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Hot Topics of the Day are picked by experts to capture the latest information and publications on public health genomics and precision health for various diseases and health topics. Sources include published scientific literature, reviews, blogs and popular press articles.

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92 hot topic(s) found with the query "Literacy"

Understanding perceptions of tumor genomic profile testing in Black/African American cancer patients in a qualitative study: the role of medical mistrust, provider communication, and family support
CC Luck et al, J Comm Genetics, Feb 16, 2024 (Posted: Feb 16, 2024 4PM)

From the abstract: "Tumor genomic profiling (TGP) examines genes and somatic mutations specific to a patient’s tumor to identify targets for cancer treatments but can also uncover secondary hereditary (germline) mutations. Most patients are unprepared to make complex decisions related to this information. Black/African American (AA) cancer patients are especially at risk because of lower health literacy, higher levels of medical mistrust, and lower awareness and knowledge of genetic testing. But little is known about their TGP attitudes or preferences. "

Advancing Data Science Among the Federal Public Health Workforce: The Data Science Upskilling Program, Centers for Disease Control and Prevention.
Mary Catherine P Bertulfo et al. J Public Health Manag Pract 2024 1 (2) E41-E46 (Posted: Jan 29, 2024 8AM)

From the abstract: " The Data Science Upskilling (DSU) program increases data science literacy among staff and fellows working and training at CDC. The DSU program was established in 2019 as a team-based, project-driven, on-the-job applied upskilling program. Learners, within interdisciplinary teams, use curated learning resources to advance their CDC projects. The program has rapidly expanded from upskilling 13 teams of 31 learners during 2019-2020 to upskilling 36 teams of 143 learners during 2022-2023."

Future Forecasting for Research and Practice in Genetic Literacy
KA Kapingst, Public Health Genomics, September 13, 2023 (Posted: Sep 14, 2023 9AM)

From the abstract: "Available evidence highlights important gaps in genetic literacy throughout the population, limiting the potential use of these technologies to improve the health of individuals, their families, and their communities. Effective communication approaches are needed to meet the needs of individuals with varying levels of genetic literacy and from different communities. To achieve this goal, this piece highlights essential areas of research and practice in genetic literacy that are needed to inform public health translation of genomic discoveries. "

DIGItal Health Literacy after COVID-19 Outbreak among Frail and Non-Frail Cardiology Patients: The DIGI-COVID Study
M Vitolo et al, J Per Med, December 31, 2020 (Posted: Dec 31, 2022 7AM)

A total of 300 patients were enrolled (36.3% females, median age 75 (66–84)) and stratified according to frailty status as robust (EFS = 5; 70.7%), pre-frail (EFS 6–7; 15.7%), and frail (EFS = 8; 13.7%). Frail and pre-frail patients used digital tools less frequently and accessed the Internet less frequently compared to robust patients. In the logistic regression analysis, frail patients were significantly associated with the non-use of the Internet (adjusted odds ratio 2.58, 95% CI 1.92–5.61) compared to robust and pre-frail patients. Digital health literacy decreased as the level of frailty increased in all the digital domains examined.

Understanding changes in genetic literacy over time and in genetic research participants.
Little India D et al. American journal of human genetics 2022 11 (Posted: Nov 30, 2022 9AM)

We designed a survey to assess genetic literacy in three ways (familiarity, knowledge, and skills) and distributed it to two distinct samples: 2,050 members of the general population and 2,023 individuals currently enrolled in a large-scale genetic research study. We compared these data to a similar survey implemented in 2013. The results indicate that familiarity with basic genetic terms in 2021 (M = 5.36 [range 1–7], p < 0.001) and knowledge of genetic concepts in 2021 (M = 9.06 [56.6% correct], p = 0.002) are significantly higher compared to 2013.

Communicating Personal Melanoma Polygenic Risk Information: Participants’ Experiences of Genetic Counseling in a Community-Based Study
AK Smit et al, J Per Med, September 26, 2022 (Posted: Sep 26, 2022 7AM)

The survey showed a high level of acceptability for the GC phone call (mean satisfaction score overall: 4.3 out of 5, standard deviation (SD): 0.6) with differences according to gender (mean score for women: 4.4, SD: 0.6 vs. men: 4.2, SD: 0.7; p = 0.005), health literacy (lower literacy: 4.1, SD: 0.8; average: 4.3, SD: 0.6; higher: 4.4, SD: 0.6: p = 0.02) and polygenic risk group (low risk: 4.5, SD: 0.5, SD: average: 4.3, SD: 0.7, high: 4.3, SD: 0.7; p = 0.03). Our findings point to the importance of further exploring educational and support needs and preferences for communicating personalized melanoma risk among population subgroups, including diverse literacy levels.

An accessible, relational, inclusive, and actionable (ARIA) model of genetic counseling compared with usual care: Results of a randomized controlled trial
J Galen et al, Genetics in Medicine, September 1, 2022 (Posted: Sep 02, 2022 9AM)

This study provides evidence that a genetic counseling intervention that focuses on specific communication skills to enhance relationship-building, patient engagement, and comprehension can be effective with all patients and may be especially valuable for patients of lower health literacy and Spanish-speakers who use a medical interpreter.

Development and Validation of the Minnesota Assessment of Pharmacogenomic Literacy (MAPLTM)
JD Allen et al, J Per Med, August 29, 2022 (Posted: Aug 30, 2022 7AM)

Ensuring that patients have an adequate understanding of pharmacogenomic (PGx) test results is a critical component of implementing precision medicine into clinical care. However, no PGx-specific validated literacy assessment has yet been developed. To address this need, we developed and validated the Minnesota Assessment of Pharmacogenomic Literacy (MAPLTM). Foundational work included a scoping review of patient and general public attitudes and experiences with pharmacogenomic testing, three focus groups, readability assessments, and review by experts and members of the general public. This resulted in a 15-item assessment designed to assess knowledge in four domains.

A Systematic Scoping Review of Digital Health Technologies During COVID-19: A New Normal in Primary Health Care Delivery
C Ndayshimie et al, Research Square, July 19, 2022 (Posted: Jul 20, 2022 7AM)

A total of 46 studies were included in the final synthesis: 40 articles; one book; two book chapters; one working paper; and two technical reports. These studies scrutinized various aspects of DHTs, entailing 19 types of DHTs with 20 areas of use that can be compressed into five bigger PHC functions: general PHC service delivery (teleconsultations, e-diagnosis, e-prescription, etc.); behaviour promotion and digital health literacy (e.g., combating vaccine hesitancy); surveillance functions; vaccination and drugs; and enhancing system decision-making for proper follow-up of ongoing PHC interventions during COVID-19.

ORCA, a values-based decision aid for selecting additional findings from genomic sequencing in adults: Efficacy results from a randomized trial.
Liles Elizabeth G et al. Genetics in medicine : official journal of the American College of Medical Genetics 2022 5 (Posted: May 08, 2022 1PM)

Individuals having genomic sequencing can choose to be notified about pathogenic variants in genes unrelated to the testing indication. A decision aid can facilitate weighing one's values before making a choice about these additional results. We conducted a randomized trial (N = 231) comparing informed values-choice congruence among adults at risk for a hereditary cancer syndrome who viewed either the Optional Results Choice Aid (ORCA) or web-based additional findings information alone. ORCA is values-focused with a low-literacy design. The ORCA decision aid did not significantly improve informed values-choice congruence over web-based information in this cohort of adults deciding about genomic results. Both web-based approaches may be effective for adults to decide about receiving medically actionable additional results.

Health equity in the implementation of genomics and precision medicine: A public health imperative
MJ Khoury et al, Genetics in Medicine, April 28, 2022 (Posted: Apr 28, 2022 0PM)

We make the case that a public health agenda is needed to address disparities in implementation of genomics and precision medicine. Public health actions can be centered on population-specific needs and outcomes assessment, policy and evidence development, and assurance of delivery of effective and ethical interventions. Crucial public health activities also include engaging communities, building coalitions, improving genetic health literacy, and building a diverse workforce. Without concerted public health action, further advances in genomics with potentially broad applications could lead to further widening of health disparities in the next decade.

Studies Focus on Testing Family Members of Cancer Gene Carriers
NCI, November 2021 Brand (Posted: Dec 04, 2021 6AM)

NCI released a funding opportunity to test a “traceback” strategy, where researchers are finding the women who were previously diagnosed with ovarian cancer, communicating with them (or with their family members if they have died), and offering genetic testing. Traceback is a unique approach to genetic testing because the idea is to work backwards and find previously diagnosed cases to test to improve the detection of families at risk. Three grants using different approaches for traceback testing were funded for 4 years; projects are expected to be completed in 2023. The overall goal is to evaluate the best way to communicate sensitive genetic information to ovarian cancer patients and their immediate family members. Challenges associated with privacy laws and ethical concerns, differences in cultural traditions, and medical literacy are taken into account.

Family Health History Social Media Campaign
NHGRI, November 2021 (Posted: Nov 11, 2021 2PM)

November is Family Health History Awareness Month! To celebrate, the National Human Genome Research Institute will host several engagement events over social media on Wednesday, November 17. We encourage you and your organizations to join in and help amplify our Institute’s mission to increase genomic literacy and family health history awareness.

Health Literacy in the Digital Age: Applications to Genomics
Slide presentation, CDC webinar, June 2021 Brand (Posted: Sep 04, 2021 8AM)

With the recent COVID-19 pandemic, patients are turning more to online information sources and telehealth services to address their healthcare needs. Digital health literacy plays an increasingly important role in understanding information and in patient-provider communication. This has implications across disease prevention and the healthcare continuum including the field of genetics.

Development and Validation of a Comprehensive Genomics Knowledge Scale
MD Linderman et al, Public Health Genomics, June 2021 (Posted: Jun 07, 2021 8AM)

Genomic literacy is a prerequisite for the effective application of genomic testing, creating a corresponding need for validated tools to assess genomics knowledge. We sought to develop a reliable measure of genomics knowledge that incorporates modern genomic technologies and is informative for individuals with diverse backgrounds, including those with clinical/life sciences training.

Patients' and Oncologists' Knowledge and Expectations Regarding Tumour Multigene Next Generation Sequencing: A Narrative Review.
Shirdarreh Melika et al. The oncologist 2021 (Posted: Apr 09, 2021 10AM)

Patients generally had positive attitudes towards tumour NGS despite relatively little knowledge of test-related genetics concepts, but their expectations often exceeded the reality of low clinical utility. Patients with higher education and greater genetics knowledge had more realistic expectations and a more altruistic view of the role of NGS. Attitudes towards disclosure of secondary findings were highly variable. Oncologists had poor to moderate genomic literacy.

Utility of a virtual counselor (VICKY) to collect family health histories among vulnerable patient populations: A randomized controlled trial.
Wang Catharine et al. Patient education and counseling 2021 (Posted: Mar 26, 2021 9AM)

A virtual counselor overcomes many of the literacy-related barriers to using traditional digital tools and highlights an approach that may be important to consider when collecting health histories from vulnerable populations. The usability of digital health history tools will have important implications for the quality of the data collected and its downstream clinical utility.

Health Literacy in the Digital Age: Applications to Genomics
CDC Webinar, June 10, 2021 Brand (Posted: Mar 20, 2021 11AM)

With the recent COVID-19 pandemic, patients are turning more to online information sources and telehealth services to address their healthcare needs. Digital health literacy plays an increasingly important role in understanding information and in patient-provider communication. This has implications across disease prevention and the healthcare continuum including the field of genetics. Register today to attend our June 10, 2021 webinar.

Monitoring COVID-19 related public Interest and population Health Literacy in South Asia: An Internet Search-Interest Based Model
H Symum et al, MEDRXIV, November 25, 2020 (Posted: Nov 26, 2020 7AM)

Racial Disproportionality in Covid Clinical Trials
DB Chastain et al, NEJM, August 10, 2020 (Posted: Aug 12, 2020 7AM)

Lack of diversity in clinical trials may stem from long-standing medical distrust on the part of minority communities, but the problem may be compounded by cost (e.g., hidden costs for such requirements as fuel, parking, meals, and lodging), poor health literacy, lack of information, language barriers, limited accessibility, and implicit biases against minorities.

Teaching clinicians practical genomic medicine: 7 years’ experience in a tertiary care center
RM Cohen et al, Genetics in Medicine, July 6, 2020 (Posted: Jul 06, 2020 9AM)

During 2012–2018, 774 clinicians from multiple disciplines and career stages attended 35 programs; 334 (43%) attended the 5-day extended format. Evaluations showed significant improvement of genomic literacy (mean 15.05/100 points, p?<?0.001). Residents initially had higher scores than specialists; both significantly improved, with specialists “catching up”.

Returning genomic results in a Federally Qualified Health Center: the intersection of precision medicine and social determinants of health
GQ Shaibi et al, Genetics in Medicine, May 6, 2020 (Posted: May 06, 2020 10AM)

Challenges included the time lag between enrollment and returning actionable results, difficulty reaching participants, missed appointments, low health literacy, lack of health insurance, and reconciling results with limited information on family history. Social determinants influence implementation of genomic medicine in low resource settings.

Development and mixed-methods evaluation of an online animation for young people about genome sequencing.
Lewis Celine et al. European journal of human genetics : EJHG 2020 Jan (Posted: Jan 07, 2020 8AM)

Children and young people with rare and inherited diseases will be significant beneficiaries of genome sequencing. However, most educational resources are developed for adults. To address this gap in informational resources, we have co-designed, developed and evaluated an educational resource about genome sequencing for young people.

Optimizing genetics online resources for diverse readers.
Chang Jiyoo et al. Genetics in medicine : official journal of the American College of Medical Genetics 2019 Nov (Posted: Nov 29, 2019 9AM)

Commonly used educational materials were more complex than the recommended reading level for the general public. Genetic health information entries from Genetics Home Reference (n?=?1279) were written at a median 13.0 grade level. MedlinePlus entries, which are not exclusively genetic (n?=?1030), had a median grade level of 7.7.

Introduction to Genomics (Spanish version)
NHGRI, 2019 Brand (Posted: Nov 05, 2019 11AM)

Increasing genomic literacy is a major goal of @DNADay. To achieve this goal, @genome_gov now offers its “Introduction to Genomics” resource in Spanish. Learn more.

Find Training
CDC, 2019 Brand (Posted: Oct 29, 2019 11AM)

Training in health literacy, plain language, and culture and communication is essential for anyone working in health information and services. Whether you are new to these topics, need a refresher, or want to train your entire staff, the following courses are a good place to start.

Technology approaches to digital health literacy.
Dunn Patrick et al. International journal of cardiology 2019 Oct 294-296 (Posted: Oct 15, 2019 8AM)

Digital health literacy is an extension of health literacy and uses the same operational definition. Technology solutions have the potential to promote health literacy. Technology solutions should go beyond building literacy and numeracy skills to functional and critical skills, such as navigating the healthcare system, communication and shared decision making.

Exploring the Current Landscape of Consumer Genomics - A Workshop
NASEM workshop, October 29, 2019 (Posted: Sep 30, 2019 9AM)

The Roundtable on Genomics and Precision Health will host a public workshop on October 29, 2019 to explore the current landscape of consumer genomics and implications for how genetic test information is used or may be used in research and clinical care. Discussions include topics such as health literacy and engagement, knowledge gaps and data privacy concerns.

Genetic Counseling and Public Health in the Era of Precision Medicine
MJ Khoury, CDC Blog, September 18, 2019 Brand (Posted: Sep 19, 2019 9AM)

As more genetic counselors make a leap from individual patient care to population health concerns including implementation and disparities, genetic counselors will help enhance the public’s genetic awareness and literacy about genomics and family health history, contribute to policy, evaluation and implementation, and drive the overall success of genomic medicine.

Cancer Patients Have Limited Understanding of Genomic Test Results
Health Analytics, September 2019 (Posted: Sep 18, 2019 9AM)

A majority of patients with cancer don’t understand critical features of the genomic test results they receive when participating in clinical trials, according to a pilot study conducted under the Lung Cancer Master Protocol (Lung-MAP), the first lung cancer precision medicine trial supported by the National Cancer Institute (NCI).

Advocacy and actions to address disparities in access to genomic health care: A report on a National Academies workshop.
Williams Janet K et al. Nursing outlook 2019 Jun (Posted: Aug 14, 2019 8AM)

A workshop hosted by the National Academy of Medicine identified barriers in access to health care providers that utilize genomics, such as genetic literacy of providers and patients, and absence of evidence of gene variants importance in ancestrally diverse underserved populations.

Digital literacy—a blind spot in medical education?
Z Hassan, BMJ, August 8 2019 (Posted: Aug 09, 2019 8AM)

We are only beginning to exploit the potential applications of automation, machine learning, and big data in medicine. Yet few doctors know any programming skills and many workplaces are still waiting to update to Windows 10, let alone electronic notes or prescribing.

Using genetic tests to tailor antipsychotic treatments to individual patients
A Fagan, Genetic Literacy Project, February 11, 2019 (Posted: Feb 12, 2019 9AM)

Is Our Future Really Written in Our Genes?
K Mitchell, Scientific American, January 7, 2019 (Posted: Jan 08, 2019 8AM)

Serious Games for Improving Genetic Literacy and Genetic Risk Awareness in the General Public: Protocol for a Randomized Controlled Trial.
Oliveri Serena et al. JMIR research protocols 2018 Dec 7(12) e189 (Posted: Jan 02, 2019 4PM)

Things to consider before taking a genetic test for Alzheimer’s risk
T Rohn, Genetic Literacy Project, September 20, 2018 (Posted: Sep 20, 2018 10AM)

Increasing genomic literacy among adolescents
M Sabatello et al, Genetics in Medicine, September 14, 2018 (Posted: Sep 14, 2018 2PM)

Precision Medicine: Familiarity, Perceived Health Drivers, and Genetic Testing Considerations Across Health Literacy Levels in a Diverse Sample.
Williams Jessica R et al. Journal of genetic counseling 2018 Aug (Posted: Aug 15, 2018 10AM)

Assessing Genetic Literacy Awareness and Knowledge Gaps in the US Population: Results from the Health Information National Trends Survey.
Krakow Melinda et al. Public health genomics 2018 May 1-6 (Posted: Jun 09, 2018 5PM)

‘Your DNA, Your Say’: global survey gathering attitudes toward genomics: design, delivery and methods
A Middleton et al, Future Medicine, June 2018 (Posted: Jun 04, 2018 3PM)

Protein therapy in the womb overrides genetic glitch hampering teeth development, ability to sweat
R Lewis, Genetic Literacy Project, Apr 25, 2018 (Posted: Apr 26, 2018 8AM)

Health literacy in familial hypercholesterolemia: A cross-national study.
Hagger Martin S et al. European journal of preventive cardiology 2018 Jan 2047487318766954 (Posted: Apr 04, 2018 11AM)

New literacy challenge for the twenty-first century: genetic knowledge is poor even among well educated.
Chapman Robert et al. Journal of community genetics 2018 Mar (Posted: Apr 04, 2018 11AM)

Tackling e-health literacy
LM Martinez, Public Health Matters Blog, March 2018 Brand (Posted: Mar 05, 2018 1PM)

Battling depression with pharmacogenetics: Genetic screening could eliminate trial-and-error approach to medications
R Lewis, Genetic Literacy Project, Jan 23, 2018 (Posted: Jan 23, 2018 0PM)

A gene-editing first: Scientists try to edit a living human’s DNA
M Marchione, Genetic Literacy Project, Nov 15, 2017 (Posted: Nov 16, 2017 11AM)

Gene therapy creates boy’s replacement skin from his stem cells
R Lewis, Genetic Literacy Project, Nov 8, 2017 (Posted: Nov 08, 2017 2PM)

Genetics account for 83% of autism risk, re-do study finds
C Curtin, Genetic Literacy Project, Oct 23, 2017 (Posted: Oct 23, 2017 11AM)

Clear Communication Index Widget
Brand (Posted: Oct 09, 2017 6AM)

Medical genetics and genomics education and its impact on genomic literacy of the clinical workforce.
Hyland Katherine et al. Genetics in medicine : official journal of the American College of Medical Genetics 2017 Sep (Posted: Sep 20, 2017 11AM)

Breaking: First US gene-edited human embryo received healthy replacement DNA copy
R Lewis, Genetic Literacy Project (Posted: Aug 02, 2017 1PM)

A Proposed Genomic Literacy, Education, and Engagement (GLEE) Initiative
NHGRI, June 6, 2017 (Posted: Jun 07, 2017 0PM)

Game of chance: Are most cancers linked to nothing more than bad luck?
M Knight, June 1, 2017, Genetic Literacy Project (Posted: Jun 02, 2017 8AM)

Genomic Literacy, Education, and Engagement (GLEE) Initiative: Strategic Visioning Meeting
NHGRI, March 2017, meeting agenda and presentations (Posted: Apr 25, 2017 5PM)

Your Genes, Your Health: The Importance of Genetic Literacy and Education,
by Muin J. Khoury MD, PhD, and Katherine Kolor, PHD, Office of Public Health Genomics, Centers for Disease Control and Prevention Brand (Posted: Mar 29, 2017 3PM)

Community Health Workers: An Untapped Resource to Promote Genomic Literacy.
Allen Caitlin G et al. Journal of health communication 2016 (sup2) 25-29 (Posted: Mar 14, 2017 0PM)

Enhancing Literacy in Cardiovascular Genetics: A Scientific Statement From the American Heart Association.
Mital Seema et al. Circulation. Cardiovascular genetics 2016 Oct (5) 448-467 (Posted: Mar 14, 2017 0PM)

Informed Consent: The Case of “-Omics” Literacy
Hammer Marilyn et al. Oncology nursing forum 2017 01 (1) 28-30 (Posted: Mar 14, 2017 0PM)

Genomic Literacy, Education, and Engagement (GLEE) Initiative
NHGRI, March 2017 (Posted: Mar 14, 2017 11AM)

Genomics literacy critical to San Diego and nation
F DeSouza, San Diego Tribune, March 2, 2017 (Posted: Mar 03, 2017 7AM)

Non-coding RNA
Epigenetics Literacy Project, January 2017 (Posted: Jan 26, 2017 7AM)

How lay people understand and make sense of personalized disease risk information.
Damman Olga C et al. Health expectations : an international journal of public participation in health care and health policy 2017 Jan (Posted: Jan 25, 2017 9AM)

Why racial diversity in genetics studies matters in patient care
E Newbern, Genetic Literacy Project, December 7, 2016 (Posted: Dec 08, 2016 8AM)

Health literacy and the perception of risk in a breast cancer family history clinic.
Rutherford E J et al. The surgeon : journal of the Royal Colleges of Surgeons of Edinburgh and Ireland 2016 Nov (Posted: Dec 07, 2016 9AM)

Parents' Understanding of Genetics and Heritability.
Harding Brittany et al. Journal of genetic counseling 2016 Oct (Posted: Oct 19, 2016 4PM)

Gates Foundation doubling efforts to use CRISPR to create mosquito-killing technology
A Regalado, Genetic Literacy Project, September 7, 2016 (Posted: Sep 08, 2016 7AM)

Gene therapy 2.0: Will CRISPR make expensive treatment accessible to all?
D Warmflash, Genetic Literacy Project, August 16, 2016 (Posted: Aug 16, 2016 4PM)

How many genomes is enough for US Precision Medicine Initiative?
M Knight, Genetic Literacy Project, July 26, 2016 (Posted: Aug 01, 2016 8AM)

Relevance of Health Literacy to Precision Medicine
Division of Health and Medicine, National Academies Workshop in Brief, June 2016 (Posted: Jul 01, 2016 7PM)

Ready or Not: The genomic revolution is here, and literacy should begin in the high school classroom.
G Fowler, Genome Magazine, June 23, 2016 (Posted: Jun 28, 2016 3PM)

Next-generation genetics offer new way to combat hospital infections
A Porterfield, Genetic Literacy Project, April 2016 (Posted: Apr 16, 2016 9AM)

Health literacy and disease-specific knowledge of caregivers for children with sickle cell disease.
Carden Marcus A et al. Pediatric hematology and oncology 2016 Mar 1-13 (Posted: Mar 09, 2016 9AM)

The Many Facets of Genetic Literacy: Assessing the Scalability of Multiple Measures for Broad Use in Survey Research.
Abrams Leah R et al. PloS one 2015 10(10) e0141532 (Posted: Nov 04, 2015 3PM)

Gene therapy on brink of golden age: Here’s why
D Warmflash, Genetic Literacy Project, November 3, 2015 (Posted: Nov 04, 2015 6AM)

The high-risk world of rare genetic diseases
A Porterfield, Genetic Literacy Project, October 30, 2015 (Posted: Oct 31, 2015 3PM)

Genetic counselors and health literacy: the role of genetic counselors in developing a web-based resource about the Affordable Care Act.
Mann Sylvia et al. Journal of genetic counseling 2015 Jun (3) 433-7 (Posted: Oct 13, 2015 1PM)

Are physicians prepared for whole genome sequencing? a qualitative analysis.
Christensen K D et al. Clinical genetics 2015 Jun (Posted: Oct 13, 2015 1PM)

Genetic Knowledge Among Participants in the Coriell Personalized Medicine Collaborative.
Schmidlen Tara J et al. Journal of genetic counseling 2015 Aug (Posted: Oct 13, 2015 1PM)

Assessment of the Readability of Genetic Counseling Patient Letters.
Brown Emily et al. Journal of genetic counseling 2015 Sep (Posted: Oct 13, 2015 1PM)

Educational materials about genetics and genomics
from the National Human Genome Research Institute (Posted: Oct 13, 2015 1PM)

Learn.Genetics: Genetic Science Learning Center at the University of Utah
(Posted: Oct 13, 2015 1PM)

Genes in Life
Genes in Life was created by Genetic Alliance to answer your questions about health and genetics. (Posted: Oct 13, 2015 1PM)

The Critical Challenge of Educating the Public About Genetics
MJ Gougherty et al. Genetic Counselling and Clinical Testing, 2014 (Posted: Oct 13, 2015 1PM)

GeneEd: Genetics,, Education and Discovery
from the National Library of Medicine Brand (Posted: Oct 13, 2015 1PM)

CDC Health Literacy Information
Brand (Posted: Oct 13, 2015 0PM)

FDA using DNA to track foodborne illness before it spreads,
by Julie Steenhuysen & Reuters, Genetic Literacy Project, Aug 28 (Posted: Sep 02, 2015 1PM)

A Health Literacy Program Using Family Health History for Young Black Rural Students: Implications for Reducing Health Disparities.
Foster Pamela Payne et al. J Health Care Poor Underserved 2015 26(3) 662-7 (Posted: Sep 02, 2015 0PM)

Breast cancer genetic tests, beyond BRCA, can help personalize treatment plan
K Doyle, Genetic Literacy Project, August 2015 (Posted: Aug 14, 2015 3PM)

Privacy concerns raised by use of consumer genomics data in pharmaceutical research
E Topol, Genetic Literacy Project, January 2015 (Posted: May 14, 2015 5PM)

Informed Consent and Health Literacy: Workshop Summary
Institute of Medicine Workshop Report, March 16, 2015 (Posted: Mar 16, 2015 9AM)

Translation and validation of a Spanish-language genetic health literacy screening tool.
Rodríguez Sally Ann et al. Health Psychol 2015 Feb (2) 120-9 (Posted: Feb 13, 2015 10AM)

Effects of racial and ethnic group and health literacy on responses to genomic risk information in a medically underserved population.
Kaphingst Kimberly A et al. Health Psychol 2015 Feb (2) 101-10 (Posted: Feb 13, 2015 10AM)


Disclaimer: Articles listed in Hot Topics of the Day are selected by Public Health Genomics Branch to provide current awareness of the scientific literature and news. Inclusion in the update does not necessarily represent the views of the Centers for Disease Control and Prevention nor does it imply endorsement of the article's methods or findings. CDC and DHHS assume no responsibility for the factual accuracy of the items presented. The selection, omission, or content of items does not imply any endorsement or other position taken by CDC or DHHS. Opinion, findings and conclusions expressed by the original authors of items included in the Clips, or persons quoted therein, are strictly their own and are in no way meant to represent the opinion or views of CDC or DHHS. References to publications, news sources, and non-CDC Websites are provided solely for informational purposes and do not imply endorsement by CDC or DHHS.
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