Pediatr Hematol Oncol 45(4) 174-180
• Novel lentiviral vectors for gene therapy of sickle cell disease combining gene addition and gene silencing strategies.
  Mégane Brusson et al. Mol Ther Nucleic Acids 32229-246
• Treating Chronic Pain in Sickle Cell Disease - The Need for a Biopsychosocial Model.
  Janet E Childerhose et al. N Engl J Med 2023 4 (15) 1349-1351
• Newborn Screening for Sickle Cell Disease.
  G E Erhabor et al. West African journal of medicine 2023 40(3) 237-238
• Burden experienced by informal caregivers of children with sickle cell disease (SCD): a qualitative exploratory study at Tamale Teaching Hospital, Ghana.
  Najart Deborah Mumuni et al. BMJ open 2023 13(4) e066311
• Managing Sickle Cell Disease in Patients for Whom Blood Transfusion Is Not an Option.
  Bukky F Tabiti et al. Hematology/oncology and stem cell therapy 2023 16(3) 254-261
• Determinants of retention in care of newborns diagnosed with sickle cell disease in Liberia: Results from a mixed-methods study of caregivers.
  Kanagasabai Udhayashankar et al. PLOS global public health 2023 3(4) e0001705
• Gene Therapy for β-Hemoglobinopathies: From Discovery to Clinical Trials.
  Eva Eugenie Rose Segura et al. Viruses 2023 15(3)
• Gene therapy in sickle cell disease: Attitudes and informational needs of patients and caregivers.
  Akshay Sharma et al. Pediatric blood & cancer 2023 e30319
• Sickle Cell Disease Newborn Screening-An Audit of a Twin Island State Pilot Program.
  Shivon Belle Jarvis et al. International journal of neonatal screening 2023 9(1)
• Iron Status in Sickle Cell Anemia: Deficiency or Overload?
  Varsha P Patel et al. Cureus 2023 15(2) e35310
• Optimising the screening for haemoglobinopathies in pregnancy planning.
  Robert S Nickel et al. Human fertility (Cambridge, England) 2023 1-6
• Evaluating the implementation of a multi-level mHealth study to improve hydroxyurea utilization in sickle cell disease.
  J S Hankins et al. Frontiers in health services 2023 21024541
• Patient perspectives on noninvasive prenatal testing among black women in the United States: a scoping review.
  Shameka P Thomas et al. BMC pregnancy and childbirth 2023 23(1) 183
• Reproductive Health Counseling among Youth with Sickle Cell Disease.
  Charis J Stanek et al. Journal of pediatric and adolescent gynecology 2023
• Factors Affecting Age of Initial Specialty Clinic Evaluation Among Infants with Sickle Cell Disease in Kingston, Jamaica.
  J Knight-Madden et al. The Journal of pediatrics 2023

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