What's New

Last Posted: Jun 06, 2019

• CE: Understanding the Complications of Sickle Cell Disease.
  Tanabe Paula et al. The American journal of nursing 2019 Jun 119(6) 26-35
• Newborn screening for sickle cell disease: an innovative pilot program to improve child survival in Dar es Salaam, Tanzania.
  Nkya Siana et al. International health 2019 May
• The carrier state for sickle cell disease is not completely harmless.
  Xu Julia Zhe et al. Haematologica 2019 Jun 104(6) 1106-1111
• Current challenges in the management of patients with sickle cell disease - A report of the Italian experience.
  Russo Giovanna et al. Orphanet journal of rare diseases 2019 14(1) 120
• Ethical issues in denial of church wedding based on couple's hemoglobin genotype in Enugu, south eastern Nigeria.
  Ezugwu Euzebus C et al. BMC medical ethics 2019 May 20(1) 37
• Psychological therapies (remotely delivered) for the management of chronic and recurrent pain in children and adolescents.
  Fisher Emma et al. The Cochrane database of systematic reviews 2019 4CD011118
• New Opportunities and Challenges in Hemophilia Care: 2019 Update
  CDC Public Health Seminar, June 6, 2019
• Genetic test solves mystery of family bleeding disorder
  C Gallagher, Mayo Clinic Blog, 2019
• Health-related quality of life of adolescents with sickle cell disease in sub-Saharan Africa: a cross-sectional study.
  Kambasu David Muthahi et al. BMC hematology 2019 199
• The North Carolina Experience with Mucopolysaccharidosis Type I Newborn Screening.
  Taylor Jennifer L et al. The Journal of pediatrics 2019 May
• How to discuss gene therapy for haemophilia? A patient and physician perspective.
  Miesbach Wolfgang et al. Haemophilia : the official journal of the World Federation of Hemophilia 2019 May
• Sickle cell disease: Clinical presentation and management of a global health challenge.
  Houwing M E et al. Blood reviews 2019 May
• Understanding Sickle Cell Disease
  CDC.gov
• CDC-RFA-DD19-1906 Capacity Building for Sickle Cell Disease Surveillance Department of Health and Human Services Centers for Disease Control – NCBDDD, Grants.gov, May 21. 2019
  
• Considering the benefits of newborn screening for haemophilia.
  Moorehead Paul C et al. Haemophilia : the official journal of the World Federation of Hemophilia 2019 May
• Inhibitors and Hemophilia
  CDC.gov
• Newborn screening in Nigeria: Associating the screening of congenital hypothyroidism and sickle cell disease can be a winning choice?
  Yarhere Iroro Enameguolo et al. Acta bio-medica : Atenei Parmensis 2019 May 90(2) 316-320
• Sickle Cell Clinical Research and Intervention Program (SCCRIP): A lifespan cohort study for sickle cell disease progression from the pediatric stage into adulthood.
  Hankins Jane S et al. Pediatric blood & cancer 2018 65(9) e27228
• Capacity Building for Sickle Cell Disease Surveillance
  CDC Funding Announcement, May 2019
• Management of Chronic Pain in Adults Living With Sickle Cell Disease in the Era of the Opioid Epidemic A Qualitative Study
  CB Sinha, JAMA Network Open, May 24, 2019