Last data update: Jun 24, 2024. (Total: 47078 publications since 2009)
Records 1-2 (of 2 Records) |
Query Trace: Price PH [original query] |
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Satisfaction with life domains in people with epilepsy
Kobau R , Luncheon C , Zack MM , Shegog R , Price PH . Epilepsy Behav 2012 25 (4) 546-551 While commonly used quality-of-life instruments assess perceived epilepsy-associated limitations in life domains and formally document patient concerns, less is known of community-dwelling adults with epilepsy about their satisfaction with broader life domains, such as satisfaction with housing, education, neighborhood, ability to help others, and achievement of goals. The purpose of this study was to examine satisfaction with life domains in a representative sample of community-dwelling adults with self-reported epilepsy from the 2008 HealthStyles survey. Following adjustment for sex, age group, race/ethnicity, education, and income, people with epilepsy were more likely to report frustration in the domains of achievement (e.g., dissatisfaction with education and life goals), compromised social interactions (dissatisfaction with family life, friends, and social life), and compromised physical capability (dissatisfaction with health and energy level). Life satisfaction and other well-being domains can supplement health indicators to guide treatment and program services for people with epilepsy to maximize their well-being. |
Centers for Disease Control and Prevention Managing Epilepsy Well Network
Kobau R , Price PH , Giles HW , Pennell PB , Hargis E . Epilepsy Behav 2010 19 (3) 216-7 Epilepsy can be a life-altering chronic condition for many people with this disorder. The primary symptom of epilepsy—seizures—can occur unpredictably, despite diligent medication adherence, and can result in a number of negative consequences, such as disruptions at work or school, loss of employment, loss of driving privileges and independence, and personal embarrassment. The underlying pathophysiology of epilepsy and its treatments can result in cognitive difficulties that can impact personal relationships and daily activities. When people with epilepsy internalize these challenges and the ambivalence or discomfort that the general public conveys about epilepsy, this adds to feelings of social isolation, dissatisfaction with life, and depression. Many find that just getting by every day is difficult, whereas for others, planning for the future is downright discouraging. “If you don't feel like you're in control of your life, you're going to have issues. And when you're not in control of your body, that really magnifies everything.... There's nothing I can do. I can't work. I can't ride the bus. I shouldn't cook.” This comment from a participant in an epilepsy study, captured by University of Michigan researchers involved with the Centers for Disease Control and Prevention (CDC) Managing Epilepsy Well Network, expresses the perceived challenges and negative impact of epilepsy on quality of life [1]. |
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