CDC/NIH Web Information Database

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Last data update: Dec 01, 2023. (Total: 8775 Documents)

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CDC/NIH Web Information
Public Health Genetics, Gene Therapy, and Duchenne Muscular Dystrophy CDC Webinar, December 18, 2023
Newborn Screening Is a Lifesaver CDC, July 2023
Community Counts: Understanding Hemophilia and Other Bleeding Disorders through Public Health Surveillance CDC webinar, August 24, 2023
Fragile X Syndrome – Moving Research FORWARD CDC, July 2023
Improving Identification of Tic Disorders CDC, June 2023
Emerging Trends in Gene Therapy: Thalassemia as a Case Study CDC Seminar— June 22, 2023, 2:00–3:00 PM ET
Risk Factors and Causes for Tourette Syndrome CDC, 2023
A Parent’s Guide to Genetics and Hearing Loss CDC, 2023
What is Autism Spectrum Disorder? CDC, 2023
Sickle Cell Data Collection Program CDC, March 2023
Birth Defects Research and Tracking CDC, March 2023
Implementation of Population-Based Genetic Testing of Newborn Infants for Prediction of Hearing Loss in Ontario, Canada CDC Webinar, April 19, 2023
Population Screening for Rare Pathogenic Variants as the Low Hanging Fruit for Public Health Genomics Across the Lifespan MJ Khoury, CDC Blog Post, February 13, 2023
Transcript for Vital Signs Telebriefing: Children with sickle cell anemia are at risk for stroke and other complications CDC, October 2022
From Guthrie to Genomes: The Continued Evolution of Newborn Screening A Gaviglio et al, CDC Blog Post, August 15, 2022
Fragile X syndrome: Learning what families need, one person at a time. CDC, July 2022
Population Genomic Screening is Here: We Need Evidence on Health Impact and Optimal Implementation MJ Khoury et al, CDC Blog Post, June 21, 2022
Can’t Stop, Won’t Stop: The Resiliency of Newborn Screening Programs during the COVID-19 Pandemic A Gaviglio, CDC Blog Post, June 14, 2022
Breaking Down Barriers to ED Care for People with SCD CDC, May 2022
Facts About Hereditary Hemorrhagic Telangiectasia CDC, June 2022
Using Pharmacogenomics to Better Understand the Role of Selected Medications and Birth Defect Risk M Jenkins et al, CDC Blog Post, April 12, 2022
Precision Public Health in Action: Enhancing models to predict risk of adverse treatment outcomes in people with hemophilia CJ Bean et al, CDC Blog Post, March 29, 2022
From Guthrie to Genomes: Expanding Bioinformatic Capabilities in Newborn Screening Programs A Gaviglio et al, CDC Blog Post, March 21, 2022
Disease of the Week: Hemophilia CDC, March 2022
5 Things to Know About Heart Defects CDC, February 2022
Precision Public Health in Action: New CDC Pilot Projects Integrating Human Genomics into Public Health Surveillance and Applied Research M Clyne et al, CDC Blog Post, February 14, 2022
Awareness of Birth Defects Across the Lifespan CDC, January 3, 2022
V-safe and Registry Monitoring People Who Report Pregnancy CDC, December 7, 2021
Real Stories from People Living with Hemophilia – Carrie CDC, November 2021
Real Stories from People Living with Sickle Cell Disease: Rae Blaylark CDC, November 2021